Hi Dai
IT looks if Craig is the man that gets bits of my husbands body:-/more than I get at the moment LOL.

On a serious note I got the impression,that bone marrow bloods and urine go to Birmingham,which does the testing on Mm samples could be wrong!!!
If you want to speak to him look at third posting down on old correspondence will give…[Read more]

Great news Ted

It will be nice for you to get a few months break from appointments as for the docter looking 14 mine looks like father christmas without the beard a rolly poly he has a cuddly manner as well with me we must stike the right chemistry with each other keep in touch

Love Jo xx:-)

Gina
just to say good luck with the wedding,hope you have your wish come true.
If it is any help,A friend of mine,who,s husband had been told no more treatment,wanted to go on a cruise all though very ill,just wanted last holiday,doctor,s gave him steroids and he managed to have that holiday .just a thought? Eve

Thank you Ellen
For taking the time to give me a general explanation,I do realise you can not comment on an individual case,what you said I found very helpful,but brought a few more questions to mind.

The hospital my husband attends does have a PET scan also MRI,if some one had MRI scan on his spinal column only.How would it compare to having…[Read more]

I will settle for RED just remember it was a LIVERPUDLIAN who lives in the south and loves red wine and the colour red

IAN

LOL EVE

Hi
I have the same problem with expensive wine, I tend to drink the bottle instead of savouring it any wine snob would say I DESECRATED It
leaving TED

Hi Everyone
Slim does have a few marks on his tummy with needles,,he has to pinch the flesh as not much there to put needle into,I do not think I could do it day after day.Over six months now have been told that,s the least he would be on them,specially now he is on Velcade and the damage to his lungs although cat scan showed his lungs have…[Read more]

Dear Bridget
Not rambling, nice to know she's good, that's a lot of worry off your mind.
Eve I read and look things up at this time of night so that I don't wake at 4, that's when there seems to be no-one around and not even a car on the road, so it's very very quiet and I don't really like it! :-/
Helen

Hi Sharon
Its now November when do you have PET scan and results.
Slim had bmb expect results in next 10 days 1/2 way mark for Slim.
Eve

Hi Gina
how is it going have you managed to get your mum home.
just wondering how you are getting on. love Eve

Min

Glad you are having a good time. Weather here is terrible. Rain and a hurricane blowing where I am! It is ESSENTIAL that wind down. Mine's a G & T!!

IAL next

Enjoy Min
Jean X

Hi David
its just so nice to hear from a person who has gone through the mm journey,and come out the other side and has got his life back.

A big welcome to the site and I do hope you continue to post.

As you say everyone is different and some people have a longer and harder journey,which in its self creates more problems.
I have found this…[Read more]

hi Sue
You want to waffle go ahead,it does you good sometimes and helps when things go wrong,this site makes you realise how so many hospitals are different concerning treatment.
Slim is on Myeloma X1 trials ,so we do have to stick to a certain treatment,but who every devised how it was to be taken never considered the patient.
EG:VELCADE DAY…[Read more]

Hi Bridget and Helen
Defo late birds,was like that myself afew months ago, working hard to try to make sure I am not still buzzing in the early hours.:-/

Slim has been injecting himself for over 6 months now,no bruising but area less pliable,chose to do it himself as scared I would use him like a dart board:-P
To be honest I would be able to…[Read more]

Hope it works, how is youngest daughter coping with her illness while you deal with yours?
Helen

Hi
What is it about this time of night? You get used to injecting others. Are you still feeling sick? I had some great stuff before the melphalan called Aprepitent it stopped me being sick on the first day, then the ondansetron worked too.
Helen

Hi Bridget aka 'the pincushion'
I'm a nurse, I confidently expected to give my own gcsf so away I went to be watched doing it, I wobbled right at the start , hit my finger with the needle before it finally made contact with my tummy and I was horrified at how painful it was! :-/ not proud of this:-( and put it all down to nerves. I never thought…[Read more]

Hi Ted

Great news. So glad to hear it. Frank is same. Consultant says everything is stable and does not need treatment. I am just so thankful. The A & E of the hospital has closed so if any Myeloma patient feeks ill they have to go to another hospital. Consultant hoping mad as she says patient in one place and notes and staff to deal with…[Read more]

Hi Sue
just to tell you about point 2 of your questions?
Slim has Velcade twice a week dose has always been 2.3

We had appointments at 9 for bloods and 1 o clock for Velcade.
leaving at 8 in morning bloods taken then stayed in city,went back for Velcade by 3 o clock often no velcade getting treatment at 4.30,if we are lucky home by 6.We…[Read more]

Hi all
just a little bit of info about when I asked the question about blood results coming to the patient as well as the doc. I was informed that the results belong to the requesting doctor and their permission is needed for the patient to have them. This means that if you have an infection and go to your GP ( as I did on Monday) the bloods…[Read more]