Sally what a predicament- you need to ask all the questions, take notes or record clinic conversations to find out what is the plan, your mum will presumably continue to do her own thing and you dad probably won't want to let go either and normal routine, however odd might be best only time will tell, perhaps you could speak to a MH nurse via your…[Read more]

If you are still around I'm in 34- no beds on 33

Hi Everybody
Min the problem with dex is we do not have it to take,in the morning,trial day one take vcd,will not give us dex until blood results come back .so 9 for bloods 1 oclock for injection then,rest of meds sent for got out at 3-30 in afternoon.Stupid i know,were did commen sence go!!!!!!
Bridget I asked about picc line after reading…[Read more]

Hello Min
I know you were coming in, did it all go well, I'm in too waiting for stem cells later today
Helen

Hi Ted
Never forget you are 80 years YOUNG,happy birthday,A life is a Life and you make sure you enjoy every minute of it.:-)

As Bridget say Gp come across Myeloma may be once in there life time,I changed my gp to another one in the practice who had a little bit more knowledge and was willing to learn more about it!!.
Please,do not feel,a…[Read more]

Thanks Everyone for your replies
We got there at 12.30 for a one oclock appointment.As the bloods were taken previous day ,Saline drip first injection into it then more Saline sounds easy.left hospital at 3.30.Slim had to take tablets on same day so dex taken on the way home,he has been up most of the night and this morning more dex.so full of…[Read more]

Hello Eve

thats awful news you were quite right to be apprehensive it must have been a gut feeling you had I really hope velcade works this time for him have you asked if he can have the via injections instead of having a line fitted I know some hospitals are offering this now regards Jo x:-P

Glad your home at last Keith do try and keep well I feel sea air always does you good deep breaths and lungs full of the stuff
I really hope things go well for you

Regards Jo

Hi Keith

glad to hear the good news,so nice to hear someone is doing well,The sea air is wonderful,I do not think I could live far from the sea its in the blood,i actually need to be near the sea.
best Wishers eve

Oh Dai
Your leg problem may be unrelated but it will have sapped what energy you would have anyway as it tries to resolve it's self and heal, take care and keep going, enjoy your holiday in Pembroke
Helen

Hi Roz

Good to hear from you. Michael's garden is lovely. Did you do the design yourself? I just loved the garden seat – as my grand daughter would say – cool. Enjoy it – you deserve to.

Love Jean x

Thank you both, I have made my ice cubes, all different flavours, White wine not good taste so will stick with blackcurant and orange! Hey ho it was a thought,
Glad to se you are now home and hope it continues to go well
Helen

Hi
thanks for your reply how badly were your kidneys damaged did it take you a long time to recover from the SCT what sort of state are your kidneys in now I would be very interested to know if they are more damaged now after the transplant

Kind Regards Jo

Carol
Another thought about the revlimid, which also dropped my levels to zero, I had 5 weeks from finishing it before I felt it was fully out of my system, so it seems to have a very long after effect,
Helen

Hi Carol and Bridget
Will take ice and mug! All tips very welcome:-) thanks for your contact only hope they have beds!
Helen

Hi Carol
I have sct next week
Helen

Dear Gaye

I too have been thinking about you these past few days, so it was great to hear from you. You are a very courageous lady. You have fought this horrible disease with bravery and have given strength to many on the forum. Thank you for all your wisdom, knowledge and empathy that you have given to us all. You will be in my thoughts and…[Read more]

YOUR ON
JO;-)

Terrific wish i could have been there to see you
Keep it up
Love Jo xxx:-P