Hi Sharon
Slim seems to be in the same situation as you,blood and urine are showing him going in to plateau ,but showing 80% in bones,on 2 cycle of Velcade,went to hospital yesterday,things have changed again,nurse now says will not do bone marrow until near end of cycle!!!.I asked how are they going to check how disease is progressing???? as it…[Read more]

Hi Sarah

It doesn,t just rain it pours as the saying goes,and its raining on you,put that brolly up and protect yourself,you don,t want to catch anything,!!!!

Ask yourself why your MIL is phoning you and not Gordon,s siblings the reason being she feels she can relate to you,and because she see,s you as a strong person who is coping so…[Read more]

Sarah

I am so sorry that you have this extra burden on top of loosing your lovely Gordon. People as you know grieve in many ways. When my mum died I was so angry at everyone and every thing. I could not understand why these people were walking around and my mum wasn't. I am not making excuses for your MIL but maybe she is shouting for help as…[Read more]

This time KINGDOM

DOM is next

Jean xx

Min My thoughts and prayers will be with you and your family today. You will have the love of your family and friends (and your cyber friends) with you as you celebrate Peter's life. Mavis is right – death does not have the final say.

My love and prayers are with you.
God bless and comfort and look after you and your family today.

Love…[Read more]

Hi Tom
Must admit you do seem well looked after:-)I think Slims consultant takes one look at me,and thinks she,s going to start asking questions:-P
Went to hospital today,bloods and treatment ,arrived 9 oclock bloods,1 0clock for treatment Slim had treatment at 3.30,left 4 oclock.in all treatment is 30 min top.with travelling 9 hours…[Read more]

Hi Min
Just come on to tell you,that you will be in my thoughts tomorrow,I hope you have a good celebration of Peter,s life,It is going to be hard for you,as you had no time to prepare yourself,IF Peter had to die in hospital ,Icould not think of a better place to die,I think ITU staff are wonderful people,different from the general wards.

We…[Read more]

Hi Bridget
Have to say Bridget how much i admire you,good job its not me who has this illness I am a coward when it comes to pain.
Wishing you well for tomorrow.Eve

Thats a relief Gill. Thought I had lost the plot at last!!

Hi Alison

Welcome to the site,Good to know you have plateaued,and are back at work ,my husband started treatment in February,CDT,but has had to start Velcade.
SCT is not recommended by his consultant,because of damage to lungs.we do not have that option to decide yet.:-(

There are a few people on here who have chosen not to have…[Read more]

Hey Am I having a senior moment??? I got an email re this thread from Gill posting a new word and with a message for Bridget about memory and Eve re swearing. I cant find it. Must be me but can somewone tell me where it is.

Jean

Morning (just)

How's about ESSENTIAL

IAL next

Love Jean x

Hi
I often wonder how many people die with it not being diagnosed,if you think the average age is 70,do doctors bother to even,go along the myeloma route???

Young people seem to be getting picked up earlier while older people,have usually broken bones by then.
so is the numbers higher than3000 a year in uk who get this disease???

On…[Read more]

Gill
I got a message from the web team and I nearly never came on this sit again,so formal ,no flower powering at all they told me they considered that my language was in appropriate ,and I do not swear?????The word I used was b-l-o-o-d-y,Since then if you go to put a word in they consider unsuitable it comes up in red,!!! thank god Tom taught me…[Read more]

hI EVERYBODY
It must be me,do I detect that men do not just take these poisons tablets,and say well doctors know best!!!!!!!!
If we do not take an active part in this illness why should anybody else bother!!!
I know I live with one!!
Sorry but we have to work together,I would like to see more co-operation between the medical profession and the…[Read more]

Hi Tom

So glad the doctor was smiling. Your attitude is same as Franks. He has great confidence in consultant and if he needs to know anything she will tell him. It is me that has to know the ins and outs of everything, so Eves advice was great – found out more today than in past 5 years.

Take care (and your young bride) and long long may…[Read more]

Hi everyone
How about

NOISINESS
Leaving NESS

Me again

This time ACCELERATION

ION for the next

Jean x

That's brilliant Eve. A lot of information and advice – more than I have received in the last 5 years. Much appreciated.

Love Jean x

Hi
How about a nice easy one

YELLOW
Love Eve low