Hello Mark

sorry to hear about your dad everyone is correct about the myeloma help line they are brilliant I expect they will deal with your dad tumour first before they start intensive treatment the drugs and treatment today are so much better than 10 years ago I would expect your dad is young enough to have a stem cell transplant and if…[Read more]

Hi Mark

So sorry to hear about your dad. I am sorry that I cannot give any information or tips but the fantastic people on this site will give you all the support and advice. They have brought me back to sanity on many of ocassions.

Although I can't provide any help, I posted to bring your post to the front (if that makes sense?0

Best…[Read more]

Hi Gill

Tell Georgia a BIG thank you from me. I echo what Eve and Bridgit say – you must be so very proud of her and you have every right to be.

Love Jean xx

HI Gill
Your posting has just burst the dam that has been cracking for a long time.eve

Brilliant news Shirley (Cheshire cat). So happy for you and your sister.

Love Jean xx

Dear Dai

I also am sorry to hear your news. Although I followed your posts, I id not know anything about your treatment. What I do know is that you are inspiration to me and am sure a lot of people on the forum.

i hope the new treatment goes well for you andd as GAye says your fighting spirit comes back.

My very best wishes

Jean xx

Hi Pamela

So glad to hear from you and am glad that you are feeling more like your old self. You have had a rough time. No Frank is not off his food – he has never been a big eater. No sign of sickness, but I will look out for it. He is all go – although he doesn't sleep much. We are ging to Spain on Friday, hew wants to to go Grand…[Read more]

Eve

I am so sorry to hear that Slim is having such bad time. Frank was diagnosed by accident (??) Went for something minor and dr did tests and and consulant after bone marrow sid Multiple Myleoma. I never heard of it. Our Dr did reseearch on MM but then retired last year and new dr hasn't got a clue!! A Good thing the other doctor took…[Read more]

Hi Jean

Yes Slim had been ill for more than 6 months,In a lot of pain,wanting to be sick,not eating,doctor put it down to tablets.Slims problem is he has a high pain threshold and an attitude a little bit of pain never hurt anybody.
I came across as a screaming banshie with attitude,not good when you know something is seriously wrong and…[Read more]

H Eve

Thanks for the info, I will look out for that. Dear help him I watch him like a hawk. I have been trying for years to do it his way but I will have to try harder. He is not going to like it, but I have a list of questions to ask consultant and I will tell her about the pain. We are going to Spain but I would much rather be at home but…[Read more]

Hi Jean

I know its hard,but if Frank will not make his feelings known to doctor,you have to accept it is his life his choice.He wants to go on holiday!!If bone damage is there 14 days will not make any difference,If he starts wanting to be sick,then calcium is getting into blood stream its called hypercalciumer ,spelling might not be right but…[Read more]

Nigel I know you are right but this is causing so much friction. I know if I keep going on at him he will not tell me anything about how he is feeling. He is so adamant that he knows his own body so I am having to put things on hold for 2 weeks and then have a long talk with consultant. He will hate that.

Min you are right about putting…[Read more]

Hi Min

Frank went to doctor and guess what – muscular. I asked him to ask dr for an xray but was told again (by Fran) that they only xray bones and not muscles. He is so looking forward to Spain. His appointment with consultant is 14 April so I will phone and ask for him to see consultant rather than registrar.

Min I bought that pack…[Read more]

Hello Jean

hope the G&T helped we got stuck on the sand dunes at maspolomas in a shower of rain while we were there got soaked. I think its good to make plans otherwise life is always on hold
Love Jo x

Chin up Dia

You have been so positive upto now I am so sorry the beast is back so soon
but you are a strong character so i am sure you will cope with whatever this thing throws at you next, look at all the new drugs that are in the pipe line that must give us all hope for the future. I could not have a SCT as my kidneys are to badly damaged…[Read more]

Hi Jo

Thank you so much for your kind thoughts. He is going to see GP tomorrow but our GP knows nothing about Myeloma. I admit that I am so scared, I wish he would see consultant, or at least go for and xray, but it is in Gods hands now.

Glad you enjoyed Grand Canary. Frank was saying today that he would like to go to Maspolamas in…[Read more]

Hello Jean

How is northern irland this sunny day I hope you are not feeling so worried now and looking forward to your holiday in Spain we have just come back from Grand Canary had a good time I know where Frank is coming from we just hope it will go way hard to admit we are ill fingers crossed he will be fine.

Enjoy Your Holiday

Love Jo x :-S

I also needed that John. Thanks
Jean x

Hi meeuu

i needed that joke at five this morning still lol,have you any more ?

You are so right Eve. Slim and Frank sounds like clones!!! Frank was a late baby ~(although has brother and sister) but his family doted on him and he always got his own way, and still expects to get his way. He really does not understand what is going on my head. I also think that his "on mindedness" (is there such a word) will help him with…[Read more]