Hi Gina and sister
Lovely to hear from you,and to see you are moving on with your lives,that,s what your mum would have wanted,lets hope this less crying days as as this is also what your mum would want.
I think you feel it more on days like mothers Day and birthdays,the knowledge you can no longer pick up the phone and have a chat.

As you…[Read more]

Hi Teresa
No the snow didn't lie and as we are on the edge of the city it was too warm for thick frost so here's hoping. I have tried alliums every year for the last decade with no long term luck except for 2. One is as femma as a spring onion and the other just grows leaves, no idea why, i normally have quite green fingers, but there, sometimes…[Read more]

Hi Stephen

My heart goes out to you,mainly selfish because I know one day I am going to be in the same position as you,I hope that does not seem unkind,why has it taken you so long to find this site,people on hear understand exactly what you are going through,some have already been there,and others are preparing themselves,but hoping there is a…[Read more]

Hi Ian

Swollen ankles,sounds like water retention ,Slims ankles became very swollen on Velcade,had to buy socks with loose fitting at the top.only just managed to fit into his boots,I use to massage his feet and legs which gave him some relieve.
He did not have PN until he finished Velcade,he only has it sometime,s I think it is just a…[Read more]

Hi Teresa

I would say lots of deep breaths are needed,you do not say if you have any support from children or friends,this is a time for some help.even if you can just have a few hours break ,to recharge your batteries.If you just need to chat come on here,someone will all ways reply:-)

Lets hope for some new treatment soon.Love Eve

Hello Mavis
I wondered where you had got to, you have always been there when I've posted so your absence was very strange after all this time.
I'm glad to hear that things are getting sorted so that life back at home will be easier for you, but you will be missing the busy time in church, time for a rest. The tiredness does get a bit easier,…[Read more]

Hi Ian
No……. But only been on it for 4 months as induction chemo and the last 5 months as maintenance. How long have you been on it and what neuropathy do you get?
Love Helen

Hi Dai

I think you have said what a lot of people feel,you see so many people coming on here for advise help or just to explain how they feel,some never to be heard from again,and some just can not cope with the whole process,and as we have both said some who cope for years and then just post. I would not pretend to know why they post and we…[Read more]

Hi Mavis

I must have missed some of your posts as I did not realise that you were having such a rough time of it. Glad that things are heading the right way. I will keep you in my prayers. Hope you have a great Easter.

Love Jean xx

Hello Mavis

so glad things are going in the right direction at least they seem to have got on top of your pain the wheel chair might well be a temporary measure at least I hope so My prayers will be with you this Easter time
A BIG (((HUG)) From Jox

Oh Dai I didn't realise that you already had arm involvement. Stress fractures need very little 'stress' sometimes to occur. I'll think of you sitting in clinic while I too sit in clinic and will wait to hear how you get on.
Love Helen

Hi Stephen

I am so sorry for the pain that you are going through. It was good that you were able to spend a lot of time with Dawn. I am sure that you have lovely memories that will give you comfort. My husband Frank, was diagnosed with smouldering Myeloma in September 2006. Only treatment he has had is Zometa. He has good days and bad ones.…[Read more]

Dear Michelle and Stephen

I am so sorry to hear of the passing of your loved ones. I am a career for mtyhusband who has this horrible illness. My thoughts are with you both at this terrible time and hope that your good memories will see you through the hard times

My love to you both
Jean x

Hello Dia
I will be keeping my fingers crossed for you on tuesday I really hope the pain in your shoulder is not MM related it sounds good that paracetamols help as they are not the best for severe pain lots of luck
Love Jo x

Hi Dai
I think you should really whinge about your shoulder when you next go. Mm might be smoke screening and there are lots of really painful shoulder things- like frozen shoulder, impingement or painful arc syndrome, all of which are simple (as in not 'serious') but need lots of pain relief and physio because they can mess up normal life and…[Read more]

Dear Teresa
I'm so sorry to hear that the trial has failed so quickly for Peter, that must be so hard to bear. What is the next plan for him?

I finished all the pots last weekend, planted with alliums and lilies, then we had snow for 3 days! Heaven knows what will grow now:-P
Love Helen

Hi Nicola
That's a fantastic send off for your dad, you must feel so proud that people thought so much about him, I hope that gives you a little bit of strength to cope with the tearful times.
Thinking of you
Love Helen

Hi Tina et al
If you need pain relief, take it. I have looked after people who have taken colossal doses of opiates and functioned very well for years. ( you wouldn't believe the amounts we see in the addicion service:-P ) There is nothing so wearying and depressing as pain. As long as your docs are aware of what you take they generally don't…[Read more]

Hi Kay and all
I'm a few weeks ahead of you on the sct front and also have the curls now, getting them cut next week, will post new photo then I think. Today I can barely move, having woken up with severe back pain, the first I've had for a year as it went when I started the chemo last February, I'm hoping it will settle in a day or so, and I did…[Read more]

Hi Ozzey

I was type 2 diabetic before I was diagnosed with MM I was very well managed but since all the steriods during CDT and now a small dose because of the renal failure they have put me on insulin as steriods raise the sugar levels so much this could be what has happened in your case I'm manageing quite well but its not ideal but all these…[Read more]