Hi Sharpy

I have had two years remmision fingers crossed it lasts a lot longer,
didnt have an SCT due to major kidney damage had CDT for four months follow by a year on 100mgs thalidomide hope this helps.Para protien last month was in a band to fient to measure

Love Jo 😎

Hi min
just woke up, thank thank you so much,I need to know there is hope to give him hope,At the moment reading your message you could be talking about Slim I know I have left him tonight wondering if this is the end.The doctors do not know it,his attertude is I have got away with it for 66 years!!!!I suppose,because of his life style he has…[Read more]

Hi to you all

Tom you are going to have to tell me how i can do it,because I know I am loosing the plot.
just got back from hospital.Slim had cat scan today,not good news.
Blood clots on lungs,also cavities might be mm or could be tb.my own thoughts are possible asbestos as Slim use to sleep under the piping on board ship as a young…[Read more]

Hi Eve

I'm with Bridget and Jo. How is Slim? Do take care of yourself.
Love Jean xx

Hi Eve
dont be sorry you have been through a real worring time I expect you had a lot on your mind and you were exhausted hope slim is feeling a bit better
Love from jO XX

Yes Bridget CF is a horrible disease. 30 years ago, our friends son died of it at age 16. They are still very much involved in CF (fund raising etc) and tell us of the great progress that has been made.

Tell your daughter that the best cure for hang over is the "hair of the dog". (that's my excuse)

My best wishes
JEan xx

Hi Bridget

I can understand how your mum feels. It's bad enough watching a loved partner ging through this horrible illness, never mind watching your child.

I hope all goes well tomorrow and I will be thinking of you and you will be in my prayers. Do let me know how thing go.

Lov Jean xx

Pamela

Doing this from my phone as lost connection on lap top! Sorry to hear that you are having pain. This is such a shi**y disease. Hope you loose the pain soon. Frank and dr have had run ins. The last visit it was like watching top dogs vying for position. She said she thought he had cracked a rib he told her she was wrong and he knew his…[Read more]

Hi Pamela

Great to hear from you. Been looking at wedding photos on Facebook. Looked like everyone had a great time. I hope you are keeping well (know that is a stupid thing to say – but you know what I mean). I will be going with Frank – poor man can't go any where without me!! Did you ask them how long it would take for results to get to…[Read more]

Hi Min

I know what you mean. The doc gives me diazepam 5 mgs. He gives me 28 at a time, but
I only take them when a G and T stops working. Packet lasts me about 10 weeks.
Take care
Love Jean xx

Hi Bridget

Thanks for that. I do admit to being a nut case!!! I was much worse but counsellor sorted me out. How is your pain?
Remember Frank pain in side. He kept saying it was muscular and turned out he was right. Hope you got your pain sorted.
MRI scan tomorrow scares th cr**p out of me. You would think that I was having it.
Hope you…[Read more]

Hi Kathleen

If you are loosing the plot then so am I. I am a carer to my hubby Frank diagnosed Sep 2006 with SMM. He is not on treatment, but at last visit she discussed future treatment. Also sent him for skeletal Xray and tomorrow he is going for an MRI. I watch him like a hawk If he pulls a face I'm asking whats wrong!! For a long…[Read more]

Hello Dia

Just love the blues we go to as many gigs a we can the last really good one was willy and the poor boys if you have not come across them you should have a go on the net last CD we bought was John Mooney
Like your stuff as well
Love JO xx 😎

First chance to reply
Ward went in lock down today no new admissions place swarming with cleaners. Slims septic pneumonia is back, had 24 hour bug,on the whole much better,Test to see if there is an under lying infection.Doctor does not think it is directly related to mm,except concerning the body being at low ebb,to pick up infections.all the…[Read more]

HI Bridget,

You are all ways there to support people,in time of need,I wish you well and will try to follow your post to support you as much as I can.best wishers eve

Hello A plus a monthly dose of pamidrinatengelina

thank you for the hugs I need them
I was diagnosed in jan 2009 entered hospital with double pnumonia renal failure and MM I also needed eight units of blood
First line of treatment was a big mistake idarubicin, damaged my kidneys even further then had 5 lots of CDT then took thalidmide for a…[Read more]

Hi Dia

Hope all goes well tomorrow. Sorry I'm not with Janet as regards to the rain. If you lived in northern Ireland you would no why.

My very best to you
Love Jean x

Hello Anghelina

I was very intered in Johns story did he take any medicine after the CDT apart from pain killers and bone strengthner he had a good remission a lot of people have SCT and only get a year or eighteen months remmission

Kind Regards Jo 😉

Dear angelina

I believe in all things mystic there are some strange things in heavan and earth to many things happen not to believe it

Love Jo x :-S