Hello Pam
What a sad time for you, no matter what he has or how long, hold his hand, he has and will know he is loved,
Helen

Hi Jet and Carol
It is a great help to have the 2 of you ahead of me.
Helen

Hello Jet
Good to hear you are well, hope this continues. I'm not sitting around either, going away for few days tomorrow . Plenty of fresh air and long walks while I can.
Helen

Hello Keith

glad its all over and you are back home fingers crossed things will only get better from here
Love Jo;-)

Hi Jet

really glad to see you are coping well after you at last got a bed lets hope you sail though this looking forward to your next blog you should think of turning it into a book
Love Jo:-)

hello Lara
sorry to have missed your post sorry to hear about your dad just to tell you I am type 11 diabetic so while on the CDT I had to have insulin as the steriod raised my sugar levels to an unacceptable level I hated this but did not have a choice just to say when I finished the treatment I was able to go back to tablets so you dad should…[Read more]

Hello again Ivan

DEX is awful we here have invented a word DEXITUDE my husband thought I had turned into a monster I think the lack of sleep does it. Its not so bad if you take the Dex first thing in the morning and the thalidomide last thing at night you then might get a bit of sleep I would be careful if you are mixing with a lot of people…[Read more]

Hi Lara
Just read your post ,do not know how i missed it,!!!!!
Let me welcome you to this site,and the start of your fathers journey!! it,s not all doom and gloom,treat it like a learning curve.:-)
I cannot help you with your problem,but by replying to your post it will take it back up to the top of the section,and someone who can answer your…[Read more]

Hi Sarah
I wish I could bottle this!!!,Just think Dai a welsh man saying a scouse is extended family !! LOL.new that would make you laugh Sarah its like comparing Lancashire with Yorkshire LOL.,but Myeloma does not know boundaries:-) .

Be strong Sarah,enjoy this time,not many people have this time,I wish you a good journey,Thinking of you…[Read more]

Hi Gina
Your mum has been here before,something is not right!!! anti inflamitories i always thought was a no no,don,t quote me ask the nurse.I think you remember what Slim went through,and it started with blood pressure going low,Please get in touch with the hospital.If her gp prescribed blood pressure tablets the hospital do not like to…[Read more]

Hi Min
Mmmm I was hoping it might be the nurses who put the cannula in, they are pretty good. Yes I'm sure Catherine will oblige and as for the beds…….. We must hope for a quiet weekend before we go in, I wonder how many of us are booked
Helen

Hello David

I would just like to wish you a good holiday hope the weather is good to you8-)
Love Jo

Hello Eve and friends

I agree with all the sentiments that have been written this site has helped, encouraged and cheered me up in large measures its true Dia its just like one big family. Keep well everybody;-)

Love Jo

Hello Min
I thought the beach in the background might be familiar! Yes I spent all Tuesday am at frh and we will be racing for the beds together then!!! We've probably gazed at each other across the waiting rooms!! Those unbelievably long waits!' I've been told I can go home after the first couple of days if well and then to expect to return on…[Read more]

Hi Dai
I like the way you refer to it all as an adventure , it is how I have looked at it, not one I would have taken from choice but an adventure nevertheless and I view each stage now with interest and trepidation but funnily enough not fear. I am in Newcastle and if there is a bed will have high dose melphalan on 15th aug and stem cell rescue…[Read more]

Dear Helen
I think the side effects of the drugs are so many and varied it is really hard to work out which is doing what, I only had them for 4 cycles but they were terrible, my consolation was the lowering sflc each month, I don't know how i' d have reacted if it had not done that.
I still have shakey hands and certain foods still seem to…[Read more]

Hi Vicki
Welcome, I was diagnosed age 56 in feb, like Dai with light chain myeloma and teeny weeny pp level, but caught very early by blood bank when they rejected me because I was too anaemic for them to take blood. It had been slowly dropping for several years and I thought I was just getting arthritis in my back.
I have just a few days until…[Read more]

Hi Eve and all

What you have all said is so true. This site has been my lifeline for a long time for which I am very grateful. Like David says it also puts your problems into prospective. I hope you are all well and hope Slim and Peter are feeling better.

Love Jean xxT