Hi Ted

Frank is like you. He was diagnosd in Sept 2006. Only teatment was about 6 weeks on Zometa. We were at consultant today and I have to say it was the quickest appointment ever. We got there at 8.30am. bloods taken about 9.00am. Called into the consultant, she asked Frank how he was, he said "fine". She said his protein had come down…[Read more]

Hi Gina.
So sorry to hear about your mum,you and your sister must be very worried,I can understand you not telling your mum until you know if its new cancer.
It does not sound good if its hit main organs,try to keep positive there is so much they can do these days,have they tested for this before,because she has been having lung problems for…[Read more]

Hi John
Good news for you both,Our hospital is still talking about it,do not know if Slim will have it as on MYeloma trials,have to wait and see.:-P

We asked about it sometime ago,its going to be a tummy job,we asked could it be done like clexane,so we could self administer no such luck.

Glad to know you are both fine,look forward to…[Read more]

Hi Sarah and Jenny
Just popped in to say welcome to the club.As you can see there are lots of people and carers who are ahead of you on this journey.

My advice to you is take it a day at a time,it,s a long journey both of you are on as patient and carer,so my advice to you both,is it,s a journey were some people do well and get of the bus…[Read more]

Hi Min

I hope you have a fantastic time. Try and enjoy every minute.

Love jean xx

Hi Jim
Just to say welcome.

Myeloma X1
Husband started trials February this year,allocated CTD side,did 6 cycles with a small blip in between had septic pneumonia 22 days in hospital not very nice,with hindsight,should have been on Clexany,from day one,this is not automatic,but would have saved a lot of problems with blood clots.
ON trails…[Read more]

Whaf about DERRIÈRE or is French words not allowed? If ok ERE is on offer if not …. ???
Jean x

Hi Kay
I'm 10 weeks post sct and still walk like an old lady! I just keep popping the paracetamol and walking at least a mile a day too. Improvement is much too slow for my liking, I keep wondering if I'm turning into a softie!
Helen

Hi Jim
I took the trial route, hard decision but glad I did. Took revlimid and had no major problems, worked until stem cell collection, now 10 weeks post sct and been in complete remission since month 3 after starting in feb. I'm just 57.
Helen

hI Bet you both stir crazy by now half a cider sounds great my favourite drink I bet the cats are missing you too do you sleep in the hospital glad mal kept his dinner down must be a good sign
Big ((((HUGS)))
Love Jo x

David that was great. I was singing it at the top of my voice – Frank thought that I had finally lost the Plot!! Thank you – I know exactly where Julie Andrews is coming from.

Love Jean xx

I wasn't really told to stay away from people, I just tried to be sensible and stayed about 5 feet away from everyone. I went wherever I felt like, which wasn't much, I have picked up a cold this weekend but no idea where from as i've been giving anyone with any overt illness a very wide berth and I'm still very tired very…[Read more]

Hi Sandy
How big and how many spots? I have small round hard spots on arms legs shoulders, pin head size, very itchy. I had my sct 9 weeks ago and my consultant said these happen to people after transplant but there is no clear reason for them. If you have a general rash I'd see the doc tomorrow.
Hope this helps and you are recovering well
Helen

Hi Gilly
Nothing surprises me these days,they have got in touch with there legal side before they approached you,I take it this stemmed from a written warning and a consultation,Well to put it bluntly they want you out,
I do not know your circumstances,or how much you need to live,but you can either fight them,but do you need all the hassle,they…[Read more]

Hi Gilly
What has the occupational health doc said? Your manager is obviously not your physician so how should she be making a judgement of any sort?
Does the hospital you attend have a social worker attached to the oncology unit as they are usually very helpful
The caring NHS eh
Helen

Hi Christine
Cannot help you much on this one,except to say,Velcade did create a feeling of anxiety and general accident prone moments,not sure if it was Velcade,but put it down to doing to much and not drinking enough fluids.

Your dad must be feeling pretty bored not being able to do much,and being so young and active,surprised you cannot get…[Read more]

Hi Mal & Bruce
When I first read your posting,I thought,sct with kidney failure,that takes a very brave man,and you are just showing us it can be done.
I am so glad it,s going so well for you and wish you a speedy recovery and long remission:-)
Hope you are both home soon drinking a glass of bubbly to celebrate life.
Best wishes Eve&Slim
PS…[Read more]

Hi Gilly

I also swear by Manuka honey. My hubby has MM and I give it to him and I also take it. I did a bit of research on it and from what I gathered it is supposed to be a natural anti biotic. It is expensive – there are different strengths – the higher the strength, the higher the price!!

Jean x