Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself…[Read more]

Hi Shirls

sorry you are not feeling so good at the moment I hope it passes soon
how are your aches and pains from the fall, i know its good to be positive but I try but do have some down days
Keep well
love JO 🙂

Hello Scott
I see you may be taking the same route as me I chose not to have SCT as the full strength chemo could have finished my kidneys off completly. When I was diagnosed Jan 2009 I had really bad kidney failure due to MM my creatinine was 485 and I was on the verge of dialysis it is now (last reading 239 ) after CDT which I finished april…[Read more]

Hi Everybody

Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to…[Read more]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

Hi Claire

Min has explained it spot on. My hubby was diagnosed 5 years ago with smouldering myeloma and the only treatment he has received is Zometa. That was right at beginning of Diagnoses. He sees his consultant every 2 months and is monitored very closely. He gets what he calls "power failures" and just goes to sleep. I think we are very…[Read more]

Hello Peggy

Rant away we all feel like that especially when first diagnosed and on steriods! and yes there will be people who dont want to know you now but they are not worth worrying about just appreciate true friends. SCT is stem cell transplant
my kidneys were too bad and I didnt want to risk the agressive chemo which you have to have with…[Read more]

Hello Sarah

so sorry Gordons SCT didn,t work it must have been a hammer blow on the positive side new drugs are coming on line all the time, look at Mins post good old CDT is working for Peter second time around so don't lose hope
Love Jo

hi Tom

thanks I am still doing ok last paraprotien in a band to fient to measure so onwards and upwards I always have someone looking over my shoulder Geoff my husband he TRIES!!! to keep me in line
Lots of love Jo8-)

Hi Dai

Well we do not need to ask were all that talent comes from:-)you have every right to feel very proud,this is what life is about,doing a good job.
I know the feeling of missing a daughter,one of my daughter,s live in New Zealand only moved out there3 years ago,taking two very young children with her,so journey home is not on the…[Read more]

Hi Sarah,
Just so sorry to here sct failed,i agree with Bridget it is a bstd illness,Slims on a low dose of Dex now and seems to be coping better with it.
I even let him drive now,before every journey was,like a nightmare.
Let us know how you get on. best wishers Eve

Hello Peggy

I hope you have a happy birthday tomorrow I am sure you will get some help with all your meds and your daughter, speak to MacMillan they can be so helpful I was diagnosed with renal failure so not had an SCT but I have managed so far on drugs alone I was diagnosed in jan 2009
Good Luck
Love Jox

Tom what is it with you and cucumbers, I like them in a good strong glass of Pymms:-P 😎 😉 Love Jox

Hello Gill
welcome to this site not the words you would want to hear, You will find many friends and a wealth of good information and support go ahead have a good drink for your birthday and why not I was diagnose in jan 2009 I was 61 I have been in plateau since may 2009 no SCT due to major kidney damage
GOOD LUCK 😉
Love Jo

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right…[Read more]

Hi Peggy
My if you have not got enough on your plate and this has happened you must be devastated.What a start to a birthday.It will get better,I know that it does not seem this way right now,but there are people ahead of you with not just myeloma,but extra problems as well so you are not alone on this journey.

Its my husband with mm,I also…[Read more]

TOM
You will never be just a mere mail hows the young bride, still keeping you in check

Love Jo:-P

Dia
your daughter has a good voice shame someone doesn't pick her up she is to good for tribute bands any way if the Velcade works Majorca is only a couple of hours away
Keep Well
Love Jo8-)