Yes fingers crossed for you Jet hopeing all is well with you I have looked at your blog you havn't posted for a couple of weeks
Love Jo;-)

Good news Keith

good luck with the SCT fingers crossed for you see you on the other side
well fit and happy

Love Jo;-)

Hello gILL
What a shocked state you must be in it took me at least three months before I could come to terms with it I just didnt want to speak about it.
the phone line to myeloma uk is so valuable, there is a specialist nurse to talk to I found it such a help because you feel so alone when you go to the specialist take a pad with all the…[Read more]

Hi Helen
Good to know your mum feels a lot better. Its very worrying at the start,but your mum will soon get into the routine of things,do keep posting,it might help your mum to post as well,there is light at the end of the tunnel.
There will always be people who can help you,with any questions, so good luck and keep in touch eve

Hi Helen

Sorry you have had to join this site,but you are welcome.
this is what the site is for to ask question,get support,and rant and rave if you wish.so welcome again to the big learning curve.

Ask your Questions on the other sites as,Re starting a discussion is not were people on this site look very often,you will be picked up ,on…[Read more]

Hi Gill

Welcome to the site,Its either you so shocked or it is a relieve that at least you know have a name to your illness,sorry you have to join us.
Ask any questions you need answers for,or thing you do not understand,look on it as a big learning curve.
I wish you a good journey eve

Hi Dai
Sounds if you are going through the mill,so what can i say your knacked through lack of sleep,Let it all out if any body is entitled to blast off its you,think of it as just another hurdle,and if you refuse to jump over it,i,ll bash you with my hand bag 😛
Tomorrow is another day,try to stay positive,do not let your demons rise to the…[Read more]

Dia

keep on mixing, I am so sorry you have had such side effects lets hope the symtoms get better soon I agree the nursing staff are all about the treatment not you and the effects some times I think we need some pastoral care which is not all that evident thinking of you wishing you a good night sleep
Keep well
Love Jo;-)

Hi
sorry you have to join this site but myeloma uk is the very best place to go for information I agree with Kay take a pen and pad and write down all the questions you want to ask you will always forget to ask something if you dont then always write down the answers so you remember when you get home
Love Jo

Hi Bridget

glad you are back on line so sorry they have not got on top of your pain
it must be awful to be in pain all day and you dont want to wiped out either it sounds like making a cake but they havn't got the mixture right yet I really hope they do soon, keep in touch love Jo:-/ 😉 x

Min

I agree with bridget perhaps the hopital should have offered peter councelling as well as drugs all these doctors look after the body but not the mind, I am really glad he has perked up a bit to make you lunch this could be the start of a new mindset with him hopefully he may become more positive can someone come to your house to give you a…[Read more]

Hello Angelina

My fingers are crossed too I will send you one of my guardian angels I am sure they will smile on you
Love and a big ((hug))
Jo x

Kay

good luck at the hospital dont worry too much about the hair the shaven look is all the fashion I hope all goes really well for you and the Velcade knocks this devil out. When I had chemo my hair got really thin so I had it cut really short more in a boys style left it that way will save time next time always been a bit fat so not much…[Read more]

Hi Angelina

How are things going with John and yourself,just thinking about you this morning,just thought i would pop into site to see how you are getting on.
love Eve

Hi Kay

Good morning to you all,another lovely day,hope you do not spend to long in the hospital Kay.Wig or no wig,fat or thin,you still will be lovely,its what,s in side that counts.
wishing you well.Eve

Hello Meike and Christin

Glad to see your dad at least got out on his good day,Nhs supplied me with wheelchair for Slim,but I bought a light weight one from Halfords much easier getting into car.I know men are not keen on using it,but we would not be with out it now,and Slim has got use to it.yesterday we went out for 5 hours just packed the…[Read more]

Hi Kay

You must be so disappointed ,its not easy when you build yourself up mentally to have the treatment,i know you started treatment in January,many of the others who started treatment about the same time, are now approaching sct.
Slim started in February sct has not even been suggested!!! will be end of July before we see…[Read more]

Hello Peter
This method is widely used in America it sounds a much better system
I have a friend who attends a local clinic with me in Stevenage she is on velcade at the moment she asked the consultant she sees who is the head heamotogist about having this method she said that she had never heard of it!!! thats a big worry,as it happens we are…[Read more]

Min

You are brilliant dont know how you cope especially with not much sleep you must feel you are going up the wall at times I know what you mean about 4.30 in the morning if I wake up then my mind goes barmy well perhaps I am barmy!

Love Jo 😛 xx

Dia

what is a good night sleep since I have been diagnosed with renal failure I have to get up twice some times three times a night can get off again some nights but others its tossing and turning for hours I get three hours good sleep then it all goes to pot but at least I am not on dialysis, keep drinking "THE WATER!"
lOVE jO 🙁 😉 X