Hi Eve

You have really had a bad time recently. It was so sad about Matty and now your friend. I sincerely hope that things do get better for you. On the forum you sound so strong and are a friend to us all, but life has a a nasty habit of kicking us in the bum now and again. I pray that Slim's SCT goes well and the sun shines on you every…[Read more]

Hi Min
Lovely to hear from you,glad to see you back,you were missed:-(

I have watched Reiki being done,and for the life of me i do not understand what they do,but it did work for Matty,plus a friend of my daughter who,s husband died age 38 years,it has a very calming effect,so I think bring it on,if it helps.
Stress has a terrible effect on…[Read more]

Hi Mari
Did Steve have enough stem cells or will they do another harvest!!!
Rosie my husband Slim is 68 this year and is having his first SCT starting Sunday,i think it,s not so much age,it,s how fit you are,because Slim had pneumonia which left scaring on his lungs,we thought they would say no,but they have said he is fit enough.They did decide…[Read more]

Hi Gail
I think the 3 cycle was the hardest for Slim,mainly because he was ill and we just thought it was the effect of the chemo,because he did not have a temperature, it was not picked up by our doctor or A&E,he had pneumonia and the steroids masked the infection.
So this is were you have to be firm if you think he is ill make sure they listen…[Read more]

Hi Peggy
BMB are not the nicest thing to have,but they will show what is going on with your bone marrow,because some times the kappa light chain readings do not reflect what is going on in the bone marrow.

Your BP reacts to your condition,it can go up and down if your nerves or upset,so take deep breaths and keep calm,:-P
Myeloma does take…[Read more]

Hi Everyone

Just Looking in,This is what we need,good news,Wendy and David,lets hope we hear lots more.love Eve

Hi Dai
Well….. There you go, all these bugs must be catching…….. Even over t'internet,:-) It was probably me! I've just had another chest infection last week too. Finished the dreadful doxycycline on Sunday. I'm just hoping for a clear week before we go away. You just get yourself fit and well by the time I get back. Glad Janet enjoyed the…[Read more]

Hi Wendy
I'm sorry, I must have missed this bit of good news, glad to hear everything is going well, we must only be a few weeks apart, I'm at 8.5 now.
And yes Paul are you all set and ready for your SCT?
Love Helen

Hi Teresa
That's a very nice even colour for a previous brunette, I confess to not knowing what shade my hair was before I lost it as I'd been colouring it quite merrily for the last 20 years, but I found losing it totally devastating. I was quite surprised to see how grey it is as it has grown in but I'm leaving it like this for a while, see…[Read more]

Hello Mavis
You sound much cheerier today. Which is good. Any walking around counts when it's tough going and you are tired after the drugs and the disease effects, so well done. You are right to be just counting off the treatment months, and as long as you can keep as fit as possible and the pps drop you are doing the right thing.
Love Helen

Hello Craig and Etta
Glad to hear Etta is getting on ok, hope the appointments come through quickly and the SCT goes smoothly
Helen

Hello Eve
I'll be thinking about you this week, hope it all goes smoothly.
Love Helen

Hello Gail
Welcome:-/ to the site, I'm sure a carer will come along soon to talk to you. I'm another sufferer and can only comment from my own experience. You don't say if your husband was ill before his diagnosis, but even if he was, 3 months is a very short time to get your head round the impact of developing life changing disease and how it…[Read more]

Hi Andy
What do you mean ' not commenting on hair or style' I think we should see what 'used' to be there, in fact all you chaps could do that! Or do you all fancy roles in eastenders:-)
Love Helen

Hi Gail

Reading your post,it could me writing it,only the year would change to January 2011.So you are not alone,you have joined many other people on this journey,because the carer has no choice,and some times is forgotten,because everyone worries about the person who is ill.

I use to worry about my husband,being very confused,plus lots of…[Read more]

Hi Susan
Thank you for posting about Sharon,i have been trying to find out how Sharon was as she was on Velcade the same as Slim,and i was wondering was it working for her,she helped me a lot with information.
Thanks again for posting,I wish her husband and young family all the best,Eve

Hi Teresa
So what colour was it before the sudden grey? I have a friend who did likewise and went from brunette to white at 35, surprising for us all, she too has stayed with it. I'm still undecided, it is temping to do nothing and leave it, but we'll see. I feel I want to go back to work, I wasn't ready to retire when I got ill and still think…[Read more]

Hi Andy
Strange how your pps aren't behaving, there's individuality for you, I was told that a plateau is sometimes what they look for before sct, so hopefully as you are feeling better and the Rev and dex get to work things will improve. Keep in touch.
Love Helen