Hello Henry

welcome to the site sorry you have had to join the club I was diagnosed Jan 09 age 61 had the CDT which worked well for me although I did end up
with numb feet due to the thalidomide this is a common side effect my toes are still fairly numb but small price to pay as the treatment got on top of my Myeloma I have a monthly infusion…[Read more]

HI jo

Interested about going on holiday,how do you manage insurance wise? We have been told once my partner gets use to drugs we can go off in motorhome,but he is on morphine ,and only 10 days supplied at a time,so France looks out although for us France is nearer than most counties,and I am happy to drive in France.The customs might have…[Read more]

hello tom

It is a bit complicated with his daughter,in February she knew he fractures in his back,Then he was told he has mm and decided he would tell her h/term when she said she would travel up.She did not come,and no phone calls since,

My own daughters know and are there for both of us.I feel she should be told but will not go against my…[Read more]

David

You are part of the liberation movement and dont you forget it

Love Jo x 😎

hi Sarah

I was made to wear a liberty bodice hated it mine had button which attached
to my fleecy lined knickers (YUK) had to wear them all winter but only knee socks so legs got chapped all winter so not so toasty

Love J0 x:-)

Hi Gaye
sorry hear your back pain is not much better will they be able to operate if the RT doesn't work how are you getting on with your new treatment have you had any results yet

Keep well
Love JO

😎 hi Ladies and gentleman
I have found bras a pest most of my life as I have always been on the plump size and more plumpish on steriods I had to wear one I have found a sports bra with good support and no bones the best when my ribs were painfull I popped 3 ribs which was agony
Onwards and upward

Love Jo 😀

Hi jon
You are going to have down days;I do and its my partner who has mm.He has just finished dexa starts again Friday.Iknow he is a bit down right now but being a man keeps it all in.It would be lovely to have a magic wand and turn the clock back,Try to keep chin up regards eve

hi hmason

Lot older than you but based in Deal Kent,Try 50 age group a lot out there,My partner is in 6 th day of treatment on myeloma X1 trials he got ctd side.He comes under the same consultant but not seen the big man'Worth trawling site as I found it very helpful and reassuring there are people out there who have been on this journey a long…[Read more]

Brilliant game David I enjoyed playing it got all the countries correct
but not in the right places

Love Jo :-S

hello Jet

I have been reading your blog I hope you are feeling a bit better now I know the shock must have been terrible for you if its any consolation I did not lose my hair during trearment(CDT) your hair looks wonderful such a lovely colour
Love Jo 😎

Hello Ruth

I can relate to your worries MYELOMA is an awful diagnosis at any age but 29 is so young you will get all the help and encouragement you need from this site which may become important to you as you are seperated from your partner the hopital may be reluctant to give you any real information
Good Luck Jo

hi everbody

I would just like to tell you all how helpful I find this site,I never mention my partners name because his daughter does not know!! long story.

It is very hard sometimes I understand his feelings but as a very open person it is hard,he is just the opposite of me.If your can not do anything about it why worry about it!!!!

I…[Read more]

Hello Jon

WELCOME to the site it is the very best place for support help and information especially to know you are not alone all the odd and disturbing symtoms you may get there will always be someone who has had it before and can talk it though with you I hope they sort out your pain soon good luck for the journey
Keep well
Jo 😎

hi jonny

Its my partner who has mm,I have found this site very helpful it has certainly calmed my fears.my partner is in his 5th day on myeloma x1 trials he got ctd branch.I can only say he is better than he has been for many months; Jets story is so similar to my partners.

I can only advise you to get things in place in advance,eg blue…[Read more]

nicki
I have only just joined this site,and to hear there is light at the end of the tunnel is good news.We are just starting are journey ,one we did not expect to be on.It gives me hope for the future,one thing I have learned from this site is to be positive,I thank you all for that regards eve

hy everbody

When does this kick in my partner is only 3 days into dex,this morning he went off in a mood,because i did not want him changing bedroom round,complaining I should have had fitted wardrobes by now,

Aa well as coping with illness,I have had kitchen fitted,next bathroom ,double glazing planning consent to sought out,and when i told…[Read more]

my partners the same,stabbing pain right side,On oramorph 10mg a day plus paracetamolbetween oramorph.As he feels better he is doing more.

He has only just started first round of chemo,and have been told there will be no pain!!!!!!! he is a lot better than he has been for months.the pain at the moment seems under control. it is early days,we…[Read more]

I can only tell you when my partner had his problems it showed up on ordinary x-rays.the skull and shoulder blades,the reason they do mri scann on spine is because there are so many little bones its hard to see on ordinary x rays.

my partner was admitted within 10 min of first appointment.48 hours later he was like a new man,all test were…[Read more]

To gill and also dave.

Thanks for info on publishers calender I will try that.
The pills are something 10 cyclo 1st 8th 15 day 20 dex run for 4dayd thalid 2 everday,plus sickness pills.that is just from hospital the rest comes from doctor.We have been told that they have put him on the intensive pathway.This is from a man that never took a…[Read more]