Hi Everyone

Thanks for the info Ellen,I know this is a complicated complaint,but hope you understand how lack of knowledge does not help the patient.
Good luck Dai with your bottle,!!!
Hi Min no holiday yet,as have had a number of hospital appointments,hoping to fit a cruise in before May,looking good.
Min believe it or not if Peter is like…[Read more]

Dear Min

I too I'll be sad to see you go but you have a life to live and enjoy. Thank you for all your goodness , kindness and good advice and friendship.

Enjoy life and I hope that life will be kind to you. See you on face book

Tke care
Love Jean xx

Hi Pamela

Good to hear from you and hope you are well. Thanks for the info. Frank is in bed and I went up and woke him to read what you had written, as the only info we were getting was from the site. It is good to have some info when you say IV is that introveinus (??) He was in so much pain today that he phoned the doctors to speak to him -…[Read more]

Hi Jo

Will cross every thing for next month. I hate the build up to consultant visits – i get my knickers in a twist!! Derek's wife phoned to say that consultant says there's been a slight improvement. So thank God for that.

Keep well
Love Jean xx

Hi Jill
My husband has just finished a course of Velcade which he found ok,except for the hospital visits at your mums age they will only do it once a week,but first it,s blood then velcade and it can be combined with her Zometa so one less hospital visit. It does depend on what hospital you attend some can do the whole process under 2 hrs.some…[Read more]

Hi Dai
Min is right about less liquid needs to be day before 24 hr bottle.!!!!

If I am correct Dai you have Kappa Light Chain like Slim,so bloods do not detect it and urine is the marker,so as Min says how do they know you have it back,have you had a MRI scan or BMB,if its showing in light chain test it has to be going through the kidneys…[Read more]

Hi Jean

when i had shingles they came up as pustles that looked like chicken pox
and boy was it painful I am so sorry to hear about your brother i hope you get some good news soon I am ok at the moment this months bloods were just a check its next months which tell me what stage i am at uptil now i have been in a good partial remission so long…[Read more]

Hello Mavis
its a lovely photo you look really jolly
Love Jo x

Yea Tom she does look posh. Good on you Mavis

Love Jean x

Hi Jo

Thanks for your reply. I will tell frank about the cider vinegar. He still says its not shingles. I don't know about shingles but the skin is not sore, it is underneath and I can see him wincing with the pain. He has no faith in his doctor but I have persuaded him to speak to him tomorrow. I just hope they can get it sorted. My younger…[Read more]

OUCH
OUCH OUCH Poor Frank its so painfull I found an old remedy when i had it as the aclovier cream didnt work too well I used cider vineger it took the sting right out smelt a bit like a chip but ity really worked I feel for him How are you Jean good I hope
Love Jo x

Hi Tom
At least your eating breakfast even if I cannot see it,explains those cheeky choppers,nice to see a healthy face,Slim loves his breakfast,scrambled egg and smoked salmon on toast this morning,trying to wean him off bacon sausage and fried bread,needs to put on weight but needs good weight,it,s not working as the minute I reduce fat intake…[Read more]

Hi Ros
I would agree with Mavis,mums have to have very broad shoulders your the one person she can hurt,and you would still forgive her time to toughen up lady she is no longer a child and is responsible for her own actions.

There comes a time when people cross a line,get on with your life Ros,Michael would want you to be happy.
What this…[Read more]

Hi David

Sorry to hear your not feeling too good. When Frank gets coughs or colds he takes Manuka honey. I read about it on the forum and did some research on it. Supposed tobe a natural anti biotic. It has worked for him, there are different strengths. Hope you feel better soon

Love Jean xx

Thanks Mavis and Bridget for your replies. Frank has had this pain on and off for months – a long time said at first it was a pulled muscle – actually Frank told them it was a pulled muscle!! It was just tonight he was very uncomfortable and he wanted Volareen rubbed in (doctor had given him a rub to put on and he was doing a war dance round the…[Read more]

Hello Dia

it cheered me uo too
Love and ((hugs))Jo x

Hi Terry
I didnt have the chemo priming either, just the gcsf injections, then I had a needle in each arm and lay flat on my back for 5 hours the first day and an hour the second day. They got enough cells for 2 scts. I took a book but couldn't read as couldn't bend my arms to turn the pages! I could not get up to go to the loo either, but had…[Read more]

Hi Nikki
Your Auntie maggie seems to be one tough cookie to not realise she had a broken jaw, lesions are often there in advanced myeloma they should respond to treatment sounds if Maggie is on CTD which which is first line treatment.

The issue seems more to do with your aunties lung situation,swelling when people are bed ridden is usually…[Read more]

Hi Pilgrim
Well lets start as we mean to go on,plasma cells,every person has up to 5% in there bone marrow,this is normal,I wish that my husband had that.
Who needs a left arm,any person that does not have the use of one.
I hope you are breaking open the champagne as I type,or may I suggest walking a mile in some ones shoes who has a disability…[Read more]