Hi Bridget

that is spooky I always had a good sleep on thalidomide but not that good!!
sorry you are feeling sick I hate that. I have gone from long and curly hair to almost none and then thin and wispy now its short but quite thick and at the moment a fetching shade of golden brown until i change it!

Love and big (((hugs)) Jox8-)

Tom
wonderful news two years today lets hope for many many more as for crying join the club it started with Bambi and hasnt improved much since now we must just be big old softies:-)

Love and Hugs Jo;-) xxx

Dai A truly lovely song with thought provoking words. Thanks

Jean x

Claudette

I am so very sorry for being so insensitive. I send my sincere apologies fort terrible mistake.
Love jean x

Hi Claudette

You are right it is a very individual disease. Frank trusts his consultant – what she says is law. I suppose that is a good thing to have trust. I can never remember what she tells us so I take a recorder in with me and the listen again when I am relaxed and write down what I need to ask at next visit.

I hope things go well…[Read more]

Hi Claudette
I am so glad you posted to Chrissie,and I am so glad I read your post,one because I hope your post gives Chrissie some strength,and two you have made me realise once Slims not on the trials any more we will be able to travel again in our campervan,go back to are way of life.I know I should just be grateful that he is still here ,but…[Read more]

Hi Bridget
Glad the treatment is not to harsh on you,how many cycles will you do before you have test to see if its working????
I agree with you about the blood test,the only thing that convincers us now is BMB,Slims blood results have always been good,and kappa lightchains do not show true readings. Slim does not mind BMB just finds it a little…[Read more]

Hi Shirley
Glad to hear you are managing to get out,have they given you a portable one,it makes all the difference being able to move about,out of the 4 walls.I have seen people on planes with the portable tanks,so there will be no stopping you soon.8-)

You sounded if you enjoyed your Christmas outing,turkey and all the trimmings?????.We do…[Read more]

That sound very scary indeed, no mishaps please! When will you find out if it's working?
Love Helen

Hi Vicki
As Bridget says, no real time scale now, worse is between 4 and 14 days usually round day 6- 12 but varies, keep him at arms lenth so he gets no infection from anyone, ice is only vital when getting the melphalan, I can't bear the thought of an ice cube now, I had so many to help the mouth I sickened myself. I took the anti sickness…[Read more]

Hi Amelie

Frank was diagnosed early. He was being tested for other things when they found out it was MM. they did the BM and had the MRI. at that time I did not know anything about MM so didnt know what questions to ask. The MRI showed a crushed vertebrae but the consultant said that it was an old injury and not related to MM. His kidney…[Read more]

Dear Bridget

You are a very wise woman. I understand what you say and I know you are right. it's just I'm scared that he might hurt himself. We have a massive tree in our garden and all the leaves where on the road. Frank went out to brush and bin them and I was out like a shot to take over from him. It makes a lot of sense what you say but…[Read more]

Tom
What a lovely photo,that,s what it,s all about kids,must admit I enjoy it more with the grand children,I think when it,s your own children you so busy running yourself ragged,you get tired before Christmas comes.
Have started shopping for Christmas so getting in the mood the sun is still shining on our little part of Kent8-)Love Eve

Dear Gina and Sister
So sorry,even when it comes and you have prepared yourself for the worst it still comes as a blow,you have a lot of good memories to treasure,and i am so glad you got your mum home to die,that in it,s self must be a great comfort to you both.All my love Eve

So pleased for you Carol it must be like father christmas delivering a present early,:-)
Take it easy and look after yourself and enjoy this moment love Eve

How is it going with you just now Bridget?
Love Helen

What a cutie he is.
I love christmas and am looking forward to putting up the tree. We have a huge family gathering just after Christmas for my dads birthday, so it is all very exciting
Helen

Dear Gina
How terribly sad for you all, but how lovely to know she was surrounded by such love and was able to see you on your big day.
Love Helen

Hello Vicki
I'm 3 months post sct and now getting well. All the above posts seem to have covered things, I'd also recommend lots of pj's/ pants, fragrant shower gel. I did nothing in hospital except sleep and listen to the radio occasionally, all manner of interesting drinks and soups were brought in by my friends and relatives, most of which I…[Read more]

Roz not SIMPLE to count calories at this time of year.

PLE next
Jean x