Hello Stan

Welcome,I can well understand your concerns,have you mentioned to the doctor the MM history?

Some Myeloma,s do not give any indication in the blood,there are number of different Myeloma,s and the correct blood test plus urine test have to be done. This will indicate if myeloma is possible,the only positive test is a bmb,if they…[Read more]

Hi Tracey

Just quick reply as doing this on I pad in hospital

Slim takes Amitriptyine 10m to help him sleep they have just upped his dose to 25m because they also use this for PN as this is used for PN might be worth asking you doctor. Eve

Hello Stan
I am sorry your partner is so unwell there is a simple blood test for MM so your partner should ask for one Pep test is a good indicater of MM it measures the paraprotien in the blood which is one of the major indicators for the disease
Regards Jo

Hi Duncan, Yes you are in the right place, if you ring Ellen she will be able to tell you about it plus send you booklets. There are a few people on here with Amyloids so I am sure they will reply when they see your post. I believe there are only about 600 cases a year and Royal Free is the…[Read more]

Hi Trish

Get first defence from chemist. We use it at the first sign of cold, sore throat – really anything. also use it when we are flying. I asked our doctor about it and he said it was good to use it. We ding it good.

Love Jean

Oh Boy these photos doing my head in. It's a case of "now they are here and now they are gone!!!"

THEY ARE BACK. MAGIC!!!))

Jean

Hi Eve
Hope tomorrow goes well, try not to worry too much and be gentle on yourself. Are you staying nearby?
Love Helen

Hello Carol
Thanks very much, it's interesting to know that the skin dryness and nail changes last so long. I had a feeling I had suddenly become 'very high maintenance' instead of just 'plain expensive':-D
I had a patch test for my hair but it's still too itchy, next time hopefully, then it will be lots of highlights I think. I still can't…[Read more]

Carol did a search for you but could not see you!!

Jean

Hi Carol

I use Face book. Have to be honest, I set it up so I could see what my grand daughter was up to!!! She is not a street wise child and at one time she told everyone where she was, that she was lonely and gave out her mobile!!!

Will look you up

Love jean x

Hi Jean
Photos came and went ….. Several times!
Love Helen

Have I eventually lost my marbles???? on earlier and there were lovely new photos of Eve and Helen and now they have reverted back. Is it me or my stupid lap top?
Jeanx

Photos back again.

Just love the new photos! Eve good luck on Monday

Love Jean x

Hi All
They are good profile picture,Think I will have to get my hair done and try it out .LOL Eve

Hi Ali
Welcome to the site,

I think we all worry when a new hospital,is on the cards,I know I did,,what you have to remember is they are designated units.All new to us,but something they deal with on a day to day bases.

It will seem over whelming at first,but treat it all as another learning curve,it will help if family go with your mum as…[Read more]

Hi Tracey

I am sitting here this morning,and the sun is coming up I have tears in my eyes,and truthfully I do not know why,I do not know if its because I read your post,and thought,poor girl or if I was just seeing myself a little bit further down the line.So it must be me just being a bit tearful.have to find my little white pills again,they…[Read more]

Hi Tracy
Jean is right, just wait someone will usually come along, I saw your post, but as a sufferer I thought another carer might be the more appropriate person. I had my sct last August, I can sympathise with your partner, I could not bear to eat or drink properly for weeks. It's a very stressful time, but you are soon to become an expert in…[Read more]

Thanks Tom what a cheeky charmer you are:-) Why did the pic not come 'on' properly do you think? Though I see it is here now.
Love Helen

Hi Kay
Must have been a relief to know everything was ok, even little things tend to give you a bit of a fright until sorted, :-0 I need much more reassurance these days.

It's good to hear you are doing ok Sandy even if the holiday was fraught.

And Mavis, you just show them what you are made of and get on those pins again. Those sticks…[Read more]

I can understand how you are feeling. Frank has not starte d treatment yet. His bloods on Thursday were not too good and he has to go back on Wednesday for more. Eve is a carer (hate that word) for her hubby Slim and she is a mind of information. She has clarified many things for me. Look out for her posts. I hope your partner is soon home with…[Read more]