Dear Gaye

I have been following you post. I have no knowledge of any of the teaments but you seem to be having a rough time. I hope that tomorows pills stay down and they work.

I don't understand how people can be so nasty about a hospice. A children's hospice was built a few years ago, not far from where I live. (I think it is the only…[Read more]

Hello Ron

welcome to the site I know you will find all the help and advise you need here, I did. I was diagnosed two years ago and one of the first treatments I had was seven units of blood as I was so anaemic this was partly due to the fact my kidneys had failed I continued to have two units every month for at least six months it really helped…[Read more]

Thanks Debs

I have been following your blog and hope that things are going well for you.

Love Jean

Thank you all. I hope to get to meet Madelyn the week after next. My other grand daughters are arriving from Kent on Thursday. So we will have a full house.

Min I hope your poor wee grand daughter gets better soon and that Peter is protected.

My best o you all. Love Jean xx

Yhank you all for your good wishes. I can't wait till I get over to see her. Nettie enjoy your first. They are precious.

Regards Jean xx

Hello Jean
A new grandaughter how wonderful congratulations

Love Jo 😀

Hello Bridget

So glad to heard they have arrenged your RT treastment so quickly it must be so awful for you to be constantly in pain (all of you ) it must be much easier to cope without it, its a pity you cannot stay at Uch rather than travelling but I expect you may feel more confortable at home. fingers crossed for the revlimid I am sure you…[Read more]

Hello Michelle

hope mum is ok with the infusion I have had pamidrinate for the last eighteen months once a month it made my bones ache at first but after a while I have felt no effects at all I have mine over an hour and a half once a month hope your mum keeps well
Love JO:-D

Thanks I am so excited anyone would think it was my first!!

Jean

Hi Ron

i really appreciate your quick reply. I was imagining all sorts of things – hacking into my bank account etc.

My mind is easy thanks again.

Regards Jean

Hi All

I gpt this email but I have been stupid – I replied to it, asking Andy what it was all about. Does anyone know or have an idea what happens -or is there anything I should do seeing that I answered. I am in the process of running a scan

Ta
Jean

Hi Hils

Never ever feel guilty. Everyone of this forum knows what your are going through. The only other thing that I can say – whicy was said to me when I joined the forum – Don' search the internet as a lot of the information is outdated and would scare the life out anyone. I get my info here and on the Myeloma Beacon. Your brother will…[Read more]

Hi I am sorry to hear about your brother. But as has been said this is a fantastic site with lots of advice support. I think it is important to realize that every one deals with this awfull disease in their own way. When my hubby was diagnosed all the family were brought together and told that no one was to do any research . He said that if he…[Read more]

Don't know about finding "Will" but your posts certainly made my "Giggle bag" come back. You lot are definatley raving lunatics!! But keep it up – I needed a good laugh and you all gave it to me.
Thanks
Jean x

Hello Keith

Sorry the monster is back we are all waiting for this dreaded phone call
I dont suppose its ever as bad as the first time we are told it just as if there is a ticking time bomb in us and we just dont know when its going to go off really good luck with the next lot of treatment lets hope it gives you a good long remmission
Keep…[Read more]

Hi Gaye
when I went to the myeloma open day in London there was a lecture from a visiting proffesser from America, who spoke about varius treatment and Pomalidomide was one of them he said that the results were very positive sometimes on their own and some times combined with a steriod he seem to think it was going to be one of the next best…[Read more]

Go for it Min!!

I took early retirement 2 years ago (2 years afer Frank was diagnosed) and I am loveing it. I thought in the beginning that we would get on each others nerves – but after a rocky start(nothing to do with me being at home – Franks attituded to this bl***y illness and mine were very different)but once we got that sorted it has…[Read more]

My thoughts are also with you Roz and your girls, especially on Friday.

God Bless
Love Jean xxxxx

Happy new year David and to all the friends in this group may it be a happy and healthy one for you and all your loved ones
Jo:-)