Hi Helen
It is Tom,On wards and upwards,he has not been on for awhile,so it is either his cucumbers or he is on holiday:-)
i know what you mean though ,he just makes you smile.Eve

Dear Sarah

I am so sorry to hear about gordon you and your family have my heartfelt sympathy God Bless you all

Love JO

Dear Sarah
As Gill says a cyber friend whom I shall never meet but has given support unknowingly
Blessed be
Helen

Hi everybody
i went through all his work,the arsenic and vitamin C one,impressed me,the patient concerned was given 2 weeks,and he was still alive 6 years later,he summed it up,he was keeping him on top of the grass LOL.
he seems to trying lots of different combinations with different drugs,
Anyway Jo Off to hospital today for bloods,and made…[Read more]

Sarah
What can i say,my heart goes out to you,it does seem so unfair ,you must be heart broken.I thought you might have had a little bit more time together,to adjust to the situation and reflect together on all you have shared,but time ran out.I am so sorry Sarah.
Take comfort,in your grandchildren, life goes on,you will look at them and see the…[Read more]

Oh Sarah I am so very very sorry to hear your sad news. My heartfelt sympathy to you and your family. I have followed Gordon's and your journey through this horrible disease. You both have been inspirations to me and am sure a lot of your friends on the forum. My thoughts and prayers are with you and your family.

My deepest sympathy and…[Read more]

Hi
I think James berenson have a lot of very intering things to say I have been following his post closely as I have not had an SCT, what he says encourages me a lot
Regards Jo;-)

hi Scott
glad to hear you are ok I felt quite tired when I finished CDT and had reguler blood transfusions for at least eighteen months after I was first diagnosed I believe a lot of this is to do with the lack of kidney function
but the good news is I havn't had one for nearly a year now so things do get better i still have a bit of PN in my…[Read more]

Hello Eve

I chose not have an SCT as my kidneys were also very damaged apart from the higher mortality rate the chances of the chemo destroying my kidneys so havineg to go on dialysis three times a week for the rest of my life I decided to take a chance and just go with maintenance upto now i have been ok Hope Slim is ok give him my regards

Love Jo

Hi Peter and Scott
Very interesting from Dr Berenson,Trying to find all the information i can,to try to understand the going down sct or not.!!!!
My husband Slim has just finished 6cycle of ctd,it looks if they will not be recommending sct,because of his lungs,when he had septic pneumonia,the cat scan showed mass blood clots plus wedge shape…[Read more]

Hi Peggy
Do not know how you managed it but you have two post in General with same title one very up beat,other one not so,!!!! just found this one,as i was looking to see how you were managing:-)
I do not know if anybody has mentioned it,but drinking water is so important for your kidneys,if you find it hard drink anything you like,you may find…[Read more]

Hi there Dai
You have a large leg but still keeping your sense of humour.:-P
May I say Dai your a man who is very good with words,so why not use this gift,you must have a local paper!!!!,copies to executives plus,to paper,hate to say it,but works wonders,like a pain in there side.
Other option is to pay privately it should not cost very much…[Read more]

Hi peggy
glad you are feeling a bit better let us now how you get on with the rest of the treatment
Love Jo

Thank you, I'm the same it took many weeks for the revlimid to wear off, much more than iwas expecting it to. Well I'm off to Kent now and maybe a teeny trip to France for a few bottles to keep the saintly hubby happy
Keep your chin up and hope the waiting to be ill is the worst thing you experience.
Helen

Dear Dai and other sufferers
What you say is all so true, My family read this site and get much from it, apparently more than they get from me! I feel I have known all of you forever and am sharing your lives, becoming better informed about mm and how to cope with it
Sarah you and all the other carers ( I know you hate the word but you do the…[Read more]

Hi Gill
I know what you mean when you say privileged ,I am not religious ,but i do thinkwe learn so much about life in times like these.
No one wants to go on this journey,but in many ways it is not only a learning curve but it puts life in perspective,and in turn enriches it.

Fifteen years ago i started another journey.My grandsons,again a…[Read more]

Hi Sarah
Keeping up with your post just so you know you are never far away from my thoughts. Eve

Well Dai

Whats the verdict !!!!! I know your enjoying the massage so much you have forgotten to tell us.LOL:-) Love Eve

Hi Peggy

Glad to hear you are up and about,sounds if you are feeling a whole lot better,Its amazing how much information you manage to absorb ,and how you get in to routine,so glad your well keep posting Eve

Hi Gill
Its in Side Effects,under Starting Therapy, I missed it completly then when I saw it realised Lara is new to forum,and no one except Bridget had replied ,could not help her just welcome Lara to the site, love Eve