Hello David

glad your teeth are getting back to normal be careful not VASTYBYTE to
hard

Love Jo x 😉

Hello Dia

I think the idea of opting in rather than opting out is a good one I never remember to uncheck good suggestion

Love Jo 🙂

Hi Jo

No not possible round trip of at least 160 miles,journey alone with bone pain would be bad for him.

It,s not so much the myeloma trials,It is the conditions which seem to go hand in hand with it,Slim complained of pain in side for a long time,we thought bone pain, when the cat scan was done turns out lots of wedge shape holes plus…[Read more]

Hello Eve

Is there any way you can change hospitals and get into one of the London units with such better standards of care I believe Kings and UCH are really good I attend Uch they cannot be more careful and caring do you think now Slim is home he could take the journey I really do hope the CDT works for him
and he will feel better soon
Love Jo 😉

Hello Dia

you must let us know when you release your CD,s I think I would probably
like Etcetera as it has a mixture of what I like especially jazz and blues but i do like shanty bands they make for a really jolly evening. fingers crossed for the velcade lets hope it gives you loads of energyxxxxx

Love Jo 😉

Hello Dia

like the song I beginning to enjoy all your music 😎

Love Jo xxxx

Hello Min

so glad they have have come up with a new plan, THALIDOMIDE is a bit of a wonder drug I so hope it works again for Peter. Did you know how they dicovered it worked for MM they were treating patients for Leprosy and they happen to treat some one who also had MM a eureka moment the MM was put into remmission and they discovered it was…[Read more]

Hi Angelina

Yes I can relate to your post,not as bad but very frighting,Slim has had a few bad times,being an ex marine he has seen and been in many bad situations,but these nightmares he tells me are so frighting,had about 4 in itu,panic attacks they said ,but when we talked about them,they were nightmares.Must admit at time my thoughts were…[Read more]

Good Luck Min

Wish I could help you more ,no knowledge of treatment as you are ahead of us on this journey,Peter is a fighter and I think this goes a long way,I wish I could say more in words to comfort you,but we all know,these are desperate times,
Too stop my self from loosing the plot,I now resort to popping a pill,tried g&t,not a good…[Read more]

Hi Bridget

I didnt get the news letter is it on line if it is would you mind forwarding it to me Hows the cellulits is it getting any better

Love Jo xxx

Hi Alastair
Well I can tell you its not in South East Kent,Read my previous post it will give the general idea.
If we could manage London I think we would go for that,health wise not advisable for my husband.
Its not so much about the treatment,I think its roughly the same.Myeloma X1 trials are you best hope,if you have not started…[Read more]

Hi min
You know how I have been feeling these last few weeks,and you gave me so much hope,it will all seem so different in the morning,it is the night that does this to us,to much time to think,to much to ponder,The morning will bring fresh hope, please be strong,
You told me not to give up on Slim,he is getting stronger,when things look bad…[Read more]

well Dia it sounds like the sort of book I like to read please remember to tell us when it is published
Jo xx8-)

Hello Bidget

so glad they are sorting out your pain and you will not have to worry about get an appointment with the Docs its like getting in Fort Knox at my doctors it fills me with dread if this new NHS thing goes through and they are in charge
Love and big Hugs Jo 😎

Hello Roberta Eve and Angelina and Min
A good friend of mine once said to me change your KARMA let go of what you cannot contol and you will get back what is right in your life, in times of crisis true friends and family will be there for you and thats all that is important:-)
Love to you all Jo big ((((hugs))))

Dear Min

I am so sorry to hear about Peter my thoughts and prayers are with you perhaps a new test will show up something better they often get some of my test wrong at my local hospital so I have to retest they mentioned to me at UCH if all else fails they may go back to CDT as it worked first time
maybe this could work for Peter

Love Jo x

Hello alastair
I am under DR kwee Yong at UCH lONDON she is a recognised expert in the field of Myeloma you could try there if you are able to travel they have a very good team in the care of Myeloma

Regards Jo

Hi Roberta

I could echo all the things said here,But I think it all depends on the type of person you are.I feel the need to put everything right,it is sometimes impossible.

When there is a tragedy in your life,this is when you find who your friends are,and who needs fair weather friends. As to relatives its a different game,may be they do…[Read more]

Hello Dia

sorry I caanot give you any comment about Velcade but I put a lot of thought and prayers for you all if I could send it down the wire I would 🙂 like Tom I dont have all the words but lots love and hugs 😎

Love Jo xx