Hi Alison
I had a 6 week wait between last induction therapy and stem cell collection. Then once they knew they had enough cells they gave me the transplant date for 3 weeks later. I imagine each hospital will have their own set up, ours doesn't use Hickman lines if possible so there is a difference to start with. Which hospital does your mum…[Read more]

Hi Ann

My husband has just finished 1st week of CDT and he is saying that things taste different. The worse thing to him is the Water- and you know he has to drink a lot. Have bought bottled water to see if it made a difference. He says it doesn't taste as bad. Hope things improve

Love Jean x

Oh Andy
What can I say? It's so difficult, and very disappointing, and every other emotion all over again….. I'm so sorry. But you just have to do what ever you can and hope it works for as long as possible, are they going to repeat the SCT as well?
Hope the Velcade works well for you.
Keep in touch and let us know how you get on.
Love…

Hi Jen

Sorry you have to join us but welcome. Like Alison I can't answer your questions but someone here will help you. My husband was diagnosed 6 years ago but only started on CDT last week. He has two lesions on his ribs. We saw radiotherapy consultant yesterday and she said that she didn't think that radiotherapy was necessary. Maybe…[Read more]

Hi Keith
Yes, got to get the priorities right and go for the holiday, I totally agree.
I thoroughly enjoyed our trip, my sister was an absolutely brilliant tour guide and our well placed relatives meant we could stay with them for huge chunks of time. So we travelled round the North Island quite a bit. We hired a fabulous beach house for the…[Read more]

Hi Alison

I am replying to your post under treatment,it shows in my e mails but not on the board.When I looked into your profile it is not showing a posting,so I have used your last posting to reply.(does that make sense!!!!!)

I think the system is having it,s own blips as 2 of the headings have not been showing on my computer screen. Love Eve.

Dear Keith
That's a bit of a 'b……' have you managed to get away as planned?
When I was expelled from the blood bank in 2010 it was because I had a pancytopaenia, the mm cells occupied the space in the bone marrow so the normal cells have no room to form.
What is the next step for you now?
Love Helen

Hello Everyone
Back home again, no ill effects except massive jet lag both sides of the journey, so I'm about to plan the next trip, better get the atlas out! Will sort out a photo or 2 when awake.
Was back to clinic this morning, still in complete remission, so started cycle 8 of maintenance Revlimid today.

Have read a few of the posts over…[Read more]

Hi Eva

How is Sue getting on,although Slim is home we have spent 2 days going back and fourth to are local hospital,Slim has a problem with his platelets on Sunday they were 33 today down to 7,there is fine explanation under the Macmillan Site.Explaining some of the reasons why this does happen .

One explanation is having platelets from…[Read more]

Hi Gail
Eve again just realised I am loosing the plot called Howard,Henry,My excuse is i was up with Slim during the night and I have not caught up from all the travelling to the hospital.Sorry Eve

Hi Gail

Sorry to hear henry is having a hard time,may be a little time in a hospice is what he needs.They will be able to get his symptoms under control and help with his anxiety this is what they do and a very fine job.

You said your self Henry,was behaving so out of character,I think we look on hospices as a place to die but they do so…[Read more]

Thanks Dia
I have just joined their web site its so interesting
Love Jo x

Hi Terry
I would agree with all your thoughts and what a beautiful picture of Scotland.
You have to keep positive,and enjoy every day.Eve

Hi Chris
A belated welcome to the site,one minute you have everyday living and in the next minute you have joined the club as a carer.

In my mind Myeloma is a dreadful thing,your life does get taken over by it,we do hear of some people who sail through treatment,and go on to live as normal as possible,but we all have the knowledge that one day…[Read more]

Hi Jo

Glad that you are having a bit of a break from appointments and doing well. Do you live close to the hospital? We are fortunate that it inly takes about 20 minutes to get there. So if we have a long wait we just come home.

Frank has been on lots of medication, injection and Dex – tomorrow last day for Dex till Friday. Not sure if…[Read more]

Hi Paul
sounds like things have gone ok a little gentle walking should help with the legs I do hope you can get away for a few days
Keep well
Love Jo x

hello Jean
Nice to hear from you I am doing ok at the moment the next breath holding moment is in july when they check my para's the next app in June is just to check Hb levels etc to see if I need any blood. How is Frank doing are they giving him anything for the ribs although I expect the dex will help a bit although it will not help with the…[Read more]

Hi Andy
I know how hard it is to remain positive,but it has started to go down,very slowly but it is in the right direction.When Slim was on Velcade it was awful waiting,he had to have 4 cycles before they would take a BMB,as bloods and light chains were considered un reliable as they were not showing a true reading,and on top of that the…[Read more]

Hi Eve

So glad that Slim is home and hope every day there is a big improvement. Take care
Jean xx

Hi Chris

Sorry you have had to join us, but there is great bunch of people here. My husband started CDT yesterday after smouldering for nearly 6 years. He has to take Dex for 4 days – this is second day and I,m wondering how long it takes the side effects to take in. Frank has 2 lesions on his ribs and is going to see radio therapy consultant…[Read more]