Hi Mal and Bruce
Sounds Hilarious I wish someone videod it, would make good viewing

Keep well
Love Jo x

Oh Dear Tom
you are such a cheery person I would like you to be next to me if things go wrong I am sure we would end up laughing keep us cheered up Tom
big ((hugs))
Love Jo x

HI Eve

thanks for asking about me I have not been too well last couple of weeks we both picked up food poioning I was so so ill it was affecting my kidneys it all happened just before info day so we couldnt go shame I was really looking forward to it my support group leader is hoping to get me a CD of the day if she does when I have finished…[Read more]

Hi David
I know you are in remission,was it the same through treatment!!
I agree completely with you, in terms of getting results,and agree,you can almost see the reactions on the professionals faces(patients who think they know best).
I feel they have failed to keep up with the times,I do accept many people do not want to know!!! fair enough…[Read more]

Hi David
I have no problem getting blood results I ask for them at the beginning of each cycle the nurses print them off,and I can see straight away if there are any problems.I find the chemo nurses are willing to expain anything I do not understand,and since Slim has been on Velcade take more of an active roll,concerning his general…[Read more]

Hi all

REHERSAL. which life isn't.

SAL next

Jean x

Hi Everyone

how about a small one but still important RICHER

For having loved and lived giving HER,ans I am not talking about money.Eve

Hi Jim
What is going on!!!!has something happened ,have you all these e mails on your computer,going into trash can,or are you to ill to reply.
Hope it,s just the trash can eating them up rather than the latter.LOL Eve

Hi Min
It all comes down to lack of knowledge and when you get conflicting answers from the professionals, it does make you question everything around you.
I know what your saying Min as when he was first admitted they took bone marrow,full body xrays and MRI and result confirmed and talking about Myeloma trials within days.

I do not have the…[Read more]

Hi Dai
Good luck with the presentation, I'm very keen to know how you get on. I think eve's suggestion that each patient keeps their own results and is told exactly which sort of myeloma they have is important too.Helen

Hi Min

When Frank had the Bmb we were told to go and have some lunch and come back to the Unit. This we did and the results were ready. Maybe 2 hours. Does it differ from lab to lab?

good luck Dai. You are very eloquent a d will get the points over.

Love Jean. x

Hi Jo
How are you doing,thought you might post to let us know about info day.Did it go well. Love Eve

Hi Tom
I believe what ever works for you as an individual:-)that,s what is most important you are the person living with it,and it seem to work very well for you,all ways cheerful,never worry unless the doctor is not smiling,were would we be if we did not have people like you Tom on this forum.
So consider yourself an asset. Love Eve

Hi Dai
I will see what I can do,I know boffins deal with the fact side of the treatment,understandable so ,but first and foremost I am a carer to some one who is very ill and is going to pass away,either from Myeloma or a related illness,so as such I tend to be emotional about it.So you Dai are going to have to bear with me.I do write as I…[Read more]

Hi Shirls

sorry you are under the weather at the moments I hope you pick up soon
Love and (((hugs))) Jo;-)

Hi Mal and Bruce

so glad you got home at last lets hope things settle down soon then its back to cider and guitars:-) 🙂 🙂
Love Jo x

Hello Dai

I am reaslly glad you are representing us you are so good with words and seem to say just the right things good luck 🙂
Love Jo

Here here Roz

GEONITICS

ICS next

Love Jean

Debs
I have hair follicles! There is hope for hair.
Helen