Hi Jo

Good to hear from you. How are you doing? Hope all is going well for you. As usual Frank is driving me nuts – but love him dearly. Waiting for appointment for CAT scan. Still has pain is side. Some days he's good and others – bad form. Must be feeling good today as we are going out for dinner. We have had fantastic weather all week…[Read more]

Hello Steph and Andy

this is not a place most people think they would have to join but welcome
everyone here is so supportive and helpful there is usually an answer to any questions you might have and Myeloma help line is priceless
Keep well
Regards Jo x

Hi Jean

how are you and Frank is he behaving himself like most men I suspect not
looks like you have had a bit of good weather in NI lets hope it lasts have you booked a get away yet for this year
Love Jo x

Hi Mavis

so sorry you are having such a bad time I managed quite well with cdt and my kidney function improved they thought it was all the extra steriods which helped the kidneys I do hope they can manage your pain when they do that you will be able to think more clearly. There are lots of new treatments down the line I read about something new…[Read more]

Hi Steph and Andy

I am sorry you have had to join our "club". I am a carer to (hate that word). My husband Frank has MM diagnosed in 2006. They are truly a great bunch here, you will get friendship, support, advice comfort and hugs. It has been my lifeline and I know you will get a lot out of it. Ask anything and I'm sure someone will have…[Read more]

Dear Jean
I can't imagine losing one of my sisters (I have 3) we are all quite close and they have our shared childhood memory. I'm glad the funeral went well, nice to have a minister with the personal connection.
Take care
Helen

Oh Mavis I am sorry, I have been wondering what had happened to you and your appointments. Hope they manage to get you on your feet soon and the CDT does the trick.
Helen

Dear Mavis

I am sorry to hear that you have had a really hard week and such a bad time. My thoughts are with you, keep positive. God bless
Love Jean xx

Thank you Dai your words, they are beautiful and I'm so glad you you shared them. Thanks Tom you are always there with hugs and there is nothing as comforting than a hug.
Love Jean x

Hi all

Thank you all for your lovely words. Derek was buried yesterday and if a funeral can be described as "nice" – it was nice. Derek's neighbour is a lay preacher and they had been friends since Derek moved in 14 years ago. Billy knew Derek very well and he conducted the proceedings. It was nice to listen to someone who really knew him.…[Read more]

Wonderful news Gill:-P

I hope you have a marvellous holiday:-)

Love JO

Hi Dai
Will keep my fingers crossed that blood levels improve. I'm on to the 5th cycle now, so far so good:-)
Love Helen

Hi Terry
My get up and go got up and left about 5 years ago and is only just coming back lol!
I forgot to say that I have had a hot water bottle practically welded to my back until about 3 days ago and have worn socks and many jumpers constantly in bed I was so cold. And as David says when you get cold everything seems worse.
As for Macmillan…[Read more]

Hi eve I'm with Paul on this one, ring your specialist nurse and ask for all the screening tests to be done on one day, it should be possible.
Up here we don't have the cyclophos priming, just the heavy duty gcsf then harvest, when that is done ok the transplant date is booked about 3 weeks later so that you can recover a bit before sct. Hope it…[Read more]

Hello Kirsty
Not the nicest site to join but has the nicest people, especially when the going is getting tough. You are very young to have this disease thrust upon you but there are others your age and the under 50s have some other place where they communicate in a different language or something;-)
I've been struggling with the diagnosis and…[Read more]

Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.

I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]

Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.

After the…[Read more]

Hi Andy
We'll keep our fingers crossed that the chemo gets the evil paraproteins and zaps them all!
Love Helen

Minus 8……Brrrrr that's cold, I'm enjoying a heat wave here In unseasonably sunny Newcastle, it is 23*at 5pm, I'm in shorts and a t shirt and factor 50. So much for the maxim never cast a clout until May is out.
Good luck with the trial ,keep us posted with how it goes, it's interesting to hear what goes on in other areas of the globe. I'm…[Read more]

Hi Terry
I was out by day14 and felt dreadful for weeks. I did as much as I could, slept, cooked, slept, went out, slept, saw people, slept, ate a bit, slept, got infection after infection, slept you can see the recurring theme here :-S

I'm now 7 months post SCT, still have some residual problems BUT for the last 10 days I'm more like myself…[Read more]