Thats funny David I am not very good at jokes but I loved this one

Keep well Jo x

Hi Ted

When we went for flu vaccinations the doc told us that the new thinking on th pneumonia vac is a lifetime. Given once and that's it. We are in Spain. Frank a bit under the weather and is sleeping. Me – I'm having a cosmopolitan cocktail!! It is just good to get away for a while. Enjoy your holiday. Take care.

Love Jean xx

Hi Anna
You have come to a good place for Information and support,so may i say welcome to the club.
My husband is on Velcade,with the added complication of not knowing if Velcade is working until bone marrow taken,so bloods is the only way of telling us about his general health I get results at the start of each cycle,and it just helps me to…[Read more]

Hi Everyone
I would agree ,we need to talk about different hospitals and the general treatment we get concerning cancer it does vary from trust to trust also what drugs you might be entitled to depends on were you live.hence postcode lottery.
When you consider that myeloma is only 1% of cancers and bence jones kappa light chains is one of the…[Read more]

Hi Jo
Nice to hear from you, yes in the camper only way I can get Slim away,only going local at the moment,mainly so I can take the car it just a change of scenery takes your mind off things.
Decided to get someone to decorate as if I start it Slim will insist on helping,so clearing thing this week,and going away for awhile,painting and new…[Read more]

hi Eve

good news slim is feeling alot better and you are able to go away for a few days it will do you both good:-) is it in the Camper
Regards to Slim

Love Jo x

Hi Everyone
I can understand how you ladies feel about the menopause,I had it forced on me,they had to remove my ovaries although I was older,Did not like the idea but as I had trouble with one said the other one could get a growth on it,once i got the all clear never looked back,Lot of the tiredness went away so its not all bad,gave me a new…[Read more]

Hi Debs
Yes I'm getting hot flushes, before diagnosis they were just at night and I thought it was menopause, so did my GP. Now I get them all the time and the haematologist thinks that as my blood has returned to normal I'm resuming the menopause again. I've been experiencing them for the last 5 years and never thought of hrt as there was such a…[Read more]

Hi
Nice to see you are doing well Bridget,ans to see that you Sharon have finished your Velcade,just looking at the way people have responded to Velcade, Dai not sleeping you Sharon tired out Slim not sleeping and no side effects,what makes the same treatment re act differently on people.
Waiting till November for a PET scan is a long time,when…[Read more]

Hi Everyone
Yes Dai it is a postcode lottery for treatment ,and from what I am hearing Nottingham does seem to come out tops.
East Kent is lacking lots of things,some patients with other forms of Cancer have to travel as far as Maidstone for specialised treatment around 65 miles one way,A friend of mine had to do it every day for a week,
The…[Read more]

Dear Julie
May I add my condolences to you and your dad.
Thank you for letting us know as so many people just go off site and we never know what has happened to them.
So glad you mum had the passing she wanted in her own home with her family with her,it must be a comfort to you both that your mum passed peacefully.
Kind Regards Eve

hI Donna

thanks for letting us know please keep in touch and let us now how they are Regards to mum and Dad

Love Jo

Hello Bridget

I am so glad the RT treatment has got rid of that tumer and your pain I have been really worrying about you I am also glad you didnt need to go into the hospice I hope you are now feeling well
Keep well

Big ((((HUGS))))

lOVE jo x

Hi Tom

I can just picture you in a big nappy wet your pants indeed and your not that old either just a big spring chicken and a jolly one at that
Keep Well
Big (((((Hug)));-)
Lots of love Jox

Hi Ted

So glad to hear that things are going good for you. Frank is still not on treatment and he has what he calls "power failures". He will be sitting talking to me – go quiet – he's fast asleep!! After a couple of hours he's back to normal. Know what u mean about the the flu vaccination we went on Thursday and it was like a conveyor…[Read more]

Dear Gill

Just read your post. It is unbelievable what these banks think they can get away with. I agree with Min, I would say get Anne Robinson from BBC Watchdog onto them. They appear to be quick and Anne would tear any Rep to shreds.

Hope you get it sorted.
Love Jean. xx

Dear Julie

I am so sorry your mum has lost her fight with this terrible disease she was a real inspiration to me

Much love Jo x

Bridget I feel I get the same sort of response where I am and am fully consulted too, but I can also see where there are holes in the system, as you say Eve the places are so busy with far too many patients and nurses very pushed for time, as for pharmacy….. I sat in the very crowded waiting room after my sct thinking I was more likely to pick…[Read more]

Hi Gina
Nice to hear from you,sorry it is not better news with your mum,how are her lungs,are they any better after the treatment.
It does seem to be one thing after the other,hope she begins to feel better now she has had some blood ,do not know much about revimide except in trials as the other side of CTD.
Hope it works and you can keep your…[Read more]