Hi Charlie

How are you getting on with all the things going on around you,and info you are receiving??????

Charlie you asked about putting off treatment to go to a wedding,you can only ask!!!! they might consider you need to start treatment as soon as possible?? but sometimes you can be given breathing space,it does depend on your…[Read more]

Hi Jean
So pleased for you,it will give you both something to look forward to in the months ahead,I hope all goes well,and you both have lots of enjoyment from the new baby.

Hope yo are both keeping well,have not got round to scrabble on I pad,but did manage to get an invite to you on facebook,but you have to sign into it,will try again when I…[Read more]

Hi Michelle and welcome. There are a great bunch of people here. It is great to hear your news. My husband is on his 3rd cycle of CDT and the going for SCT if all goes well. So I will be welcoming any advice when Frank gets that far.

Best wishes
Jean x

Hello Michele
and welcome it is marvellous to hear good news i am sure you will be a great help to others

Keep well Jo

Ha ha Andy
Love the soap box moments, I have them frequently!
Love Helen

Hi Vicki

Slims is on the left,as he is often the passenger in the car,it did rub the line a lot when we did the 3 hr drive from London,It looked a bit red but not infected,the whole area goes red,plus hot with infection,Slim had a little pus on his,so took antibiotics just incase,if you catch it early,it saves a lot of problems,I kept spare…[Read more]

Hi Vicky
Sorry things have not gone to plan,at least you know he might be able to try the other injections so do not get to down.
As for the Hickman Line,Slims went in on the 23 April and its still in!!!!! originally they said it will not come out until his platelets are over 75,and they are only 50 odd.Its just the flushing through every week…[Read more]

Hi Charlie

I live not far from Dover and my husband is treated at local hospital,we are lucky that we have the trials in SE Kent.Slim had to go to Kings for his Stem Cell Transplant it is the nearest for us.
I can only tell you the care was excellent,they are very experienced,and have some of the top myeloma specialist it seems to me a good…[Read more]

Hi Tom and Helen

I know people fall into different degree,s of MM and Slim started off in a very bad place,It still took time to get AA plus disabled badge,Which I thought at the time was bad.IT did eventually come through,and helped us in many ways not as an extra perk,but money spent making like a lot easier for Slim.

As a lot of you know…[Read more]

hi Scott

glad to see you are ok did you have a good holiday in spain, is the golf going well. I chose to go the vein way if i have to (fingers crossed i can hang on) because they said i could be trained to used the machine at home so I though 4 days off was better for me
Keep well:-)
Love Jo x

Hi Charlie
You don't always feel terrible, I worked through the initial chemo and was very tired but I found the distraction helpful. I then went off sick just before my SCT. I managed to go on holiday to France just after stem cell collection, and despite having a very rough ride after SCT, I have had a week in Cornwall 3 months after SCT and…[Read more]

Hi Tom
Just a quick question do you get DLA.???
Were would we be without your cheerful face,I am sure you are going to be one of the lucky ones and still going down to your club until your 100 years,They might give you free drinks by then .Love Eve

Hi David and Charlie
may be i should have said you are entitled to apply for AA,but you have to make sure you fill the square boxes with square pegs not round ones,8-)

Attendance Allowance is what it says if you need someone to attend you because you can not do things for yourself,may be just in the day or during the night.there are 2…[Read more]

Hello Dee

I was admitted to hospital with pnuemonia and renal failure and what turned out to be MM i had cdt from the start and it was touch and go with my kidneys i did not have dialysis it may come in the future but at the moment my kidneys function between 15 and 20% I have been in good partial remmission since april 2009 as long as your…[Read more]

Hi Di
The person I was thinking of goes under Clucky,so if you find the posting it should tell you a bit more about his treatment,its his wife who does the posting Eve

Hi Paul
The smell is enough to put you off sweetcorn for life,the funny thing was Slim could not smell it.
Eat as much as you can as it will not take long for you,to go off food and drink:-(
Lots of under wear you can just through away,its just so much hassle trying to drag you drip to the loo,so if you can get enough fluid inside you,it will…[Read more]

Hi Gill
Have to reply this way as no E mail address,So glad things are as well as you can expect them to be.
Hope you manage,what you both have planned.
You were just constantly in my thoughts with not posting,and you often see on here people just fade away.
Due up at Kings on the 8th.Not looking forward to the journey.EVE

Hi Dai
I can only comment about when Slim was on CTD,then VCD.
No outward effect at all,never even put on weight,but as you know taking large doses did disguise infection,and made him think he new best,insisting he was going home,when he was on his way to ITU!!!
Once I new how they effected him,I was able to relieve some of his side effects,by…[Read more]

Hi Dai
We are new to the Dex. Frank is starting the 3rd cycle tomorrow. He is ok while taking the Dex (touch wood -has been first 2 cycles). His problems starts when he stops. First cycle he was off the planet for about 4 days. On the second cycle consultant suggested that he was weaned off it – that did not work as he was off the planet for…[Read more]