hi mike

sorry to have to welcome you to the site but you will find your online friends here are so caring and helpful
I had type two diabetes before i was diagnosed so unfortunatly when taking the DEX I had to go on to insulin as it raised my sugars so much. Myeloma uk is a brilliant organisation they are so helpful and the line to the nurse…[Read more]

hello Dia

My husband and I went to the london info day last october it was a brilliant day and was over almost before it began as it was so informative and a very positive day I really felt uplifted Myeloma uk do a brilliant job even the catering was first class the break out groups were good with one just for carers which my husband found…[Read more]

Jet

having hyercalcaemia is bad and with the akf,Once you were put on drip with in 24 hours you would have seen a good improvement,drinking lots of water to flush kidneys out helps skin.Water seems the key to having good effect on skin and hair flushing excess drugs out of kidneys is important.The bone infusion helps with the pain relief.there…[Read more]

Hi Mike

sorry you are joining this club,but you will find it an experience in it self. lots to look at and lots of info here takes sometime to take it in.
My partner is coming up to 3cycle of chemo 21days of ctd myeloma x1 trial.

This site has helped me a lot,some great people on here,have a good journey

Hi Jet and Bridget

I do not think gender is the key,My partner on ctd takes 20 tablets 2mg dose 4 days running then repeats dose after 7 days.his chemo cycle is 21 days!!!!

has a good quality of life when on dex although a bit short tempered,takes a few days off dex and is very very tired,hot and cold,not wanting to eat.

The strange thing…[Read more]

i am so sorry to hear about your brother what a terrible shock which I know for you will hard to come to terms with I send you Big HUG you have every right to be angry Myeloma uk started the take 2 campagn for this reason as too many people have a late diagnosis as so many doctor ignore the symtoms which a simple blood test could solve my thoughts…[Read more]

Hi bluebird

my sympathy to all your family,My partner has mm,and it is hard to deal with,IT is rare only 3000 cases a year in Britain most doctors will only come across it once or twice in there working lives.the symptoms can be many illnesses,only bone marrow test will confirm 100% that it is mm.

Most people put it down to back…[Read more]

Hi Gill – very good!

Jean xx

Hi Bridget

Missed that one alltogether. Will try Iplayer when I get back. Sitting in sun with a large G & T and it is only3.05 here. Bad aren't?

There is anothe programe on Sky called "MEntal" He is a psychitrist ( don#t know how to spell it.) But in one episode she was explainiong to him that she had Multiple Myeloma and was in…[Read more]

Hi Gill

LOL needed that,eve

Hi Bridget

I too read the mail on line it saves buying a paper I was wondering how you are if you are now getting over the worst side effects of the revlimid
has you RT treatment relieved your pain

Lots of love Jo x8-)

Dear David

You are a very cheerful person always trying to give is a good story
I think your name suits you well keep us laughing

Love Jo x:-P

Hello Jean

I hope you and frank have a great holiday and come back nice and relaxed with a good sun tan
Love Jo 😎

Hi Tracey

I have just arrived in Spain and on the aircraft I also read the story and could not wait to get to a computer to tell it. I was feeling so down and it is such a "good feel" story.
Best wishes Jean x

Hi Perkymite

At least you have a good chance of not being infertile LOL,Perkymite what a lovely nam on wards and upwards 😛

hello Mark

My partner has tumour on spine plus damage to spine.Stared straight away after test on Myeloma X1 Trials.He was given ctd side for test.Intensive pathway decided now on 36 day,has good days and bad just go with the flow.

Mark you will be having a big learning curve with this illness.We asked short medium or long term and was told…[Read more]

Thanks Min, you made me laugh! I hope its not too long before you and Peter get away. I have checked the weather forecast and temp is round about 21 with only 1 day of rain. Any weather is better than N Ireland.Where we live we had terrible stormy wind today. Temp not too bad but at least we will actually see the sun.

Best wishes to you and…[Read more]

Hi Mari

Thanks for the good wishes. We are packed and ready to go. Pain is still there Frank says the only ease he gets is when he takes Diazapan. I intend to try and enjoy but poor Frank I will be watching him like a hawk. Hope Steve is ok, how's the training going?? Well done him.

Thanks, best ishes
Jean xxx

hello Gill
I echo what the others have said my dam also burst what a lovely girl

Love Jo x 🙂