Thank you all for your informative replies. Frank contacted hospital about antibiotics and was told that if he got an infection – temperature he would have to contact them as the antibiotic would have to be given introveniously. What I really don't understand is that Frank has never had any treatment. He is SMM. he is going to contact the…[Read more]

Hi Scott and Teresa
Lovely pics
Helen

Hi Jean
It looks if hubby has a bit of man flue bugs,if you feel worried about them before having a good holiday,for your own peace of mind,go to the doctor,s

Jean if you have an infection your pp go hay wire,
I would press for an early scan,I still find it hard to understand why a PET scan in not used in Myeloma,that shows any activity…[Read more]

Hi Carol
Were have you been??? not heard from you for awhile .Hope it was sunny were ever you were.8-)

Hi Mari
Have nothing to add about Velcade.
Did Steve only get enough stem cells for one chance,from what I can see for allo SCT,you would have to convince them its viable.They like a back to back ,your own sc then a few months later a donor .Eve

Hello Mari

glad Stephen is doing well I know my hospital Lister in Stevenage is not licenced but I have regular visits to UCH and they do so lets hope its soon run out all over the country
Regards Jo x

Hello Sue

I have been in touch with Bridget and she is not well with a bad chest infection I am sure we all wish that she will be better soon
Love Jo x

hello Jean

sorry Frank is having trouble white cells and neutrophils are all to do with fighting infection it looks like Franks white cells are to low so the doctor is worried about infection he may be brewing a cold. I think 8 weeks is much to long to wait for a scan that needs hurrying up, when you go to spain you will have to try and keep…[Read more]

Helen
You just go and have a wonderful time,if you have not seen your sister for a long time you are going to find it very emotional too.Love Eve

Hi Helen
Looking at Elaine,s reply,I cannot help but think she has it just about right,we would all like to think that people will get a good run of collecting there pension,but it does not work that way.!!
As for the fact they are more concerned about your blue badge,well every company has to fill there disabled quota,you will then tick one of…[Read more]

Eve I will think of you while I'm there Helen

Hi Teresa
How did the hospital visit go?
Love Helen

Hi all
Ostrich now removes head from sand, I didn't buy the cake stand- too dear.:-(
I saw the boss today.
It was less traumatic than it could have been and I managed to keep calm and not cry! No idea what will happen but he went off with a list of things to find out about going back, and will let me know.
In jan I asked about ill health…[Read more]

Hello Tony
Its a funny place to meet people, I too am on myeloma xi trial. I have oligo secretory light chain (lambda) mm and was diagnosed in feb11. I had 4 cycles of revlimid etc which took me to complete remission, then sct in August 11. I've been on the maintenance arm of revlimid since then and am slowly returning to fitness.
Hope your…[Read more]

Mmm ……. but charming new photo
Helen

Hi Michele
How are things going,did your husband make any decisions concerning whether to go for SCT??
How are things going in general.Eve

Hi Andy
I have the same problem,and I am not the patient,cannot blame the Dex:-P
Wake up, and just cannot get back to sleep,usually play scrabble with my daughter in NZ but she is not always available as its 3pm over there.

How did the visit to the hospital go,??? Eve

Hi Eve

I have an iPad and I downloaded Kindle free from the App store. I set up an account with Amazon and get my books within seconds. They are usually cheaper than hard copy.

Jo hope things are good with you.
Best wishes
Jean x

hi Teds
sounds interesting I hav'nt got a kindle I wonder if it could be down loaded on line
Hope you are keeping well:-)
Regards JO