Hi Andy
Hope all goes well later today, and yep getting shot of the catheter is a very sound goal, not comfortable. Do you have sensory loss too with your back?

I had Revlimid, cyclophos and dex as my induction therapy, I made sure I took anti sickness tablets an hour before the cyclophos and then regularly for 48 – 72 hours after, i rested a…[Read more]

Hi Alison
Shame about the flying for your mum but she' ll be pleased to get anywhere, I know I was!
Work is ok, I'm working my way through thousands of emails and planning my retraining, that should take til about September, what with the gradual return and all. I'm shockingly tired as expected. But the diversion from being at home is good,…[Read more]

Lovely videos Tom 🙂

Hi Liz and Kev
Congratulations on another granddaughter, Myeloma puts everything into perspective,for all the family. Also you appreciate the event a lot more when you thought you would only have the one grandchild.
I hope you have lots of first ahead as a family,first steps,first school,first boyfriend,and lots more. Love Eve

Hi Amelie

John is lucky to have enough stem cells for a second sct,and not have to go through another harvest,is any after treatment planned after sct. ??????

How long did John get from first sct to mm coming back?????

Am I correct you are based in Holland,do they have a criteria to follow or is John on trials,or is he treated more as an…[Read more]

Hi Mike
This is just a welcome to the site:-)

When I read your post,my own immediate thoughts were so selfish,one was we will have our own resident expert,as this is what you would become,you might not know much about Myeloma at present,you will learn,just to prepare yourself[just incase]:-P
Then my thoughts were for you as a person,and I…[Read more]

Hi Dai
Well yes, only cast iron numbers and in large numbers is medical research measured, but as Keith says and as a nursing observation, better health and the positivity that goes with it often gives better outcomes, for complex reasons. But Dai your numbers are fluctuating in the same plane, not rising, so I'll keep my fingers crossed that…[Read more]

Hi Ali
What a relief, it took me 4 hours on first day then 2 hours on second day so your mum did well to do it all at once. Another hurdle out of the way, now have a really good few weeks of rest, holiday and put lots of weight on, ( mum, not you 🙂 ) so she has good reserves for transplant, no need to eat much afterwards means you can…[Read more]

Hi Mari
Can't help on the Plerixafor, I had double doses of Granocyte, which made me feel shocking but yielded the results. Hope it works though and you get good news tomorrow.
Love Helen

Mari

I'm so sorry to hear that Steve is having a hard time stem cell collection. I'm still new to this treatment (frank hopes to have SCT after his cycles of CDT are over) and no nothing about plerixaforbut I will keep everything crossed for him for tomorrow and pray that all goes well. Enjoy your holiday.

Love Jean x

Hang on in there Keith, hope it keeps doing the trick.
Love Helen

Congratulations Liz and Kev and what a lovely name. Grand children are a joy we have just had 2 of our grand daughters over from Kent. Hard to say goodbye to them

Enjoy them they are a blessing
Love Jean x

Hey good luck Tom let us know how it goes
Love Helen

Hey Tom that's brilliant. They still haven't had a male quarter millionaire hope you will be the first.

Good luck
Love Jean x

Hello Suea

this is terrible these people didnt no shouldnt be consultants see if your GP can refer you to one of the teaching hospitals Kings or UCH both in London but centres of excellence the one at UCH is jointly run by McMillan
you could also contact them direct very best of luck let hope next time we hear from you it is better news
Love Jo x

Hi Mari
Good luck with the harvest and try to get that holiday in between,when we asked about gong away we were told no to going abroad,my daughter did say at the time,don,t let them rush you,but like all things,you just want to play your part,I think a holiday would have done us the world of good,i suppose with are added burden,it just took to…[Read more]

Whoa that's clever, Tom, I confess to being a complete idiot when it comes to IT, In fact I don't really know what you are talking about:-P I spent today trying to remember how to use a PC having used an iPad for the last year.!!
Love Helen

Hi Ronnie

My Husband smouldered for 6 years. He had pain in his ribs and complained for 18 months to consultant. Frank did tell her that it was muscular. She sent him for a skeletal and an MRI which showed up nothing. She was not concerned as his proteins were dropping. After nagging she sent him for CT scan which showed up 2 lesions on ribs.…[Read more]

Hi Keith

Read your post abouth the Dex with interest. Frank started the first cycle of CDT last month. He was taking 20 x40 mg on the first day for 4 days. The withdrawal was not nice. He felt so peculiar. When we told consultant she decided this month to wean him off. He took 20,20, 20,20,5,4,3,2. Frank said that he is going to,tell her that…[Read more]

Hi Keith
Sorry to hear about the continued gut troubles, it really is a pain in the 'wotsit', I have got used to it now and having had a break for two weeks, I know it is a problem that I've got used to now, after 8 cycles.
Anyway, the steroids, get on the blower to the consultant in the morning, I'm with Dai here check out that dose with the…[Read more]