Hi John

I am sorry that you have joined the site but You are in the right place. Welcome. As David says the people on this site are excellent. My husband was dignosed 4 years ago – (attended doctor for one thing and they found this bl**dy disease.) He was lucky it was found so early – he visits consultant every 2 months and they keep an eye…[Read more]

Happy new year to you David and all my friends on the forum, We went out with two of our sons and wifes to clebrate 2011 coming in and had a really good time although Frank fund it a bit of a strain. I hope the new year brings us lots of hope and my thoughts are with all my forum friends who are going through treatment. Happy healthy new year…[Read more]

Hello David

We went to Ibiza last sept and insured throught a company called MIA throught the agent J D Travel its a company that specialises in insurance for very ill people even if they dont feel very ill just the related illness that people have.We went throught the terms and conditions and they seemed very fair you must hold an EHIC card…[Read more]

Hello Bridget

So glad you are feeling better never pleasant in hospital your heart must have sunk when they said the velcade didnt work but you need to get rid rid of that tumer first and be rid of pain then on to the next step Revlimid seems successful for most people but I am afraid it will probably be with DEX again but if it works which it…[Read more]

Dear Jayne

I hope that by the time you read this you will have got through to the hospital and got an earlier appointment.

I know how you are feeling I went through all that you are going through (and I am sure that other carers did). At first I could not let Frank out of sight. For about 2 years I would not leave him to go out with…[Read more]

Dear Amelie

As has been said this horrible disease is so individual. 4 years ago my husband was not feeling well. Run down – no back pain but doc thought might have infection in kidneys. After battery of blood tests Frank was sent to haematologist and after a marrow biopsy myeloma was diagnosed. A bolt out of he**. He has smouldering…[Read more]

Ros
so sorry to hear micheal has passed away my thoughts are with you

Jo

Dear David

Sorry I can't help. Frank has not started treatment so I don't know much about SCT or side affects. Just wanted to say that I am so glad you are feeling better. I have been following your posts and I think you are amazing.

I hope you have a fantastic Christmas and healthy new year and that your mouth starts to improve.

Love…

Dear Roz

I send my heart felt sympathy to you on the passing of Michael your beloved husband. My thoughts and prayers are with you. I know it will be difficult but please take care of yourself.

God bless
Love Jean xx

Dear Gaye

Thank you for your lovely words and for your support. Merry christmas to all and may the new year bring further advances in treatment for the terrible disease.

My thoughts and prayers are also with Michael, Roz and David.

God bless and A HAPPY HEALTHY NEW YEAR.

Love Jean xxx

Dear Bridget,

I echo your post. You are all a lovely group of friends who, as I have said often, have been my life line and kept me sane.

My love and best wishes to you all. A very very merry Christmas and a happy and healthy new new year to one and all.

I hope Santa is good to everyone.

All my love Jean xxx

I am going to miss this one. Tried to open it but message appeared that I did not have program. Awwww!!

Love Jean

Yep!!! Very good – made me laugh. Hubby thought I was having a fit.

Jean

Hi Donna

I am sorry to read that your dad has passed away. I have been following your posts and was saddened to here the news. My thoughts and prayers are with you and your family.

Love Jean

Hi Gina

My hubby is in a similar situation. disagosed 4 years ago. Protein goes up and down like a yoyo. Was at the consultant on Thursday and protein down to 26 (was 29 last time) but other bloods are stable so Frank is happy enough. We go back in February.

Hope your mum goes from strength to strenth.

Enjoy Christmas. Have a great…[Read more]

Hi Nikki

You are so right. It is difficult at the beginning but life has to go on as normal (as much as possible) I have to say that before this horrible disease we would both huff but not now. (Boy were we huffers) We are enjoying evrythng as much as we can. I follow Franks lead, as he is going through this I just take my cues from him.…[Read more]

Me too/ vry slow – like swimming through mud. Mind you have never done that !!!

Thanks Jean

Gill

What a terrible thing to be going through. I so agree with Min, although it takes a lot of energy to deal with these 'jobs worth'- kick up as much fuss and as you can I really can't understnad how they can get away with this. As Min says put it to watch dog – write an email to them – write to everyone that you think will listen and…[Read more]

Dearest Roz

It has all been said. I hav also followed your posts and my thoughts and love have been with you Michael and your daughter. You all have been through so much and I so agree with Susan. Talk to Michael about all the fantastic times that you have had as a family and through your life together. I am sure that all that have been…[Read more]

Bridget

I am really thinking of buying shares in Lemsip and Manuka honey! Have to admit Franks form appears to have improved. Maybe it's because Man United won! Little pleases the innocent. He has had no temp = so that is good. He is sitting with the lemsip and honey – me – a gin and tonic. Don't know if the lempsip is doing him any good…[Read more]