Hi John

Yes it is way down the list of side effects,and as you say may be men do not like to mention
It.Slims never been shy in that department.
Once Slim had antibiotics he was fine,he started bad P&N after he came off Velcade,but when he came to Kings they upped Amitryptiline and now his legs are fine.
Doing well at Kings I am having…[Read more]

Hi Jean

I think no matter if you are expecting it,everything seems like a bit of a blow as you have said 6 years is good. Every day is a new learning curve, in time it will just seem normal. So try not to worry,we have all been there before you and will help. You on this journey.

Frank has been caught early,so he does not have much bone…[Read more]

Thanks Jane and Jo

I know it had to come Jo but it feels like 6 years ago when he was first diagnosed – scared!! Frank seems to taking it better than me. He's full of chat and we are going out for dinner tonight!!

ThAnks again for your support.
Love Jean xx

Hi Jo

Glad to see things are going well for you,sounds if you had a lovely time.

Better get planning another holiday as you have another 2 months clear.Love Eve

Hello Jean

sorry Franks results were not good this time but I think deep down you might have been expecting it with all the rib pain he has been having
CDT will probably stop you going abroad but you could probably get short breaks here but he will have to be careful of infections as for gin and tonics I had them all the time only one a day…[Read more]

Dia
fight your corner I know you will not give up I have every faith in you
I agree they dont give up at the first hurdle in america they try and get over what they call blips I think in this country to many doctors are tinkering around the edge where in america they are much more focused on myeloma and specialise much more
Big hug Jo xxxx:-)

Thankyou all for the kind thoughts

Yes TOM the heating is on I am used to the injections as i had to go on insulin for my diabeties as i could no longer take the tablets and thats twice a day
David I have got some geraniums in the green house but still not sure wether to plant them out or not we had a light frost yesterday
Jean I will keep…[Read more]

Dear Gill

I am so very sorry to read about Stephen and hope that there is something out there that can help him. My love prayers and hugs go to you both.

Love Jean xx

Hi Jo

Welcome back from me too. Glad you had a great time and I'm over the moon about your results. Long may it continue. We are off to consultant tomorrow. Dreading it as usual. With a bit of luck we will get the results of the scan that was done 4 weeks ago!!

Take care

Love jean xx

hi Andy
that sounds like good news you can put up the the terrible BM if it proves your treatment is working keep us posted
Love Jo xx

Well Dia

you never semm to do things by halfs all or nothing a!!! glad you now seem to be on the mend and with the care of nurse Janet will pull though ok its a shame really as you seemed to be doing ever so well upto now
Love and a big (((hug)) Jo x

Hi Mari

Slims on Waddington,had to change wards as beds have to be seen to be filled with bodies all about filling beds these days,after 3 hour journey made him sit round for 2hours,as you can imagine I lost the plot a little bit,it worked,next day was moved to have chemo,only given half does as kidney function not good,after not having much…[Read more]

Hi Gill So sorry about the news,can understand how angry you must both feel, Slim says if this SCT does not work he will not have any more as 6 months not being able to travel abroad and no guarantees it will work is a lot out of life,We are travelling to NZ once this is…[Read more]

Good to hear from you Roz. As Gill says it does sound that you are moving on. Glad about that. See some of your posts on FB. take. care

Jean x

Good one David. I like this one – not sure if they will post it. Hope it doesn't offend anyone.

     The  Priest's Ass
The Priest entered his donkey in a race  and it  won.
The Priest was so pleased with the donkey that he entered it  in another race and it won again.

The local paper  read:
PRIEST'S
ASS  OUT FRONT.

The Bishop wa…[Read more]

Hi Peggy
Ouch ouch ouch I hate having the bone marrows had four so far and hate it every time I also have renal failure they say I will have to start on EPO not had it yet but my ferritin is very high now so its not good to keep giving me blood my blood pressure seems to go up and down I call it white coat sindrome keep well
Love Jo x

hello Sarah
so glad to hear Henry is feeling much better its good to know you are able to get out
Regards Jo x