Hi Bridget

Thanks for that tip,It has always been the case they are not obliged to tell you about all the help you can get,some things are very wrong with our society.

All this media attention,has increased attacks on disabled people,a couple of months ago,Slim was verbally attacked at the bank,he was on sticks and sat down,a man next to…[Read more]

Hi Gill
My fingers are crossed for you:-)
Why do men never tell you what,s going on ? Slim says it because I make a fuss and would cart him off to hospital!!!!,I call it caring !!

Lets hope its just a blip Gill,and you will get that holiday. I envy you,being able to get away,it is now 17 months since we came back from…[Read more]

Hi Jean

So sorry to hear your news,even if it is expected,you still feel the blow.
Do people take comfort that people they love are no longer suffering,or feel there is no justice that some ones life has been cut short,and they will miss so much of loved ones future lives.
You have your faith Jean,this must give you some comfort,I hope the…[Read more]

Hi
Well I have to say Dai I feared the worst,Slim has no memory ,so he has no fear,he goes into this hoping for the best,his decision ,up to now I have felt positive,started procedure only to receive a letter,with appointment for cat scan,how can they start this and then decide he has to have a scan!!!,they want us to travel 86 miles to sign a…[Read more]

hi Dai

Out of interest,have you ever seen or heard of the Zulu warrior,the reason I ask,is you mentioning the local barracks requesting rebel songs,they were banned in barracks ,Once heard and seen never forgotten.

I think the words ring true,kill or be killed.different world.time and place, keep writing,you have something to say ,love Eve

Dai

I hope you are going to put music to those lyrics ?

It reminds me a bit of the Irish rebel songs of the sixties, believe it or not the forces use to listen to them too.
Hope to hear it to music soon Love Eve

Hi Viv

I was hoping you would get some reply,s from people in your dad,s position,so I am boosting this to see if some people can help you.

People do get very tired,but you have to make the most of the times you have some energy,and make plans to go out even if its a walk round the block,all doctors will tell your dad to excise ,they chemo…[Read more]

Hi Dai
You are doing what you do best!!

I have a time it,s 4am don.t ask what I associate it with,but sure enough when it strikes 4am,I look at the clock and know the time without looking!!!

I do think about a lot of things and often wish I took a pen and paper to bed,my daughter does this every night,so you keep on with your writing time…[Read more]

Thank You Everyone
For your good wishers,very very impressed with Kings Chemo unit,it took us be surprise,after local hospital,the staff were very impressive,not one walked by looking down at the floor,and everyone kept checking all monitors.

Gives us more confidence in SCT.

Slim sleeping after busy time,next stage is harvest,so date…[Read more]

Hi Eve
Good to see you enjoying a bit of time off at last even though it was cut short a bit. Hope you have a spell of plain sailing into the SCT
Love Helen

Dear Michelle
So so sorry to hear about Phill, he was too young to leave and you must be heartbroken. I wish you all the strength you and your children need in the days, weeks and times to come. Remember all the good things and talk about them to your children keep him live in your memories.
love Helen

HI CAROL

great news about your SCT i hope all goes well enjoy your break in Spain come back fit and healthy:-)
Love Jo x

Hi Eve

I hope the SCT works for Slim. It's so hard to believe that a year has passed. Congratulations!! Hope you have a great day

Love Jean xx

Hi Dai

Sorry i have missed your post.Rearly good to hear new treatment is working,and you have some releave from the pain.

Finding i cannot keep up with the post,think its because as things improved with Slim,my middle of the night,being wide awake has faded and now sleeping well myself,
It is lovely to hear the old Dai back again,Love Eve

Hi Debs
No I understand trying to distance yourself from mm, it's a bit invasive on the mind! And escaping from it as much as possible is probably a good idea. I'm ok, getting better, the pneumonia was a set back which I didn't expect but I'm good now. I'm also sporting a short' 'do' which I quite like, though I wouldn't have chosen it. Like you…[Read more]

Hi Dai
I could never work out what was doing what when I was on the rev/dex/cyclophos combo but now I'm on revlimid only, I have the running nose, especially at meal times, tingling mouth and trembling fingers, sudden fatigue and occasional headaches i think when I've done too much.
Being a girlie I can't comment about the hesitancy! Different…[Read more]

Hi Eve
glad you managed to get away in the motor home it will have done you some good so Slim is going for the SCT i do hope this will be a success so he can have a good chance of a better life Well one year on and a wedding anniversary which you didnt at times think you would see hope you can go out and celebrate:-)
Regards to Slim
Love Jo x

Hi Tom
Well managed a few days away in motor home,but came home early Slim not to well,have been waiting on a phone call from Kings to tell us results,only to find they,did not ring mobile as requested,but left message on answer machine…[Read more]