Hi David
Do you have much time to do this? My idea may take a while but it is special.
I suggest you buy, make, steal, borrow or invent a small gift for every year which matches with the years.
For example anniversaries have names, this will be your golden.
1st year is paper then there is leather ,tin, copper, china, pearl, silver etc
So for…[Read more]

Dear Andy and Steph
sorry the meds are not working for you lets hope the new regime works and you will get a bit of relief fingers crossed for you
Love Jo x

Hi Jo

Nice to hear from you:-)

I feel much better now,as not going to the hospital so much with Slim,and that by itself is great,as i can get food and drink more regulated at home.

Not needed any platelets so that is a bonus,he is looking a lot better,although he still try,s to over do it,next will be BMB to see if it has worked,then plan…[Read more]

Hi Ali
Good to hear things are going ok with your mum,
You make sure you take it easy as when this is over ,I think it,s when the hard work begins for the person who is doing the caring,it can be a very emotional thing as well as being aware that it takes so much energy away from your mum.
I kept the Grandchildren away for the first month,and…[Read more]

Hi Ali
I'm much better now thanks, Though back to sleeping all day and awake all night, got to start sorting that out again! Thanks for the compliment too:-)
Love Helen

Hi Andy
Myeloma clinic, always a Tuesday, multi disciplinary, ask as you get to the desk to see Prof Jackson, be prepared to wait a long time sometimes. Parking is horrible, get dropped at the door by someone athletic enough to walk back over the site when they eventually find a space. Coffee shop is ok though let us know when you go.
Love Helen

Wendy a brilliant photo and hair style. Well done you on the run

Jean x

Hi Wendy,
Good photo, where's the new hair then eh? I'm amazed you were back at work at 2 months post SCT. I'm now aiming for my third attempt at going back, having had all those horrible infections and being signed off again and again, anyway onwards as Tom says. And you are right, retirement may not be a financial option, i did request a…[Read more]

Hi Andy
Well I'll see you in the waiting room at the Freeman then, Tuesday mornings. I had Rev, Dex and cyclophos for my induction therapy, hope it works for you.
Love Helen

Hello Dee
Every one is different, he will only get what they think he needs to reduce the cancer cells to the lowest level. He is a year younger than me, I had 4 cycles initially. A bone marrow biopsy then showed complete remission. So I went on to have auto stem cell transplant, as he may well do if he has a good result and his kidney function…[Read more]

Hi Andy and Steph

How do you feel about it all!!!! has it answered some questions.!!! Do you feel that everyone is trying there best for you!!!.I think over all you must be pleased even if you are unique.
Well you might not see it at this moment,but you have made the big boys sit up and take notice,
You have your answers and you know were you…[Read more]

Hi Jo

They said that the cells had been producing Pp for 6 years and then for the past 4 months the PP's were dropping and are now at 8. Consultant went on about rogue cells and made a comment about non-secretory but I got the info from the Myeloma nurse. Am doing research on it.

Will be thinking of you on Monday, good luck
Love Jean x

Well David
It depends if you want family and friends to celebrate with you you could book a nice hotel for the night with a celebration dinner depending how many people there are and then all have breakfast together in the morning
a mini honeymoon with company!
Love Jo x

Hello Eve
I hope your daughter has a great time she may see history in the making
How is Slim getting on and how are you feeling you must be exausted
Love Jo x

Hi Judd
I dont know about the trails but I wish all the luck in the world with it and hope it gets you right soon
Love Jo x

Hello Jean
I didnt know what the difference was so i looked it up only !/2% of people get this and it sounds very strange that it has changed from one to the other perhaps he had this all the time
Love Jo x

Hi Judd
How are things going,I see you did not get many reply,s I know Andy G went on them,plus another person.
I have bumped this up to the top.so if more people see it you might get some reply,s let us know how you get on .Eve

Hello Myra
Welcome to the site,

You have listened to the doctor,s what do they say!!!!!
My husband is the person with Myeloma,and he has damage to his bones but no compression on the spinal cord which is a good thing.If he was in danger of compression he would not have much choice.As for pain yes he is in pain,and has strong pain relieve,his…[Read more]

Hi Jean
Lets hope so,some one on the net said blackmarket asking £45,000 for tickets,but you would have to use a forged passports as they check ticket belongs to person who enters.
2 0f my daughters always put in for tickets and have done well each year.
This is the best though.Eve

That is great Eve she deserves it and I hope she has a brilliant time and that at the end she has something to go wild about!! Murray winning Wimbledom —- WHOW

Love jean x