David that was lovely. What a lovely start to the day. A real feel good
factor.

Love Jean x

Hi Dai

Did you enjoy the info day hope it did not make you too tired I hope you found it informative and relaxing and well worth going to if I am ok I will go to the London day in October

Love Jo 😛

Hi only me

I think there might be something in the hereditay link in the clinic I attend ther are two sets of brothers with MM plus a gentleman whos father had it a bit more than a fate

Love Jo

Bridget

Peace of mind,goes a log way,it,s not just the money side of it.It is being treated if it is nothing to do with you after living together so long.The bottom line is you have no rights.
eve

Hi Sandie

Sorry cannot help with pp levels.all different,can say the x-ray the whole head,It is all put on the computer and will be there for your appointment.I know this as my partner has lesions on skull.It shows up better on ordinary x-ray.The mri scan shows better on small bones,they do not x-ray hands or feet.

Hope this gives you some…[Read more]

HI jo and gill

If truth be known I am making a honest man of him LOL.I use to tell him during are heated moments that I would marry him just so I could divorce him.

For years everybody thought we were married,just presumed,with Slims illness I have found I have had to justify myself,Having to explain are arrangements to strangers,[new laws…[Read more]

Congratulations looks like its about time he made an honest woman of you Tee hEE

Love Jo8-)

hI Debs

When I was on CDT I didnt get sinus but the same as Bridget a constantly runny nose which got worse when I ate anything
but I did get a cold which left me with bad sinus pain for a while.
Love Jo

Hi Eve and Slim

Congratulations to you both. I hope the sun shines but if not you will have a fantastic day. Frank's birthday is 28th. Hope you enjoy your shopping spree – brilliant to go and spend money on yourself!!

Have a great day
Love Jean xx

Gill
Engagement rings were easy,every time he got a tax rebate,we had a renewal of are engagement.I know what you mean about France,the property is given to the children you have no say in who ,gets it if you are not married,We looked into it one time.
In this country you are not considered next of kin to claim a body if your not married,also a…[Read more]

Thank you ladies

It has been along time coming 3 engagement rings,in 30years the things we do for a diamond lol.

I have always felt married,so it has never bothered either of us.It is the easy way to get everthing in some order.Two of my daughters can make it the other one is in nz,and my step daughter cannot take time off teaching.

The…[Read more]

Hi Tony

Wish I could be of some help but your are in front on this journey,the help line can most help you here its worth a call,she can also put you in touch with some one who has had the same treatment.

My partner is on MX1 trial he has the ctd side,what the trial offers is if ctd has little effect it is next round of drugs not on nhs…[Read more]

Hi sarah

Kate Humbel hasnt got anything on you she mostly watches and make silly comments:-D
Bridget I always am doing silly things I do wonder at tImes

Love Jo xxx:-S

Hi eve

its good to get these things off your chest when I go to see my consultant he is always an hour over time as they double book him we waited four and a half hours once and then when i needed Thalidamide I had to wait two hours every time for the drugs we used to go and have lunch in the cafe in the hospital also the blood test clinic can…[Read more]

Hi Min
Hope Peter is ok now and you can get away for a few days it will do you both good lets hope the infections stay away

Love Jo

Good luck dia I hope your next appointment is a positive one we are all cheering for you :-0
Love Jo

hi Mark

Hang in there Mark,Is it a tumour on the skull or lesions? try to be positive,It is hard,and no matter what anyone says you and your family are the ones going through this,Wish you well mark

Hi Bridget and Min

Thanks for confirming it,s not me going mad ,just tired.At the stage Slim ,s going hot and cold both awake all night then hospital for consultant.He had not been given zometa into 6 week of treatment,told tuesday when taking blood,no zometa,told thursday phoned lunch time to make sure not forgotten phoned back come in 1 hour…[Read more]