hi Min

glad Peter got his back fixed lets hope it helps to keep him free of pain
I will be thinking of you both on monday hope all goes well so you both can get on with life again GOOD LUCK Peter:-)

Regards Jo

Hello Ted

Wecome to the site you have done so well not to have had treatment for five years long may it last I think chest infections are part of the baggage that comes with MM lets hope you have a better autumn:-)

Love JO

Hi Gaye
I came on this site the end of February just as you went off,I saw your posting on trying new drugs ,about getting approval ,and your problems with pain control,I went back over your old posting to try to learn from your experience and I did,thank you for helping new people on this site.I like many others wondered what had happened to…[Read more]

Hi Min
Glad to see you have posted at last was worrying,as all your posting was about other people and not how Peter and you were.:-)I hope it all works out for you on Monday,and Peter starts to feel better,now his back has been fixed

We need some good news on this site,so keeping fingers crossed that Peter is the turning point!!!,will be…[Read more]

Hi Craig
The Problem is Craig,you need someone who has been through the whole system of varies drugs,with all the problems that go with it,these people do not plan that far a head.As you may understand they do not know what will be happening by November so no one can offer you a guarantee!!!!.Even carers like Min who are very well informed,have…[Read more]

Hi Ted

My husband Frank was diagnosed sept 2006 and is not on any treatment. When first diagnosed he had Zometa every month for about 6 months. He sees consultant every two months. He has had a few set backs. At moment has severe pain in side. He had something similar before but turned out it was muscular. This time he reckons it's his ribs.…[Read more]

Hello Ted
I feel a bit impertinent as a relative newcomer to this site too, to be the first to reply to you, but anyway welcome. I have not experienced mm in the same way as yourself but know a chap who has, he too finds 'observation only' a bit of a trial but I think that if they say you don't need treatment, take this as a fantastic reprieve…[Read more]

Hi Min
Let me know I'll bring sandwiches!
Helen

Hi Susannah
I have been following you post,but as you are head of my husband ,have not posted,posting now just to say even though you don,t know me,I am wishing you all the best and hope you have Michael home soon.Eve

Hi Gina

Sorry about your mum,Its not knowing when to make that call,thats the hardest thing,don,t we get conflicting info,telling you to see your doctor!!!! I have been told that if Slim is ill i have to take him to hospital as they can tell within half an hour if he has an infection,and the first couple of hours are crucial !!!
Anyway I hope…[Read more]

Hi Gill and Stephen
Keeping my fingers crossed for you,it must be a horribly waiting game for you both,plans on hold until you find out,but France beckons.:-)
it is lovely to have some good news,and i hope by the end of this month,you will be over the moon,and making plans.

Slim is in limbo at the moment,with ctd stopped and conflicting…[Read more]

Hello Dia

glad you got your scan if they had done it sooner you would now be further down the road How about a picture of you modelling your sox(very sexy) every picture tells a tale! I hope you have a really good holiday go away and try and forget everything for a week just enjoy your family8-)

Love Jo x;-)

Hi Mary

glad to hear from you I hope you have a good time in Ireland I am sure you will weep a few tears on the way because it will bring back fond memorys
GOODLUCK with the sky dive my daughter also did one in New Zealand she said it was the most terrifying then the most exciting thing she had ever done

Love Jo

Hi Dai
I hope you had word with the tech who did the scan!!!
Janet this is a message for you if they only give you to pairs of stockings go out and buy more,if you have something the size of a bottles when washed put them on bottles to dry,trick i learn,t,if you want to save money have a swear box handy,because you will be .>:-(.
On a serious…[Read more]

Hi Mary

Well done you are very brave. The more money that can be raised for this blo**y disease the better. My pound also winging its way. Don't be petrified when you do it. You will be fine. Where in Ireland. I live in the North. Good luck

Love Jean xx

Dear Carol
I was on the revlimid as induction ( RCD) in the trial and was stiff as a board for 3 months then I seemed to loosen up though still felt very sick and weak in the 4 th month. I had several chest infections, if the cough keeps up perhaps you should report it? I found the stem cell collection and the zometa all cause me lots of pain and…[Read more]

Hi Craig
Do you see what i mean about Dai,i hope you have signed him up.sorry no pressure Dai!!!!:-P .I think he would be ideal!!!

To Dai,boffins are no different to me and you,i have a good friend who use to be a boffin,and on a social level you would not have known it,
no pressure Dai.Eve

Hi Pam
So sorry about your dad,I know what you mean,when you look at other postings and this mm has no age limits i think the youngest is 29 on this site,also young mums with very young children.:-(
To me a life is a life and does not have age barriers,you still loved your dad and cared for your dad and did not want to see him with any more to…[Read more]

Hello Mavis.
I also chose not to have an SCT I dont regret it
I go to the EUCHARIST every week at St Albans abbey I pray for everyone
of my cyber friends
God Bless Jo

Hi Craig
It is nice to think someone actually wants to know what we think!!!:-P
There are some wonderful people on here ,Like Dai who moved from Wales to Nottingham for better treatment,he is not posting at this moment,which is unusual.Could not get in to your RCP Path email address to check you,thought I would let you know!!!.
I cannot help…[Read more]