Really beautiful Dai. You ae very talented.

Love Jean x

Hi Tracy

My partner Slim is on 21 day of ctd.He was on B12 vitamins for awhile.I cannot help with gluten intolerance.Slim was very healthy before all this.I think when you are first told about myeloma apart from the shock you start looking for reasons.Everbody will tell you this no one seems to know why or where it comes from,we are all…[Read more]

David

sorry you did not get remission from your SCT but my docs say plateau is pretty good and you could be in that stage for a long time fingers crossed
you are an inspiration to us also with your cheery comments and little jokes we are all with you SO CHIN UP 😛

Love JO 😎

Roz

How lovely you must be a great friend I agree with every word

Lots of love jO X

:-/ Glad I dont get squirrels like that in my garden

Love Jo 😎

Hey Bridget

There is one in london in october I hope to see you there I am sure you will make it

Lots of love Jo x 😎

WELL DONE MIN
I have been to a myeloma info day and It is brave people who stand up and give talks that make the day the carers are so important and myeloma uk do not forget that fact.

Love Jo xx8-)

Hurray Min 😎
II
great news your life will once more become yours (with in reason ) the days of getting up and having to go to work will soon fade i hope Peter is well enough soon to go for a short hloiday it will do you both good

Love Jo x

Hello Clara

When I was on CDT my ankles were swollen a lot of the time I could not take diuretics due to kidney damage I had to drink upto 3ltr a day which didnt help he should have a word with the doc or nurse I am sure they will give him somethin as for the rash I found that it was the antibiotic I was given (CIPROFLOXIN) that caused it is he…[Read more]

chin up Bridget
I am so sorry you are feeling so rotten you are such a fighter so I know you will not give up I know several people on Revlimid and once they have got used to it its ok one lady in my support group has been taking it for three years she was one of the original people that went to the press to be allowed to take it she now has a…[Read more]

hELLO kEITH

I have been reading a report from america where they have decided to give velcade once a week only they have found out that it has the same effect but almost non of the side effects I dont know why we dont get that here it would but a much better way of treating the disease

Love Jo x 😎

hi Nigel

I agree with you it should be easy to arrange medication between Europe,we know from friends in Holland If they need treatment and it is easier to go to Belgium its no problem.We tried it when Slim needed a hip replacement,2 years wait here,we offered to go to Abbyville in France would have cost NHS 5thousand was refused,they paid 11…[Read more]

Hi Gill

When Frank was first dignosed we used MIA for travel insurance. He is not on any treatment and has only had Zometa. Last time we were going we contacted MIA again and tey refused to insure him. They said that they had changed their policy. They were not very forth coming. W were told about Columbus insurance and we got a gret deal…[Read more]

hi Gill

Thanks for information,will look it up.We travel in a motorhome to France,Spain Portugel,have done all of Europe plus Morocco.This mm has put a stop on are travels for now.We are hoping once Slim gets use to his chemo to travel to France although on treatment,will have to come back every month because of Myeloma Trials.

It is just as…[Read more]

Hi Thanks kwilson for the advice on insurance I will look for that.

Hope everybody is enjoying this lovely weather or is it just south of the thames that has it?

Brilliant Min. Enjoy every minute. After a while you will wonder how on earth you fitted work in!!!

Love Jean xx

Hi Min

I have been away a few days and just caching up. I laughed so much that Frank came running in to see if something was wrong with me!!! I was choking with laughter. Thank you so much. I needed it.

Love Jean

Hi Ruth

My partner is on his 10 day of chemo,I can only tell you he should not be in any pain,if you do not ring the hospital to find out why,go to your own doctor,My partner is on very strong pain medication and is in pain when he does to much.

Normal exrays show up lesions on large bones mri scan for small bones eg spine;,no matter what…[Read more]

Hello Jet
i have not tried any alternatives for the myeloma but i have had accupunture for pain relief which worked quite well

Regards jO :-/

hi everbody

I have decided to come out in the open;I have kept my partner low key because of family circumstances.

I am eve aged 62 originally from Liverpool ,have lived in Deal KENT FOR 40 Years.My partner who is 66 was diagnosed February the 11 this year.He is known as Slim only his mother called him by his birth name.

We have been so…[Read more]