Hi Dee
Just popped in to say hello,and wish you well.

I cannot help you with this there are a few people on here who have had kidney problems,I think there is a chap in the west country,who plays in a band,I know he had SCT even though he was having treatment for kidneys,if i am right he went on to have a machine at home for his kidneys.So do…[Read more]

Hello Joe
Glad to see you are getting on with your life and hope you are not working to hard at uni,that is what your mum and dad would have wanted for you,how is your mum coping,bet she misses you both.!!

I hope its your mum cheering you on at the finishing line,and remembering your Dad,Its very hard the first year,so keep your chin up and…[Read more]

Hi Vicki
Yes GCSF is cumulative, but some people are slower than others at mobilising, its all about individuality again. They will just keep going until his cd34 is high enough to start collecting, might even give him the magic mobozil that Steve had last week, they won't give up, just ask Dai about long drawn out collections!
Keep your chin…[Read more]

Hi Charlie
Welcome! I'm on the myeloma xi trial, I started it nearly 18 months ago, on the revlimid, cyclophosphamide and dexamethasone arm, I was 56 when diagnosed. I had 4 cycles of the induction chemo, then went into complete remission, had SCT and then was randomised to receive the Revlimid as maintenance therapy. I'm on my 9th cycle now. I…[Read more]

Hi Vikki
Hope Colin is home and resting,I think we all go a bit over the top when we realise,some one you care about could become seriously ill,so we do are best to keep everything clean.It is a bit of a worrying time,just do your best,and make sure food is thoroughly cooked.Love Eve

Hello Joe

what a brilliant thing to do i know your dad will be with you every step of the way and though your whole life he will be the angel sitting on your shoulder
Love Jo x

All the best Paul for your SCT. Good luck and good vibes are with you. Glad you were able to get away for a dew says.
Love Jean x

Hi Paul
Got my fingers crossed that all goes well for you, good luck
Love Helen

Hi Vicki
I think, like everything about this illness, that it is not possible to predict how each individual will be in any given circumstance, so it's best to take each situation as it comes and not build up your hopes too much. As I live so close to our hospital I was going to be almost a day case patient, in and out on alternate days, as it…[Read more]

Hi Paul
It might seem like a long time to you,but if you look at the big picture its just a blip,I think you will sail through you are young healthy and fit,but do not forget to listen to your body.

As Debs says its not a walk in the park but it,s do,able.

The hard work will be when you get out,mind over matter,but you will do it Paul,Good…[Read more]

Great news Paul
after all the set backs you are ready to go I wish you the very best of luck for now and the future
Love Jo

Hello Charlie

welcome so sorry you have had to join but you will find such help and support here I would not have got through many times without it I cannot tell you about treatments except CDT many are not open to me as MM caused me to have real failure it has worked quite well for me as a stem cell transplant is not an option for me. I have…[Read more]

Hi Charlie

Welcome to the site,Its my husband who has MM.

Yes it is very confusing to begin with,but you soon get use to all the information,you have got books on Myeloma my advice is read a bit at a time,it will become the norm soon.

Lets start with transport,you can get financial help,also you do not say your age,but you will be…[Read more]

Hi Jo
Never been to the IOW but looked at it across the bay,have some friends who have lived there for years,they chose there because of the sailing.

Glad you had a great time with your grandson,I bet it,s home for a rest now.I just love to hear about you planning your next holiday,I am sure it,s not too far away. Love Eve

Gill
How are you doing???

Have had you in my thoughts did you get to France for that holiday Eve

Hi Kevin
Let us know how you get on,it is interesting that you are having CDT again!!!. I suppose the fact that it was 2006/7 since you had it last time.might make it work again.As you say it will leave you Velcade for another time.

Slim used up CDT plus Velcade just to get to SCT.At the moment waiting for BMB,to see if it has worked.

As…[Read more]

Dear Sue
How very sad and sudden a loss for you, you will still be reeling. As Eve has said, I do hope that you had some peaceful, quality time that you can gain solace from.
Love Helen

Sue
It,s the other way round,everyone on here will be thinking about you,It is so hard to accept and it should have been your consultant telling you there was no hope,it might have given you time to accept and come to terms with his death.
I hope you both had a time to yourselves and a peaceful end,accepting that some times,there has to be an…[Read more]

Hi Helen
I think a lot is post code lottery,in one way we are lucky because we do have the trials in SEK.and there are lots of trials going on from here at the moment.As a cancer patient Slim has the usual 24 hr number to ring,They in turn ring doctor and everything goes from there.So no problem:-P

If you look in the carers section subject 100…[Read more]

Hi Eve
Yes I understand, but it's no less horrifying to hear that you have gone on all this time without an expert nurse to contact. Mine is available by phone or email. You are right in saying that I am spoilt, I'm only a mile from a tertiary centre, so it's only a 2 minute run to the experts, for which I'm very grateful now.
Love…