Hi San
Yes thank you, even have a sun tan! do your mean its not always sunny? The friends we stayed with are going to invite me back soon apparently because I always get sunny weather in Cornwall! 🙂 if only it were nearer Northumberland ! Love Helen

Dear Andy and Steph
Thank you for going,to say goodbye to Keith and to support Sue.
Love Helen

Hi there Ali et Al
Well, as you know I've been there got t shirt etc.

San ( weather fab in Cornwall, it's always like that when I go there:-)) and Jill, I think Ali is right that in frontline therapy it is different to maintenance, but do check when you go. Your mums would have thalidomide (which is an earlier version of Revlimid and can be…[Read more]

Hi Dai

Well you are wrong about one thing,I am not sorry I asked!!! I hope you have a really good summer,I know how much I miss about our life before MM took its toll and living on memories is not the real thing,2. 1/2 years for us,with six months remission when Slim was not great is not enough. You are a lot longer and like us whole routine…[Read more]

Hi Dai

How are things going!!! 10 days is a long time when you are waiting to see what results you will get from GCSF,do you feel good in yourself !!! Are you able to enjoy some free time away from medication!!

Spring is late this year,but it is lovely to see the blossom and flowers in bloom,so looking forward to the heavy smell of the…[Read more]

Hello Linda,

You were brave taking part in a netball match! I haven't played netball since primary school, although I remember playing goal attack for many years and thoroughly enjoying the game. My youngest son is almost 21 and he is studying sport and coaching at uni because he wants to become a PE teacher. His main sports are football,…[Read more]

Hi Linda

It's really good to hear from other myeloma patients who have been in remission for a long period of time and who have been able to maintain a good quality of life after undergoing chemotherapy and SCT. It's great news you were able to resume,maintain and enjoy your employment for so many years without any problems with your bone…[Read more]

Hello The Wife

Welcome,sorry there is no name,my names Eve,and in a very similar position,except we know its back,how quickly it is going we do not know,Slim has another BMB today!!!.three months from his last one.

Please have no secrets between you,if he is in pain he is thinking the same!!!! Be open talk it is the only way to get the…[Read more]

Andy that was so lovely written. You were able to write things that I would not be able to put in writing. Thank you for that. Andy I think you would a great representative for Keith's cyber friends at this most sad time. My thoughts and love will be with Sue and family and you and all his friends.

Love Jean xx

Hi Peter I have PM you for info
Love Jean x

Dear Sue,

I never met Keith but I read his posts on the forum and he was so helpful in passing on his experiences and advice to other new myeloma patients starting out on this tough journey. He was clearly a very brave and lovely man, and you must miss him. I hope you are surrounded by love and able to take the time you need to grieve, and rest…[Read more]

Dia

I am keeping everything crossed for you I am really glad you are positive and the news about the treatment is sounding better thinking of you
Love Jo x

Hello Mavis

I am on the 5th cycle and after the 6th UCLH want me to go on fortnightly velcade and extend the regime to 9 cycles instead of 8 I hope it works can only give it a go:-Dhope you enjoy your trip to see your daughter
God bless Jo x

Hi Sue

We all new Keith,but not you,I hope you can find some comfort with the knowledge,that he will be missed by his cyber friends, he never posted a photograph of himself,but we all new when he was not posting specially when he new that time was not on his side.

He made time to reply to other people who asked questions,as Keith was ahead…[Read more]

Hi

Sorry to hear about mum,nose bleed can be the result of many things,Myeloma is a blood cancer,which brings problems with blood eg platelets or blood to thin because of other drugs,needed to treat your mum,your mum is in the right place,they will take blood and find out why your mum is having a nose bleed,talk to your mum,she will be…[Read more]

Hi Pat

Just to set the record straight,I am a scouser,living in SE Kent,my family up north,would say I have a plum in my mouth after years of living south of the Thames .I am no Cille Black,I think Slim would divorce me !!!! I suppose because I left my roots,plus travelled I do have a different out look,plus Slim could live out of a suit…[Read more]

Hi Peter

I read the article plus comments,my thoughts on this, it was sad to hear the last comments !!! I think if you are generally healthy,it gives you a head start when cancer strikes,but I do not believe if you do deprive yourself of things you have found a magic Formular .

When Slim got Myeloma I took up reading all about diets ,and…[Read more]

Dear Sue

My prayers and thoughts are with you and your family at this very sad time. I never met Keith but I followed his journey for some time. He gave us all support and comfort and his knowledge of the awful disease, even whie going through such a hard time himself. May your memories and family give you strength through this very sad…[Read more]

Dear Ellen
I do hope you will convey my feeling of great sadness to Sue, I met Keith at the Newcastle info day last year, when I was at a very vulnerable point. He was so very encouraging, understanding and thoughtful. He will be missed greatly by this community.
Love Helen

Hi Jan

I wonder how many would take it up!!!
Everyone can do fact but it,s just paper work or if you like a survey .
The Myeloma world is hear on this forum,because it tells you about how people are living with it now,how family react. My daughters do not get involved with the medical side,if I asked for help I would get it from them, I…[Read more]