Hello David

great news it all looks positive your consultant must be please if he is only going to see you in two months keep up the good work

Love Jo x 😎

hi david

Have two boxes for pills,My partner insist on doing his own pills,but there are so many,some days its 45 pills other days as little as25.Plus pills from our own doctor.We have agreed that I check them as sometimes he can be confused becuase of condition.there has to be an easy way of doing this.

I hope someone can tell me of an…[Read more]

Hello Kath

Jolly good too, I agree we all have bad days so its all right then to feel like that you have a lot to contend with

Keep well Love Jo x

Hello Sandie

I think it will be ok for your mum as she doesn't need treatment yet and fingers crossed for you lets hope its just a false alarm

Regards Jo 🙂

Hi Min

good one it got me too I thought what!!! is she doing

Love Jo x

hello Eve

I had CDT so I can relate to the problems also had kidney damage so have had to take drugs for that I found that taking the DEX in the morning and the thalidamide at night I was not awake all night which seems to happen with DEX if witha glass of milk helps the dex down I know some people take it with yogurt I took all my other…[Read more]

Hi Marion My partner started on trials today he was allocated to ctd group.Have found the last couple of weeks mind blowing.So much to take in and so many visits to hospital.Then coming to terms with illness and how it will effect future life.It is early days for us,the amount of tablets is mind blowing.CTD drugs then pain releave plus tablets…[Read more]

Min you got me as well!!!! I was trying to figure out where you would get potatoe bags!
Jean

Hi

I loved thye frog dance it made me laugh for ages thank you

LOVE JO 😎

Hi David

I feel so disillusioned!!! I thought I was great doing my Wee Fit!!

REgards Jean

Hello Kevin
so glad you are back sorry you have been so ill I am glad you are a resiliant sod I have missed your posts and wondered what had happened to you

Keep Well Love Jo 😎

hello jET

Iam not in the under 50's group as I am a bit older but I read your post then your blog you seem to have had the same experiance as me I was diagnosed jan 2009 my kidneys have not recovered enough for an SCT this was my my choise as the chemo involved with the transplant could have destroyed my kidneys completely I could not bare the…[Read more]

Hello Kath

I hope you dont give up you have been a real inspiration to me I also could not have an SCT and reading that are still here 9 years later gives me a lot of hope that I can achieve something like it

Much Love Jo x

Hello Kathline

Sorry you have not been so well hope you are feeling better now I have missed you I agree about this web I also do not find it as user friendly as as the old one it was better seeing all the new posts at once

Keep well love JO X 😎

Hello Andy

welcome to the site it must have come as a big shock to you to be diagnosed with MM as it was with most of us I have never heard of it before you will find all the help and encouragement you need hear, and do look for a support group in your area they are a great help also

Kind regards Jo x 😎

Hello Bridget

I am well at the moment get PEP results on the 1st of march so fingers crossed I next go to UCH on thursday 24th Feb when will you be there.I
have a support group meeting this friday I believe we have a speaker from McMillan so should be interesting I will let you know all about it I am so glad your pain is getting a bit better…[Read more]

Hello Kay

good luck with the CDT it really worked for me I also had a rash we diScovered it was the Anti B they put me on ( CIPROFLOXIN)it looked like a german measles rash

Keep Well love jO X:-D

hELLO Gaye

so sorry you are feeling so unwell at the moment you have every rite to feel sorry for yourself I hope the RT treatment goes well and it will soon help with your pain

Love JO XXX

Hello Bridget

I did laugh I could imagine Dai conducting us in a chior I would be the one he would tap on the head a say mime it. Dex Dex Dex we should write a song perhaps Dai could, I know what you mean about fat face I am only on a small dose but still have a fat face! hope you feel much better soon have you had any relief from your RT…[Read more]

Hi Gill

I got two out of three pepperpot skull and Dexatude this word should make its way to the oxford dictinary
Love J0 x