Hello Eve

I was dissapointed to hear about Slims result do you think they have given you the correct information as it seemed he was doing so well it really cheers you up doesn't it! when some consultants say such callous things what Slim needs is positive things not negative I think you have drawn the short straw in what they call the post…[Read more]

Hello Gill
I really glad Stephen is a bit better and home again it nice when someone looks after you and cooks tempting dinners I hope he enjoys them
As for the Thalidamide my consultant told me of the costs when I started which I thought was a huge cost as it has been around for the last fifty years but I was grateful to have it the funny thing…[Read more]

Hello Ivan

I think some times alternatives are as good for the mind as the body I see no reason why you could not take some cumin along with the regular chemo as long as they dont fight I have also seen that cinnamon is another good spice that might help fight cancer if it helps do it the medical proffesion guess it half the time anyway as you…[Read more]

Good luck Jet
I'll be thinking of you over the next few weeks,
Helen

Hello Jet

i also cannot give you any info about SCT as i havn't had one either but I will be thinking about you with fingers crossed for monday

GOOD LUCK and a big (((((hug))))

Love Jo xx;-) 😉

Hi
Looks if Apprehensive was the right mood for me,came away feeling what a waste of time,and lots of conflicting information,when I asked for statics ,information not forth coming,on another point told bone marrow results had not improved,asked % wise damage,did not have that info but file was on desk!!!.Told all the way through everything…[Read more]

To moaning Min
absolutly!!!
xx:-S

Dia

10th of august well I really call that an urgent appointment I think its a docters duty to treat ill people even if it makes them a bit late did they join the profession to care or what!:-/ it makes me so angry, my bother in law has had a scan and they have found a suspicious lump in his stomach that was two weeks ago his first appointment…[Read more]

Hi Ivan

Good luck with your CDT it really worked for me the only other thing I would say is its much easir to take the steriods with a yogurt in the morning and you will need a laxative as thalidomide can cause constipation.
Did you know how the discoverd that thalidomide worked for myeloma, they were treating someone who had…[Read more]

Hi Gill nice to see Stephen has got over this hurdle,it,s a roller coaster ride,all the time,I just wish it would stop for a little while.
Did not see the article you mentioned but don,t you think it is strange how much it has increased in price over 50 years,£2100,cannot see them 50 years ago paying a high price to stop pregnant women feeling…[Read more]

Hi Dai
The problem is all bookings go through,a format you have to be seen with in so many days,the request is a piece of paper marked urgent just like all the other pieces of paper,this is what is happening all over the country.If the test is in high demand,they cannot cope with this demand because of staff shortage.if you were in hospital and…[Read more]

Hi Dai
They build you up and then dash you down, so hard to bear, is it worth speaking to your consultant on Monday?
Helen

Hi Ivan
Glad yesterday went ok.
Re treatment I took a few apricot kernels before they gave me the chemo, then gave them back to my mate, decided to toe the line and follow instructions to the letter as this is best chance.
I took all drugs at exactly the same times every day- as already said, take dex and anticoag in morning cyclophos after…[Read more]

Hi Dai
The main thing Dai is you are having the treatment ,the injections,a scan will show how the leg is doing,so try to have agood weekend,massage does help easy the pain,i spend a lot of time on Slims legs,as it help circulation ,so it is worth a try,complains some times that i am heavy handed!!!.:-P
love Eve

Hi Ivan
I cannot tell you much about alternative treatment,there are lots out there,Took me all my time to get Slim to eat at one stage,drinking water is very important as it helps the kidneys flush through,your taste buds will change from,month to month.Slims always been a wine drinker,cannot stand the stuff now:-)(more for me):-P
My advice is…[Read more]

Hi Ivan
Eve again,your on ctd,remember to take DEX in the morning,and Thalidomide last thing of a night ,but I am sure they warned you about that!!! some people get mood swings on DEX someone coined the phase Dexattude,the wife will get use to it:-P
It will not take long to adjust to everything,a chart is helpful some hospitals supply them or…[Read more]

Hi Ivan
Hope you got on ok today, not too shell shocked with all the information thrown at you.
In reply to the energy question, I feel as though I have more energy though I'm only just starting to try and get fitter again since all the induction therapy stopped.
I thought i was slowing down with arthritis or the menopause, hot sweats, joint…[Read more]

Hi Ivan
Just picked up on your post,welcome to the journey,may i say it is a massive learning curve,try just to take one day at a time:-)
I cannot add much more than has been said except to say,thing will get a lot better,this site will help to give you insight,and advice there are people ahead of you on this journey.
3000 people in uk a year…[Read more]

Dear Ivan
I was diagnosed in February and also was fairly fit, bit anaemic and tired so the shock was overwhelming, even checked that it was my name on all the sample tubes! I've been at work all through the induction chemo, some good days some bad days and everything in-between, I'm off sick now as i head off for my stem cell transplant next…[Read more]

Hello Ivan

so sorry you have had to join this group,you will be in shock and it will take a while to come to terms with it I dont think anyone truly does, as for crying I also have a close family we all did a lot of that.
This site is so valuable for help and information and the Myeloma uk help line is brilliant there is always a professional…[Read more]