Hi Jean

Frank is so like Slim!!!!!,If Slim new about me talking on this web site he would,go off on one.He was a commando marine for 22 years,use to being obeyed the only good thing about him being so stubborn is it just might be the one thing that helps him on this journey.He is a fighter with the believe he can do it and in my own way admire…[Read more]

Hi all
Thank you all for your responses. I can relate to points on all of your posts. Last week when Frank was in so much pain, I could not take any more and I told him that I was going to phone the Myeloma nurse or the doctor. He went ballistic. Kept on about it not being in his ribs and as you say Min ?I know my own body, and this is…[Read more]

Hi Jean

Is a holiday going to make any difference to treatment?

I have one of those men,who would not listen to me,So he has stage three MM. he has all ways been like this,you are not going to change him End of the day his body his choice.
You must make your choice,do you go to Spain,and have a holiday may be the last for sometime or phone…[Read more]

Pain is no easier today. I have convinced myself that this sh**ty disease has kicked in. He is going to see doctor again on Tuesday but I want to phone consultant and he wont. We are supposed to be going to Spain on Friday and I dont want to go. Frank says that he is going. Why dont blo**dy men ever listen. Sorry to all you men out there -…[Read more]

Thank you all for your replies. I managed to persuade Frank to go and see doctor. The doctor said that it was a pulled muscle but I am not happy about it. I want him to contact the Myeloma nurse but he wont. He gets quite angry when I talk about it. It does not hurt when he is still but when he moves it is really painful. I askd if it was…[Read more]

Hello Gill

I wasn't told what my paraprotien levels were on diagnoses only my Bench Jones figures which were 22% after my CDT treatment my para's were in a band to fient to measure and still are I stayed on 100mgs of thalidomide for twelve months stopped because of PN not had any treatment for a year now except a monthly infusion of…[Read more]

hI gaye

I think consultants are human to you may have cheered up her day She will be thinking you really appreciate her
Love Jo x 😎

HI Jean

I am a new be to this site and also to mm,my partner is on his 29 day of cdt.He has had pain in his right side for a long time,he originally thought he had broken ribs.When it was first diagnosed the damage to the large bones were in shoulder blades and skull plus spine,these showed on skeleton exray and mri scan. ct scan has not been…[Read more]

Hi Amanda

I'm glad you got it sorted. I hope it is as helpful to you as it was for me.

Best wishes
Jean x

Hello amanda

I know it must be hard for you if you love your mum, have you tried the
Local hospice or Mcmillan I am sure they would help with some concelling

Good Luck JO

Hi Gill

I hope Sephen gets many many more years. I really admire your attitude to this bl**dy awful disease – I wish I could be more like you. Take care and may your God bless you.

Love Jean xx

Hi Amanda

Here in Belfast counselling is available, it was arranged through the Cancer Resource Center. I went to counselling when Frank was first diagnosed. I went for about 6 months and it really helped me. I had to go back again to see the counsellor iddle of last year afor about 2 months. Declan (the consellor was brilliant) and the…[Read more]

Hello Jill
I had shingles last summer terribly painful I am really sympathetic for your mum I think she was a bit late for the antivirol but the doctor could have offered her some aciclovir cream I tried an old treatment which was dabbing the pustals with cider vinegar you smell a bit chip shoppy but it worked better than camomile and dried it up…[Read more]

Hi

I travel every year in motor home making are way through France then Spain and on to Portugal 'we have needed a doctor once in France and a dentist no problems just paid are 20euro,s and then paid for tablets.In Spain you can take your repeat prescription in to chemist and you can get it over counter we do this all the time as doctor,s are…[Read more]

Hello Jean

I have not had a bad pain but do get tinges from time to time I am afraid I am with frank this time I am sick of going to the hospital so I just will not put everything down to MM I know its a bit naughty of us it must be in our nature

Kind regards Jo :-/

Hi Amanda

My welcome also to the site. The site and the lovlely people
on it has seen me through ddifficult times. My husband was diagnosed with Smoulderig Myeloma in September 2006. I really did not understand whY they did not start treatment right away. The only thing they give Frank was was Zometa for about 6 months. But he has great…[Read more]

Hi Gaye
I know i am fairly new on here and my partner Slim is only on his 23 day of ctd,I do not understand why everone seems to be on different pain relieve.I am concerned how much Slim takes although hospital is very pleased with progress he was taken off tramadol put on 10 mil of morphine a day plus paracetamol 500.This controls the pain to…[Read more]

Hello Gaye

I am so sorry your pain has not gone away I hope the RT soon begins to work
you must worry a lot about the drug not turning up I dont think these people realise what it really means to people like us you can do without the worry lets hope things get better soon.
Love Jo 😎

Hello Tracey

So sorry you had to join this site but this is the place where you will get help and support also you can phone the great people at Myeloma uk they are so kind and know so much about the condition you just have to give them a call.I had CDT which worked well for me I managed to tolerate a 100mgs of Thalidomide for a year after CDT…[Read more]