Hi Eve
Thanks, I hope Slim's more comfortable now. I'm not unhappy with my treatment or how I was diagnosed, I think it's all been done as and when needed. As the patient, sometimes you have to have time to let things settle, I've found when my husband starts to do the asking, why and what next it is very unsettling for me so now I go by myself.…[Read more]

Dear Vikki
I'm glad he's slowed down a bit, I think it's still early days for doing a lot.
It is really hard to know what each pain means, I worry the same way, I have been told endlessly, I have no bone involvement, but I have a small hole on X-ray of my arm and increasing back pain, nothing is standard and the report says its not a myeloma…[Read more]

Hi Jean

Pleased you are feeling better,you got to see the x rays,that's more than I did,it pays to ask questions or in my case be a pain in the a——–s.keep asking as Bridget use to say,knowledge is power.

Is you husband on trials???

Take your boots off its spring,if you cannot cope emotionally ,go to see doctor ,nothing worse than…[Read more]

Hi Sue and Helen

Slim has been much better with sleeping since we saw are own doctor,and if Slim sleeps I sleep.

I spoke to her,she recommended paracetamol on top of Oxycodone ,which has helped,he is always reluctant to increase drugs,this is a man who never had a prescription until he was sixty and that was a drug being pushed through…[Read more]

Hi Anne
I was diagnosed on my birthday aged 53. For the previous 12 years, I had been running my own successful business which employed 25 part time staff. My health up to my diagnosis had been OK with just a few colds and a few strange pains. However, I went to bed one night and couldn't move in the morning, or for the next week, with three…[Read more]

Hi Mavis

thanks for your kind thoughts I am doing ok now velcade seems ok how are you still in remission I hope
God bless
love Jo x

Hi Tom

Start eating ,you can eat for as much as you like,but keep it health, 😛 🙂 😎

Then it will not matter about weight loss,you must be feeling ,it's all bee worth while,lets hope you have a very long remission .Eve

Thanks Eve!
Yes it's nice to have something to look forward to and important still to have those days.
I'm actually reassured after yesterday. I haven't seen doctors or had results yet but the guy doing the test explained it and showed me the pictures and said it looked to him like my heart just has an extra sticky-out-bit, not a clot.
I was…[Read more]

Hi Dai and Tom

May I suggest a design problem with a onesie it concerns men and women,not so much kids as there bodies are flexible .you do need an a functional escape area,were you can quickly remove part of he garment,to attend to you normal body functions.

Love Eve

Hi Helen
I wish you well on your belated or should I say early birthday,I feel like that about Christmas Slim has nt been well enough to enjoy one for a few years,with that in mind why do I look forward to it !!!

We all need a little Mills and Boon,in are lives even the people who go uck!!,seriously does this heart problem worry you,or are…[Read more]

Hi Tom
I only had 4 cycles of RCD before my ASCT .As both Eva and Peter have covered just about every point very succinctly I can only add that whatever decision you make will be the right one for you, if you choose asct it will not be pleasant but you will endure it and if you have questions and need answers someone out here will always answer…[Read more]

Hello Jo, Jean, Vicky, Ali
I apologise for the bulk nature of this reply, but thank you so much for your cheery replies:-)

I got the parking space back!….. And a little note from personnel asking how I was!

Jo are you managing your new treatment well or is it very exhausting?
And Jean I hope Frank continues to improve? How is the…[Read more]

Hi Sue
I've never had a PET or MRI scan only CT, so MRI next week will be a first for me with mm, though I had a brain one as a research volunteer a few years ago…. And yes my brain is there,! I find the Revlimid tiring and it has probably worsened the peripheral neuropathy I had before diagnosis but not impossibly. I find it upsets my gut…[Read more]

Hello Terry
go ahead and blub why not we all do because terrible mm dont give up hope loads of new treatments coming on stream my husband is my carer he does get a bit depressed but he will be with me all the way as i am sure your wife will be for you so try and look forward as someone said to me the other day if you are a good poker player you…[Read more]

HI mothias

great news wonderful Uclh hope it goes well for you and you get a long long remission:-)
Regards Jo x

Hi Tanya

So glad you managed to be with your Dad,that is something no one can take away from you,be kind to yourself have no regrets,
You are a lucky lady,good husband kids and a kind mother in law,
Move on with your life and enjoy it.Eve

Hi Sue

I will keep trying,I do understand that even with the knowledge a PET scan brings,it will not change the outcome in Slims case,what they fail to understand,we need that knowledge !! I say this because we are busy planning are future, we are retired and intend to make the best of what ever time while Slim is reasonable fit.
I think they…[Read more]

Hi Ted

It is not strange,it sounds if they are checking your Kappa Light chains,they send a blood sample off takes a while for results to come back,then I'm a few months they will do the same again,this gives them extra knowledge to see how the Myeloma is advancing,it is just another marker to manage the stage of Myeloma.

Hope that…[Read more]

Hi Terry

My husband has had MM for nearly 7 years. He has just had his SCT. I couldn't care less if I never have another holiday in my life. As long as I have Frank I will be happy. I do not know your wife but I am certain that she "is not waiting around until the end before she can move on with her life". As Andy says – every days a gift.…[Read more]

Hi Helen

Lets hope you find the key
Slims bloods are good,even kappa light chains showing rise,but on the 7 May it will be 3 months from the last BMB he will have another ,then the wait until 24 May for results. 10 percent three months ago.i wonder what it will be in 3months and 3 weeks.??? It is hard to just have BMB as marker,.

They…[Read more]