Hi
Thought of some more stupid remarks,
When Slim was in A&E,being sent home,I pointed out his bp 60 over 40 told it did not matter!!!!!!
|Fathers Day went to barby,first time out with people for a long time,daughters sil,came over saying Slim you look rearly well,I expected you to be looking,ill and grey looking,did not comment on his 5inch…[Read more]

Hi Min
How are things going with Peter and yourself,is he starting to pick up ?
Have you far to travel to hospital ,It all takes so much energy,It is suppose to be a nice day today,although its raining right now,lets hope the sun comes out,I find things all ways seem a little bit better on sunny days.
This is just to let you know,I am thinking…[Read more]

Good luck Angelina glad you have decided what to do,if your sil says anything you tell her straight,she would not be able to walk a mile in your shoes. until you are going through this thing,no one has any understanding how it is.Can I say now you have decided to do this,make sure you put something in your boxes that has John smell on it,sounds…[Read more]

Hello Bridget

are you ok how did you get on at uch is the revlimid working for you
much love jo xx

Hello Min

So sorry to hear about Peter he is going through the mill lets hope all this leads to his second SCT you must be exhausted are you getting any help at home with dogs etc if you are at the hospital all day.He is in the right place though because a bad chest infection could lead to pnuemonia so its good the hospital have got it all in…[Read more]

Good to hear your treatment has worked good idea to have a holiday it will set you up for the next SCT really good luck with that
Love Jo:-) x

Hi MaRi

I just cannot imagine it,London to Brighton,56 miles is it,with that great big hill you have to ride up,it gives us so much hope.he must be fit.
Thank you for your post,my husband is on his 5th cycle of ctd and had complications with pneumonia,some times I just cannot see any progress,and then some one posts with such good news and its…[Read more]

Hi Keith
I think we were all wondering what happened to you,but to scared to ask,as we new you were going through a bad time,but its lovely to here you are doing well.
Have a good break away from it all,wish i could do the same [I am jealous ] Best Wishers Eve

Hi Ladies
The worst thing that was ever said to me concerned my first grandchild who has cp.I was walking him,and met a male friend who new my daughter,and was explaining why Matty was in a wheelchair.
He asked if my daughter Ruth was going to keep him!!!!!!!I often feel like coming out with comments{no hes going out with the rubbish] just to…[Read more]

Hi Min
So sorry to hear peter,s not doing to well,but we both know how quickly it can turn round,a few days on a drip works wonders,Slim had a feed in his neck with lots of tubes to be able to have lots of drips,with machine,s going off every five minutes,not nice at all,It must be awful having to go home and leave him there.
I hope today…[Read more]

Oh Roz

your suffering as much as the rest of us I do wish I had a magic wand to make ir all go away you must miss micheal so much you was with him such along time my prayers are with
Love Jo:-)

Another good one Dia:-)
love Jo 😉

Roz

glad to hear from you I hope it is not too much of a struggle on your own
what sort of disability do you have can you get more care in your home for your needs please keep in touch
Love and prayers Jo x

Hello Jess

I am not sure about coming off dialysis they told me it could be possible when I was diagnosed I had a GFR of 10 nearly went on to dialysis but had a slight improvement possibly due to the high dose of steriod I now have about 20-25% kidney use so your mums kidney could improve enough to avoid it i was 61 when diagnosed

Love Jo x

Hi Roz
I feel like a naughty school girl,the first time i thought what an earth have I said,because I do not swear normally,I was upset by the whole thing,and thought,have i offended someone.
The second one ,was saying H-e-l-l.Tom told me how to get round it,but you have to question ,who would find it offensive
Glad you seem more upbeat…[Read more]

Wonderful news HURRAH what a day, you must be so relieved even with a bit PN as for the 8.3 I have not been above 10 since I was diagnosed I have sort of got used to it although 10 o'clock at night is my witching hour had it by then, went to the renal clinic today kidneys still stable so that was one worry over for another month i always get…[Read more]

Hi Everybody

Slim was changed to Oxycontin in hospital,when we asked why,told it was better because it worked longer up to 12 hours,I think they said it was opium based,morphine mst worked faster,but the body gets use to the drug and becomes less effective leading to higher doses.
As for Tramadol Slim was taken off them again by hospital as…[Read more]

Hi Eve
Dont you wish you could bosh some people i did try to say something else but i swore and they would not pA:-( ss the post GRRRRR!!!

lOVE Jo x:-(

Hello Colpot

that is a brilliant response 41 courses how many years is that a lady inmy clinic has been on it for three years like you she has a reduced dose now
fingers crossed this keeps working for you all

Love Jo:-) 😉

Thank you Dai
Dai you are in the right,It does get me down,today was another hospital day,believe it or not we were only in there for one hour miracles do happen.

I think you are right care,s do get overwhelmed,many cannot express them selves,i must admit my spelling has got much better since I have been posting,but my grammar needs…[Read more]