gina
I can understand your anger this is terrible your mum is entitle to ask for a change of consultant and hospital if this is possible for you I would do it, thinking of you
Regards Jo

Hi Sharon
You should never have got to this position on the trials,my husband is on myeloma X1 trials CTD.When you go in for blood they ask you how you are,you have to tell them the truth,and ask to see your myeloma nurse who should be there when you see consultant ring her up.

Yes you are having a bad time,and trying to look after two kids…[Read more]

Hello Bridget

I am so glad you feel enough to post we have missed you have the new bad back pains gone from your back, swollen legs are terrible when I first had the renal failure my legs were like elephants to say the least my kidney consultant told me to drink at least 3 ltres of fluid not just water and try to walk as much as i could this…[Read more]

Hello min

new kitckens are great we had one a couple of years ago it gave me the chance to have a good clear out in fact I chucked things i could do with now so beware,hows Peter doing is he feeling any stronger

Love Jo x

Hi Eve

It was a lovely part of wales yes there were loads of scousers in fact at first I didnt think we would meet a welshman we didnt until we got into into snodonia proper as for the weather we could not believe it what luck even got a bit of a suntan

Love Jo8-)

Hello Gill

Sorry to hear about stephens infection lets hope they can get it under control soon. I had quite a few canulas in the crook of my arm as they find it hard to get a vien so I know just how uncomfortable it can be fingers crossed this is a temporary blip

Love Jo

Hello Dia

glad you are now feeling a bit better lets hope the leg is not a Velcade problem and can be sorted out sinply:-) I have been reading up about the research done in american they have come to the conclusion that a lower dose of Velcade over a little longer period has had the same results but with a lot less side effects I hope our…[Read more]

Hi Helen
Hope today goes alright, fingers crossed for your mum, I'm going away for a few days today before the next hosp visit next week.
Stay strong
Helen

Hi Dai and Min
This is the same with Slim.Pain in heel then calf.I took him straight to Ashford hos.it was Sunday,new DVT clinic had opened.A&E.had stupid nurse telling me there was no clinic,made her go and check,agreed with me but kept us waiting 4 hours by then DVT clinic closed.started treatment injections had to come back next day for…[Read more]

Hi To You All
I am awake at this stupid hour,so I thought I would pop in,have been awake for awhile so gave in ,up made a cup of tea and here I am,wish i could get in to a good book,but my prolific reading days went out the window when mm started,Slims happy about that,as he could not get a word out of me when my head was stuck in a…[Read more]

Hi Everybody
Jo that is a lovely part of Wales you went to,only problem to many scousers,LOLthey have all emigrated from Liverpool.surprised about the weather you must have just been lucky.:-P
Bridget you seem to be going through a bad time,I know when Slims legs were swollen the more time he spent on his feet,then rested them,it helped the…[Read more]

Hi Eve

We had a great holiday in wales we went to all the places you said I also cannot spell them. Took our grandson up snowdon on the train the weather was good and it didnt rain all week which was such a bonus so a nice time was had by all love to slim
Love JO X8-)

Hello David

glad you had a good holiday on the rhine you should have a good time in st ives we have just come back from northwales we had sunshine all week which was a real bonus as we took wet weather gear expecting it to rain
Love Jo

Hello Eve

I hope Slim has good news on friday, I always get apprehensive every time I go to the clinic I feel like its the sword of damacles hanging over my head silly i know but thats just how it is

Love Jo x

hello Jean

so glad you had a great holiday it can really buck you up you must have been glad of the sunshine as the weather has looked awful in Northern Island the last couple of weeks,Really glad Frank was on top form I had a giggle at the Mr and Mrs it must have been a good laugh:-)

Love Jo

Hi Jean,
So glad you managed a good holiday,good to get away from everything,are you sure you just have not holiday blues,specially as you had such a wonderful time,it must hit home coming back,When we go away,coming back is hard,Lovely to see the kids,but then I want to go off again in motorhome.:-S

In theory I have no reason not to be…[Read more]

Hi Helen
The drugs are really hard to get used to, I'm glad I only had a few months- I was really responsive to them and my sflc dropped from 750 to 11 at the end of the fourth, the pp level went from 5 to 4 and has been untraceable since, and my anaemia resolved quickly, in fact I'm probably physically better than I have been for about 5 years…[Read more]

Hi Sarah
Just putting the same message on here in case you miss the one on b badge. Hang in there Sarah it is 3 am when you sitting there wondering how this will turn out,worst time, Awful time,thinking of you.Eve

Hi Sarah
They can do so much these days,I am thinking about both of you,i try to hang on to the believe that were there is life there is hope.
Sarah,be strong for Gordon,He has to believe he is going to make it.
I look at Slim now and think about those days in ITU.my heart goes out to you. love Eve

Hi Eve

I am so glad to hear that things for Slim are looking up as I know he has had a rough time. Eve there must be something in the air!!! I came on to post something similar. We have just come back from a cruise with 10 family members. We had a fantastic time. On previous holidays, Frank slept a lot and was not really interested in…[Read more]