Bridget

you know house work is a dangerous business. seriously I really hope that is all it is all my monsters come at night or early morning if it does not go away get straight on to UCH thats what they are there for

Love you lots JO :-S

Hello Dia

good luck for tomorrow I hope all goes well, I am with Janet my garden is desperarate for rain

Love jO X 😎

Hi Bridget

I just want to add my 'penny worth'. I agree with alll that has been said above. I hope all goes well for you. I know the "big bad monsters" come out at night. I have met them a few times myself. My thoughts, and best wishes are with you.

Love Jean xxx

just got in
THere is now a bug on ward number of patients infected Slim being one,was talking about shut down,doing all personal care ,picked up on antibiotics and fluids,plus potassium low.
exray not looking good patchy lungs,I cannot tell you how many people I have spoken too.Even Slim in one of his lucid moments,had a slanging match with a…[Read more]

Hello Eve

So sorry to hear about Slim I agree with Min and Jean contact your local paper and what about the daily mail also could myeloma uk help you
my thoughts are with you
love Jo x

Dear Eve
I am so sorry to read of the terrible time that Slim and you are going through.
It sounds like the hospital from hel*. I can only say that I agree with what Min has said.
It sounds like good advice. I hope that you get this sorted quickly and be assured that all our thoughts are with you
Both. My prayers are with you and Slim. Take…[Read more]

Hi Min
The news is not great I am going to try to keep this reply short

After being discharged from A&e,then readmitted 2 days later on easter monday Slim spent 9 days in itu with septic pneumonia in both lungs,care excellent,
sent to general ward,as cancer ward would not accept him,hdu was not given as alternative.
First complaint wrong…[Read more]

Dia

I thought your song was brilliant and the singer was pretty good to

Have you any more tracks

Love JO X8-)

I was very moved by your song Dai. Congrats on lyrics. By the way your site is great.

Best wishes Jean

Hi Jem

I am so sorry to hear about your dad. I cannot help with any info but maybe someone else on site can help.

My best to you, your dad and mum. Take care
Jean

Hi Liz I am bumping ur post up, as it may get burried under the wrong heading.
Hope I'm making sense. I understand completely the crying – I have done my fair share.
Best wishes Jean x

Hi Liz and Kathleen

I am sorry to welcome you to this site but you will soon find out what a fantastic bunch of people are on this forum. My hubby was diagnosed in 2006 with Smouldering Myeloma. He has not had treatment but at last visit to consultant she organised a full skeletal xray and for the first time discussed treatment IF needed.…[Read more]

Hi Jet

I get my sodium bicarbonate from the docter on perscription I think a tub of 56 5oomgs capsuals is £17.00 you might get your docter to give you some I have also read about them having anti cancer properties although my consultant said he had never heard of it I also take an 800mg vit c tablet and a pure allicin tablet I have read about…[Read more]

Hello Eve

CONGRATULATIONS lets hope you can have a small party or even a big one once Slim is up and about fingers crossed it sounds as if he is over the worst good job you sent for an ambulance to bad if he moansed he will have to agree now you did the right thing:-S

Lots of love Jo 😎

Hi Eve

A big congrats from me. I was thinking about you on 28th as was Franks bithday – and there you were an "old married woman". (less of the old I can hear you say). I am so glad to read that Slim is feeling a little better. I have been following your posts but could ffer no help. My very best to you both and hope that Slim goes from…[Read more]

Thank you every one for all your Help

Had a tough week and a big learning curve,we got married on 26th of April instead of 28.th The hospital did us proud,cannot thank them enough,good job we did it then as Slim was a bit off his head the next day,and I am sure the Registrar would have said he was not of a sound mind.
Only managed one daughter…[Read more]

sheff
This is to you personally ,I need to Know more,I do not know if we can post are email address on here, but I do need some facts on this.
My husband was diagnosed in January on myeloma x1 trials ctd side.

He is in hospital at this moment in itu.getting better slowly from infection but what concerns me,is the mental state,I do not know if…[Read more]

Hello chucky and Hubby

I was diagnosed in Jan 09 with double pnuemonia renal failure and as it turned out MM the first treatment I was give was idarubcin which made my kidneys even worse they were preparing me for dialysis I had a wonderful renal consultant who put me on sodium bicarbonate tablets along with the steriods my kidneys improved a…[Read more]

Hi Bridget

WHAT A WEIRDO :-S but hay it must help I think this is a werdo club at least it has got you noticed which is the main thing and it looks like you will get special treament so glad about that never mind the cost so much is spent on wasteful things you deserve the best

Lots of love Jo 😎

Hi
thought you all might like to know,low blood pressure,indication of infection,it was not picked up on at a&e on Saturday,as dexi managed to hide the infection.Sent home what happened to this extra care for taking part in trials !!!!IF I had not phoned for ambulance Slim I dread to think what position we would be in,I would never have forgiven…[Read more]