Hi Dai
I hadn't read this before I answered Nadines post but you raise a point that I too deliberated on for a very long time before the sct. I was fitter the day before my sct than I have been for about 5 years, I was able to do a 5 mile walk without pain or tiredness.
I have searched the literature too and read report after report on the…[Read more]

Hi Nadine
I had my sct nearly 6 weeks ago, it was horrid but I'm getting better every day. It is as Debs describes, like childbirth and you begin to forget about it as you improve. I'm doing the shopping and cooking now and watching the dust doesn't get too deep!
About you, I have 21 and 25 year old children(!) and I don't want them to be part…[Read more]

Hi Bridget

Glad to hear from you. I am sorry to hear that the RT took so much out of you. I hope by now your energy is starting to return. Brilliant news on the bl**dy pain. Long may it continue!!!!

Good to hear that you are enjoying sunshine. What is that!!! Oh yes now I remember ? it?s that bright yellow ball in the sky!! It has…[Read more]

Hi

ESTABLISH

Ok – ISH

Jean x

Hi Bridget

Was wondering if you are ok? I got an email in response to the thread about a posting from you. It was written at 00:48. You were saying that you were feeling really exhausted. The text then tailed off to gobble de gook. Tried the link but would not take me through to your post. If you feel up to it – can you post to let us know how…[Read more]

Hi Paul
Ah the missing soap.. There you go it's the little things that get you! I worked at jimmy's back in the 80's I have fond memories of the place, I live close to the Newcastle centre so was only going to be in hosp for a few days and come and go as a day case how ever became very ill at day 6 and was admitted for the next 10 days then been…[Read more]

Hi Bridget

It is so good to hear that at last you are getting relief from that bl..dy pain. You really are an inspiration to others and hope that every morning you wake up you feel a lot better.

Much love Jean. xx

hi Nettie

how brave are you but go for it girl you will be fine never mind the almost OAP
you are only as young as you feel
GOOD LUCK;-)
lOVE jO

I give you REMEMBER

Leaving BER

Love Jean

Hi Paul
Belated welcome, I've been a bit out of commission lately.
I was diagnosed with IgA lambda light chain myeloma in feb, was on RCD arm of myeloma xi trial and just had sct 5 weeks ago, doing ok now.
My light chains dropped from 800 to 11 (normal) in the 4 cycles I had. So -good response and on to sct.
One thing I'd warn about and that…[Read more]

Hi Dai
I asked about central lines early on, (you are going to think I'm a vacuous vain creature who ought to know better from all my posts about appearance and hair etc, but I was concerned about the position of these lines and neckline scarring afterwards, I want to return to as normal a life as possible and look as though nothing is wrong with…[Read more]

Bridget and Gill yes none of the men need to read this
This hair thing is odd, before my diagnosis in feb I thought my aches and pains and tiredness were due to a very busy job and life and the dreaded menopause ( I was 56) . My eyebrows had started to grow longer and more wild and need firm trimming, leg hair more luxuriant, head hair finer and…[Read more]

Hi
I hope Min has taken a little time out,may be,she has gone to enjoy her grand children,if she has she will come back refreshed,and stronger to cope with all those inefficient people who do not know her situation and have no understanding of it.
Min will come back in her own good time.Eve

Hi Gill
My,Stephen is brave I suppose it is better recovery with local,and chemo should finish off,I suppose Gill with all they go through,its just part of the bigger picture:-/.
Do understand were you are coming from,to me it seems like waiting for the next episode,I do not think sct now,I just wait!! as cdt did not work,will velcade:-P.I…[Read more]

I have the same, what feels like lumps along the line of the vein they used, I was told they take a long time to get better. I'm 2 weeks behind you at 5 weeks post sct.
Helen

Aww Bridget thanks very much, I know what you mean about being too untidy for a wig, I think that is my problem too, I'm normally very lazy with my hair and in fact when my boss asked me when I'd be back at work I had to reply, 'only when I've got my hair back' then had to explain that I'd be the person who was waving her arms around and suddenly…[Read more]

Hi Graham
If Tom can do it you can,do not think they are a strict bunch,you have different issues when your younger with families,work and money so still worth trying,they can only say NO,and that,s nothing with all the other issues.:-S
If it is any help to you,at this time your face looks ravaged and you look into that mirror,it does get…[Read more]

Hi Dai
How did the holiday go,plus the weather,must have just been nice to get away from treatment for awhile:-/
Soon passes it seems like yesterday you were saying about starting Velcade,Slims just finished second cycle,wish we had your turn round for bloods and Velcade,we do it in 2 trips.60miles all together.:-S 😛 Tried staying around…[Read more]

Hi Graham,
My first thoughts on reading your post,your 2005 and relapse 2010,and wondered how you have managed to cope with this all this time,family and friends are good,but its people on the same journey who understand.:-)
You are further on your journey,than my husband,but I can see you are going to be a great asset to this site,and I hope in…[Read more]