Hello Tony
sorry you have had to join but welcome You will find much help and advice here as well as moral support the myeloma help line is invaaluable they are able to answer most of your questions good luck with your journey
Regards Jo x

Hi Tom
Thanks for info,do not have a kindle but do have an i pad ,so will look on there.
Good to see you are doing well,try not to worry about smm.why worry about it if you cannot do any thing about it,Ask for an I pad for next Christmas they are amazing. Love Eve

Hi Wendy
I thought the Myeloma X1 trials were world wide with all data being combined and results published world wide,to come up with results that will eventually be accepted as given results of CTD against RCD.May be I am wrong.Eve

Hi Teresa
I had problems posting that picture,I tried one of Slim and me sitting together,and just got his ear and mine,resorted to dog as only picture i could fit in,there are instructions on how to do it at the start,the web team will help you,you can contact them by E Mail,or someone reading this might come on board with a solution.
I get…[Read more]

Hi Andy
my local hospital is Canterbury which is 15 miles away,but the nearest hospital for SCT is kings in London. That is were the problem lies for most people on the SE Coast,but as I said my daughter lives nr Sevenoaks,so Camping on her drive,I wonder how much she will charge me:-/

I do not know if its any help,Slim had low potassium ,and…[Read more]

Hi Lynda

Good to hear things are OK with Pete,I think we all feel the same,just want a result and an ending,but it is early days for Pete.

I know he will have to go the hospital more,but if it works!!!!is Pete having sub cut or infusion???,Slim had to go,for blood test morning then infusion afternoon,the actual injection takes all of 3…[Read more]

Hi Jo
Do not know Skaithos is it mainland or a Greek island,only been to the mainland once,we have always said we would do Cyprus with Motor Home,alas one of the many things on are list:-(
Just so pleased for you,after the scare of you might be needing treatment again,make the most of it.8-)Love Eve

Hi Ted
Frank has been nearly 6 years SMM. going on Thursday to see consultant on Thursday and I'm dreading it. Feel like "we have got away wiih it for such a long time". Just pray God is good and Frank is still stable. My best wishes to you Ted and a welcome to you Tony you are in the best pace for support

Love Jean xx

Hi Tony
My husband Slim is on the Myeloma X1, he got the CTD side,because of his fitness he was on the intensive pathway.
I can only tell you to listen to your body,if you do not feel well, do not think you can cope with it,make sure you phone the hospital for advice,its a very hard call and you do not want to bother anyone,but it is very…[Read more]

Hello Eve

I have the all clear this month to go on holiday so we have booked up an 11 night holiday on Skiathos we go on the 4th of may really looking forward to it
Regards Jo x

Hi Dai

We bought are first van an old vw,because we had two old smelly jack russels, and having a guest house myself,did not fancy staying in one.First major trip was 6 weeks to Spain,wish we had done 3 months,that must be over 20 years ago. We now have a Concorde Charisma,will be living in it,when Slims in hospital for a month.
Have been to…[Read more]

Dai

We know there is not any choice,
One because at the start no one tells you your options,it is only after a sharp learning curve,it becomes apparent there just might have been better options,but when the word Cancer is mentioned ,with no cure,your just grateful for any treatment.:-/

Most of the European Countries start on Velcade,Looking…[Read more]

Hi Jo
Must admit would give a lot,just to be in a warm place in the Motor Home,but have been told no travelling abroad for 6 months, as they are spending so much money trying to help Slim,I feel we must obey there rules.

Have you any nice trips planned??
Lets just hope that England has a glorious summer,just this second had a small hail stone…[Read more]

Hello Eve

how are things progressing for slim will his SCT be soon and are you ok its been a long long year for you both perhaps now you can look forward to more holidays in the camper hope the sun keeps shineing for you regards to Slim
Love JO X

Hi Jorge
You are correct,not bad going for a man who considers he is old at 66 years LOL.Eve

Hello Mavis
so glad you are home at last that will make you feel a bit better both my daughters are doing the race for life in Bedford they are walking it, both of them have done it for the last couple of years
Well CDT i had four lots of CDT which put me into a good part remission or plateau stage when I finished that I took thalidomide 100mg…[Read more]

Hi Andy
53 is young enough to consider a back to back SCT,So in some ways you are a lucky guy,it is surppose to be very effective at keeping the dreaded MM at bay.I mean lucky in MM and age terms if that makes sense.
Not many people go through 3 treatments in such a short time,at this rate,you will be having SCT in no time.I think why they like…[Read more]

Hi Dai
I can only comment on Zometa,and reading up on it,as Mavis says it,s suppose to help with Myeloma,although I have to say a dentist told us,it is more effective in the first few months!!!:-P
I am not like you Dai,I know I should have confidence in the experts,but it,s not there life,and there views differ so much,,so I will go on…[Read more]

Hi Mari
The long post just makes up for you not posting for awhile:-)

We all have are ups and downs on this rocky journey,some times I feel only the world of myeloma exsit,and then I have to remind myself there are lots of people struggling with different things,so I tell myself to snap out of it and be grateful.(:-) 🙂 🙂 smiley face comes…[Read more]

Hi Jo and Mavis
|Glad to hear,the new Cancer Centre at UCH is good,as both of you say,so much time spent in hospitals!!!
Mavis also glad to see you have escaped,must feel great to be home,the summer will not be long coming,and should help to get you back on your pins.
SS Bradford have come up to scratch,nice to see someone pulling out all the…[Read more]