Hi David
That is wonderful news,you must be feeling so high,and its great for us to see someone turning that corner,Champagne is the order of the day,I can see you now cruising up the Rhine sun setting sitting in the stern with a glass of champagne with your lovely wife,thinking isn,t life great,just wish it was me in my moterhome on the bank…[Read more]

Hi Gill

Glad to here Stephen managed his 2nd SCT
It is awful when you are stuck at home,first the hospital,then home I felt Spring came and went with out me knowing,and Slim has not got to the hard part yet,on 5th cycle ctd.

Sleep is the worst thing my body clock woke up if Slim moved!!!!!then in the day it just went on,bath toilet,fetch…[Read more]

david

great news keep up the good work 3 months off wonderful and the para result is good too enjoy your holiday and lets us all know what it was like on the Rhine;-)

Dai

How can you say that,I am a scouser,born and bred!!!!! warm hearted,lovely person and if you don,t agree i will do a Margaret Thatcher on you,I will hit you with my handbag:-P

PS got a plum in my mouth now stuck some were between my wisdom tooth!!!!

Dai
i have to say it,you have a wonderful way with words.eve
P S. Slims done 22 years of yomping in Marines just told him to go and join up again, lol

Thanks Stuart
Done and dusted next has to be photo,still learning promise not to say naughty words.lol

Hi Min
You sound about were I was a month ago,and it did not help people telling me to get some rest,
I lost the plot a few times,had to go to doctors,saves money not buying gin, lol . It did help to pop pills kept my temper under control,tears stopped flowing,saved a bomb on tissues.Only take them when my demons rise to the surface.
I have to…[Read more]

Hi Min

Where are you on the roller coaster!!!!,at the moment I feel i am on a nice level bit!!!! feels like heaven.
Bridget seems to have gone off the radar !!!
I think every ones gone on holiday and left us behind LOL

Glad to see you jumped the hurdle, love eve

Hi Christin

I found i had to ask questions,information was not very forth coming,I think they try not to bombard you with lots of information. i felt if they were keeping information from me,but it is just that they do not know you and do not know what your reaction will be.As time goes on this will get easier,
Your dad has a right to see any…[Read more]

Hi Bellis
Just thought I would pop in and say hello,and offer you a welcome

I cannot help you with your posting,
I am assuming your mums twin will donate stem cells!!!!!.
If it is ,it sounds wonderful to me,I hope it works out for your mum,and someone is able to give you some help,Any advancement on treatment,is something we all like to…[Read more]

Hi Andy
I have a slight problem,and do not know who to ask so i have come to you handy Andy,

Do not know how to change my name on this site,as I now have a different surname,can you help.
kind regard Eve

Dia
songs in the key of D sounds like my kind of CD get Janet to hurry up and edit
PS i am sure you have loads of fans
Love Jo xx;-)

dia
i agre with what you said to Roz wise words.
When is your cd going to be issed
Love Jo

Hi VIcki
We were told if have little side effects on first cycle the rest are usualy the same but everyone is different.
You do not say what type of Myeloma your dad has,they take bloods and get 2 cycle within days,Once your dad starts on bone infusions the pain will easy but in the mean time make sure you tell the clinic it is very important…[Read more]

There is all so a good side for example I changed my gp within the practice because i felt I needed someone who would listen to me.The new gp is a lady and talking to her,she told me on mondays she does her home visits in her own time before she starts surgery,i bet not many gp do that.
When Slim was going to ITU he was rambling on about getting…[Read more]

Hi Min
It makes me so mad when I read about some of the things that go on in hospitals,but glad Peter is eating,a good sign. Its all just awaiting game hoping every day he will get a little bit better.
It will get better Min,look at us,2 months on slowly Slim is feeling better every day,and does not remember much of the bad times.At times i…[Read more]

Hello Meika and Christin

Just to say a welcome to you,
May i suggest you look at the post[ a ray of hope ]then go back over the old post,you can do this by clicking on photo.
It might give you some hope and encouragement.
best wishers eve

Hi All

after reading these posts the old program your life in their hands come to mind it makes me shudder when I hear these tales. My GP sent me home to take paracetamol "you have a virus" I collapsed next day my husband took me straight to hospital with double pnuemonia and renal failure. They all seem so callous about it why did some become…[Read more]

Hello Wolf

It seems you have been doing very well on Revlimid and a low dose of DEX I always wonder if we need these massive doses of DEX they seem to give us
did you have a SCT at any time in the last 8 years
thanks for posting
Love Jo 😉

Hello Christin
So sorry to hear about your dad hopefully the hospital will get on top of his pain as you will see from posts on here there are lots of things to help
also the Velcade some people respond quicker than others but if that doesn't work there are are couple more options for him.I had a rash with my initial treatment it turn out to be…[Read more]