Hi Sarah
Thinking of you today,as every one on this sight is,many because we know some were down the line it is going to be one of us,so sad that it has come around so fast.we all know what a roller coast of a ride this is and i do not think anyone is ever prepared for the future.
On the plus side you are getting Gordon home,and that in it,s…[Read more]

Dear Sarah
Min and Bridget have said it all. I am so sorry what you are going through. I know Gordon Is surrounded by love. My thoughts and prayers are with you both. As Bridget says "hang in there". I pray that there will be some improvement. Sarah I can only offer my prayers and love.

God bless Jean xx

Hi carol and eve
My last post seems to be on the revlimid topic, doing things without the glasses is not advised, it took me about 5 weeks to recover from the effect of the revlimid fully
Helen

Hi Carol
We do the ice thing up at our hosp too in fact the advice here is to make your own flavoured cubes and take them with you as they taste better than hospital water and you choose what you prefer, I thought i'd try champagne and White wine!!! Seriously though I've been quite laid back about the sct but having signed the consent form 'no…[Read more]

Oh Tom

you are good putting in a new kitchen you must be very handy we put one in a couple of years ago got rid of loads of stuff now I wish we hadn't I love the sun but have to be a bit careful Geoff and I (my old husband!!):-P go for a walk each day in the evening at the moment we do 3 miles most nights I am doing well at the moment keeping…[Read more]

Hi Sharon

just caught up with your post I had the same symptoms with thalidpmide
so I stayed on a 100mgs which I managed quite well I went into remmission after four months april 2009 but I kept on with the thalidomide for a further year as after the intial treatment I seemed to cope with it until I got pn so had to stop . I shook at lot at…[Read more]

Hi Amelia
Your posting was near midnight,and I can sympathise how shocked and worried you must have felt,it is very hard when things start to go wrong,and by nature you must worry about it all starting over again.make sure you keep posting ,i often wish Slim was one of the lucky ones who sail through to SCT.

I cannot answer your questions,but…[Read more]

hello Dia

my husband has problems with his feet and legs due to diabeties so we bought one of these machines it has proved invaluable there is also a tens attachment for pain which you also might find beneficial

Love Jo x

Hi Bridget

great news to get your ankles back from that I take it your legs are much better my legs swelled up a lot on DEX that drug has a lot answer for one way or another I do hope you can get a holiday from it you will feel much better for a break, as for the weight as long as you feel well what does it matter

Love and (((hugs))));-)
jO X

Hi Sarah
Sorry things seem so down at this moment,Sarah go and see your doctor,all the worry tears and upset is taking it,s toll on you.Get your emotions under control even if it means popping pills it will put you in a better frame of mind,it is so hard when you cannot see any light at the end of the tunnel,and the demons always seem to come out…[Read more]

Hi Jet
Thanks for this, I think this bed thing is vile, I was supposed to have chemo before stem cell mobilisation but because there were no beds I had to wait a week, go on the large dose of gcsf and keep fingers crossed that I produced enough cells, fortunately I did so i' m still on the right time scale and all is to start on15 th, are you…[Read more]

Hi Carol
My husband is on Myeloma11 trials started February on ctd arm,intense pathway,got septic pneumonia in April,spent 22 days in hospital,started chemo again on less steroids,because of damage to lungs,just finishing 6 cycle,had meeting with consultant last week,no positive outcome.
left not knowing what is going to happen,talked about not…[Read more]

Hi Carol
I'm also in myeloma xi was on revlimid arm, sct in a couple of weeks time
Helen

Hi Ozzy

I have not had an SCT but I have had leg and hip ache someone told me it could be the Steriods as we do have large doses during chemo this could right
Regrds Jo;-)

Hello Tom

I can just see you and the young bride on the tours of britain are your little legs going 10 to the dozen glad you are well dont fall off!!!!

Love Jo 😛

I to would like to wish them both a safe journey lets hope the road is smooth with no sharp turns on the way
GOOD LUCK JET AND KIETH

lOVE jOXX

Hi Carol
I'm just back from sct work up this morning and asked about the revlimid follow up bit on the myeloma xi trial which I too am in, the next phase for me is still over 3 months away, so is this the section you are at? The trial people seem to think that you need a few months to get used to it and it will settle down, I clearly didn't reach…[Read more]

Dear Sarah

I am so sorry to hear that Gordon is having such a terrible time. My love and prayers are with you both.
Take care. God bless
Love Jean xx

Dear Sarah

My thoughts and prayers are with you and Gordon I do hope things will improve for him soon it must seem that tears are never ending chin up

Love Jo x

Hi Carol
Not sure if you were speaking to me but I'm answering anyway!!! I have light chain myeloma so the pp level was low and the sflc's were not too high, I've been lucky to be picked up relatively early. They like the levels to drop and plateau not rise again so everyone is going to respond differently i think. I asked what they were hoping…[Read more]