Hello Terry and welcome
glad you found us its good to hear what goes on over the pond I read Dr James Berensons reports you seem much further ahead with treament than us
you are so lucky to have been diagnosed before much damage has been done my kidneys have been badly damaged good luck with holding of the progression of MM
Kind regards Jox

Dear Bridget
Eve is right, what words can we use to share your feelings. You must be reeling with shock and sadness. I so hope something else can be tried to keep the disease down.
Remember always how much you are loved.
Love Helen

What a romantic! I think it sounds absolutely fabulous, i can just imagine the expression on your wife's face.
Love Helen

Hi Bridget

Just reading you news,and wondering what to say,sorry does not seem fitting, it is strange the way,over time with this MM it becomes another hurdle to get over,and now you are being told there are no more hurdles,well Bridget if you are prepared to jump the hurdles,they should at least be prepared to find some.
I like most people on…[Read more]

Hi David
skimmia and photina would be good too, I don't know leucothoe, in fact photina would be very striking, don't know how expensive to plant a whole hedge mind! Viburnum is cheap and you can strike it easily, but it's much less organised as a hedge and can be straggly. We will need to see photos of these gardens when planted.
Love…

Hi David
What about a mixture of viburnum, spirea, hebe and a couple of hydrangea. You have a lot of space there. We can grow all of these shrubs on our heavy clay soil and it will give you a variety of flowering phases all through the year. Or just stick with viburnum, dark green leaves lots of varieties generally with a tiny pink flower, needs…[Read more]

Hi James

Good to see you have got through SCT and now,working on you general health,Slim my husband has not yet had SCT but after a few hiccups with treatment,found himself unable to walk with out sticks then only a short distance.
He started walking short distances often with me pushing a wheelchair just in case, went to one stick,then…[Read more]

Hi Paul I'm much better today thanks, got to be better by tomorrow, I've got tickets for the theatre and don't want to miss out!
Do you have siblings to collect an allograft from? And I think you are right to just get on with life as much as possible. I felt much the same about the treatment, it was a case of get on with it, toe the line and…[Read more]

Hi Dai

When I read you had missed out on trials,I put off replying as it just did not seem enough to say how sorry I felt for you,it just seemed so unfair,but hey! some times life is not fair,and by the sound of it you have picked yourself up and hey ho! on to the next treatment.
You cannot keep a good man down:-)

At least with the night…[Read more]

Hi Andy
Again welcome to the site
My name is Eve and I am a carer to my husband,I use to be a 3am person,but things have got a lot better,and my husband took my advice about seeing the doctor and taking an extra pill,to try and get some normality in are life.
He now takes a light ant depression tablet which makes his body relax so sleeps all…[Read more]

Dear Kerry
How are you and Melvin getting on? Sorry to have hi-jacked your post a bit:-)
Helen

Oh Paul that is one big hiccup! Oh how unpredictable this disease is. It is an effort in its self trying to remain optimistic when hiccups! happen. I do hope things are progressing well for you now, do you have a future date on the horizon yet? Or have you turned superstitious and not disclosing it in case it changes again?
I am doing ok, they…[Read more]

Dia
i am so glad you can be positive about the drugs you it might not be so bad to have revlimid treatment I know a lady in my support group who has had revlimid for nearly four years on a low dose now tablets every other day and no steriods at the moment thalidomide and velcade were not any good for her she says that there have not really been…[Read more]

great news Eve

you have had such a struggle so it looks as if there is a bit of blue sky on the horizon I hope the tests prove to be good so that every thing is go for the SCT good luck and kind regards to Slim
Love Jo x

Hello Andy
welcome to this site you will find so much help and encouragement from so many people Myeloma uk is so good and the help line is a god send so many questions that need answers I hope they can sort out your back and give you sme relief from pain GOOD LUCK with your MM journey
Love Jo x

Hi Paul
How are you doing? You must be close to sct now as I seem to remember you joining the site while I was in hospital having mine! Love Helen

Disappointing for you Dai, but hope the rev and dex works for you, love Helen

Thanks Eve we might just do that. We go for 3 weeks, to fit between trial visits, I'm really excited about it. This time last year I never thought I'd be able to go any where ever again, so I've already come a long way, in my head, so you have to just hang on in there and hope you and Slim get to go again, just think I shall be able to bore you…[Read more]

Hi Andy
Welcome, as David and Bridget have said, lots of post goes on in the early hours, dex, sleeplessness, worry, whatever….. We do it all. The mm journey is like a roller coaster ride, feels different to each one of us, can be bumpy or smooth…….. Hope you've got the seat belt on………..!
Helen

Hi Bridget and Helen

Bridget I do not know if they do accomodation,but I will ask,I have been told its the main trauma hospital in London,deals with anything bad that,s going down,The easiest solution would be go in one day have test then come out after 2 days of test,I am lucky I have a daughter who lives in Sevenoaks,but last time she…[Read more]