Thanks Eve
I am certainly going to do all the things I can, as I recover from the transplant I am beginning to realise how much my life had shrunk in the last few years as I became more and more tired and unable to do or plan anything really, so hopefully I can make up for some lost time.
Helen

Hi Only me
Funny name to have LOL.:-)
Just to say sorry your mums having a bad time of it,cannot help you,but my best wishers go to you and your mum,Eve

Hi Sarah
Bridget has just given you some very sound advice,so my advice to you is listen to what has been said.Apart from that welcome to your journey as a carer,ask away about anything you are not sure about,even if we cannot help you,you will have the support of everyone on this site.
Hi Bridget good to see you are posting again. Eve

Hi Sarah and Henry
As you can see we are all different, i had a good stem cell collection, loads of cells but got lots of bone pain with it and it took a few weeks to feel fully well after it. I was working until that point though the RCD chemo made me very tired. I've been off sick since and seem to have had a rough ride with the SCT, developed…[Read more]

Hi Everyone
First to Helen,make sure you do that trip.wonderful country,we spent three months there mainly to see family but did spend 3 weeks travelling in motorhome,from Christchurch to Auckland,one thing MM makes you realise is never put of doing things you want to do.:-)
Caro,hi have a friend in Hamilton,scouser who moved there years ago,its…[Read more]

Hi Sarah
Welcome to this site and sorry you have had to join. I was diagnosed with mm in February this year and am now recovering from SCT.
Do you want info on the stem cell collection or on the high dose chemo and stem cell rescue (SCT)? And which area of the country are you as there are probably local variations.
Helen

Hi Caro
My sister is in whangaparoa near Aukland I always planned to go but never got. I'm just 10 weeks post SCT and beginning to get some energy back. One thing I am planning is my trip to NZ next year i hope.
Helen

ESSENTIAL only thing I can think of after a couple of G & T's. I A L next.

Jean xx

Hello dear Tom

always cheerful advise I hope you are keeping ok I have hd a bad week very heavy Anti B's some sort of stomach bug hope its on its way ou now!!!
Big ((HUG))
lOVE jO X

hello Jim

Sorry you have had to join It must have been such a shock for you as it is for us all I think the first question is why me!! but you are only 40 where a lot of us are in our 50 and 60s we all have to be positive there seem to more drugs and treatments everyday soCHIN UP:-)
Love Jo

Dear Gina

I like all your cyber friends am so very sorry to hear your bad news. I echo all that has been said. My love, thoughts and prayers will be with you all.

Love Jean. xx

Hi Glyn
Just to say welcome from one carer to another,hubby seems to be doing very well,and long may it continue.
Good to hear good news and know there are people out there that are getting such good results,it does give the rest of us,such a boost.:-)

Hope you keep posting and let us know how it goes.Eve

Hi Gina

So Sorry to hear your news about your mum,no matter if you were expecting it,it still hits you,I do know how hard it must be for you and your sister,I hope you get your mum home soon.

Try to be strong for your mum she may have a reasonable time left,you and your sister and your mum can make the best of the coming months.
Love Eve

Hi Debs
Good to hear you are in VGPR and have been getting out and about, I'm a bit set back this last week, terrible cold and another bout of colitis, so another scan today, probably a virus attacking the weak spot. I'm very frustrated with the slowness of recovery so it is good to hear you are feeling so much better. Are you still in the…[Read more]

Dear Gina
What an awful shock for you, I do hope you get things sorted so that you can get the most from the time you have with your mum, thinking of you.
Helen

Hi Everyone
Sorry not in a position to comment,but I do know that in boots they do a solution called polytar ,not sure if it,s correct spelling cost £4 it is very good for people who have itchy skin,at £4 might be worth a try. Eve

Hi Eve

I love playing scrabble. I have been in a game with my niece for over 3 weeks!!

It ENTERTAINS me – leaving INS next

Love Jean x

Thanks Min and David. I think they (recorders) are brilliant. David what is a Gazoo??

Love Jean x

Hi
I play scrabble with my daughters,the one in nz is whipping me some thing awful at the moment,we do it over a period of days,

how about ARRANGEMENT

I leave you with ENT

Love Eve:-)

I'm like you Gill -a night bird. Have been playng scrabble with son in Kent for most of night ( he whopped me, brain in freeze mode) best I can do is NATION – ION next.
Love Jean x