Hello Eve good news for you at last, Can't help with london, only ever use public transport there. Hope you get away, i managed to fit in a trip to France between stem cell harvest and transplant so use that time well!
Despite having pneumonia now I have booked my ticket to New Zealand today and got insurance for both of us- husband only £50…[Read more]

Hi Mavis and Tom
thank you for your good wishers.Tom I posted on your face book,don,t you want to be my friend:-( 🙁 🙁

Hi Bridget

Although I originally come from Liverpool,I am a country bumpkin at heart,so London was a bit daunting,Just cannot see Slim coping well with train,all though easier option,last time we went my daughter took…[Read more]

Hello Alan and Dave
Welcome to the site.

Dave pp levels at 6,it just might be a blip,Jo on here had food poisoning and her levels went up,only to go down again when she was better,its going to be a hard 6 weeks waiting for next blood test.As to new treatments as Gill said lots in the pipe line,

Alan there are lots of people who had SCT on…[Read more]

Hello Keith
See you on Saturday
Helen

Thanks Elaine

Frank is convinced that it is muscular, As MRI and skeletal X-ray were ok. The dr gave him anti inflammatory tablets and he said they have helped a bit. Consultant won't be happy as she doesn't believe in those tablets. We see consultant in 10 days so as nothing else can be done he is going to wait.
Thanks again
Jean x

Hi Jo

Still don't know. Frank and our doc say no. Consultant says yes. So waiting game till next visit to consultant. He is still in a lot of pain. We are supposed to be going to Spain on Monday but he says he will see how he's feeling on Monday. I would prefer to stay at home. Hey lucky you having sun. It is quite mild but windy and overcast.…[Read more]

Hello Jean

how is Frank ok did it turn out to be shinglesafter all how are your nerves coping its sunny here today whats it like in Belfast
Love Jo x

Hi Tina
No,no break,if your on intensive pathway,if you have bad side effects they can reduce dose,4 days of dex is very full on.If you have problems please mention them .At least you will only go to hospital for bloods,tablets and Zometa,if you hospital is well organised should be able to do it in 1 trip.

Try not to worry everything will fall…[Read more]

Hi Everyone

Come on Tom admit it right arm pain,how many pints do you have to lift until pain starts!!!LOL

Slims pain started in his back when x,ray came back had an old brake plus new brakes,told would heal in 3 months,6 months down the line diagnosed with MM.
Only went to doctor,s because I nagged him!!!!
My advice is go to your own…[Read more]

Hi Min
I feel like Gill,but I am also very proud of you,you have picked yourself up and started to find a new life,as David says we all know what the future has in store,but you are just showing it can be done.

I cannot find you on facebook Min,I would like to keep in touch,I will all ways be grateful for all your help with Slim,you kept me…[Read more]

Hurrah, hope it's a very long remission
Love Helen

Hi Tom

Frank had a full skeletal X-ray and a MRI at last visit and consultant said there were no changes so he is back to thinking it is muscular. It has been going on so long. Seein consultant in 2 weeks so might get somewhere.

Love Jean x

Hi Gill

Sorry that Stephen is having such a rough time. Hope the medication works soon. It sounds really bad. Our surgery is useless. The nurses guards the doctors like VIP's. Frank saw doctor and the said that He doesn't think it is shingles – the spots he had are gone. And not like you describe, they looked a bit like the Rosa rash that…[Read more]

Hi Jean

This MM is a bu**er! My hubby has MM diagnosed Set 2006. Only treatment he has had is Zometa. About last 9 months has had pain in side. Consultant thought it was ribs. Sent him for a skeletal X-came back no change. His protein is at 30. But as other tests are stable they don't seem to be concerned. He still has bad pain in side but…[Read more]

Hi Tom,
I am so pleased for you.I hope we are not going to loose you,now your fighting fit and officially stamped to be first class condition.:-(

We need more people like you on this site,to tell us the good side,it gives a lot of people hope,so don,t think about loosing us,still cannot find you or your breakfast on FB,or Mins.

Love Eve

Hi Tina
My husband was on the myeloma X1 trials had 6 cycles of CDT with a few hiccups in between,It is a 3 week cycle of tablets which you will take home with you nurses will go over all the tablets with you,there will be extra tablets to stop you feeling sick plus others.You need to write out a chart or get a dairy from Ellen its a must for…[Read more]

Yippee Tom

just the news we need to cheer us up keep going onwards and upwards
Big ((((hug)));-)
Jo x

Well done Tom, you must be over the moon. Long may it continue!

Love Jea xx

Hi Bridget
Sorry to hear your having a hard time,i can understand you not wanting to go back another day for treatment,but all that time at hospital must have left you exhausted:-S lets hope it works.Eve