Hi Andy,

It's great to read this news! I always notice that you worry about giving 'bad news' for newbies etc but looking in from the outside I always think your story is really encouraging, a story of hope. If at first you don't succeed, try, try and try again! I've hesitated to say that before because I'm not in the same boat and I realise it…[Read more]

Hi Vicki

Frank is doing ok – I think :-S He is getting his appetite back. Eating small amounts but few times a day. He has had a G& T, Guiness atnd beer. Hasn't got the taste for wine back and vegetables, he won't touch them. Doesn't appear to be putting on any weigh. Going tomorrow to see consultant

How is Colin now?

Best to you…[Read more]

Hi Terry

You are in the shock stage,Slim only got 6 months between 100 day BMB and the next one,your life turns up side down,we thought he might get 2 years,so yes it,s a bit of a bummer,Helen says it bites you in the bum,when you do not expect it,I call it a shark attack.

Slim worries about me,why???.you cannot change the future ,I want…[Read more]

Hi Helen

More more ups than downs pleaseA :-D. Hey why did they take your spot of you damn cheek !! Hope all comes right
love Jean x

HI Helen
i hope you start to get more ups than downs i hope you get your parking space back it must be difficult to work as it is with a bad back hope you are sorted soon

love jo x

Hi Terry
I have just posted along similar lines and am in almost the same place as yourself. I still work, a huge part of my identity is through what I do, and I just love my job. It is interesting and stressful, valuable and sometimes exciting and humbling too. Without my work what will I do? I like the banter, i get a great deal of personal…[Read more]

Hi Terry

We all know about MM,it is how you see it,and how it effects your life.!!!

Take mM out of the equation ,and do what ever Floats your Boat,my husband believes look after number one first,might seem selfish,but it works for him. As a wife and mother,I have different priorities ,??? Or is it just the fact that women are natural…[Read more]

hi David
I am about to start cycle 5 of Velcade I have it once a week with cyclo and dex day one and two so not so bad I also have pamidronate once a month
my PP are now down to 4 so all good except the blip with a dose of pnuemonia been ok in the main
Keep well
Love Jo x

good news Andy and steph

lets hope this is the start for you so you achieve an SCT GOOD LUCK
fOM jO X

Hi Tom

I didnt give it to you honest!! I had a temp of 39 when Geoff phoned the
Hospital doesnt it make you feel rotten I hope you will be better soon penicillin soon put me right they said in the hospital they have had so many chest infections that turned into pnuemonia so you be CAREFUL DONT WANT YOU TO GET GET ANY WORSE:-(
lots of love…[Read more]

Hello Vicki and Colin

thanks for your kind thoughts I am on the mend now
Love Jo x

Hello Jane

thank you for your kind thoughts
Love Jo x

Hi Scott

thanks for you kind thoughts I am ok now but the kidneys didnt like the Anti B;s I think they are settling down now sorry about the bendamustamine
Have thought about CDT AGAIN it worked first time for you it could work again better than knocking your kidneys out with an SCT
hOPE THINGS GO WELL FOR YOU I start Velcade again this…[Read more]

hi Tom

you are not kidding thanks for worring about me a big (((HUG FOR YOU))
from one of your flock Baa
Love Jo x

Hi Eve
Could you try and get him refered to The new McMillan cancer centre at Uch
its state of the art I have recommnded Dia trys as his hospital seem to be mucking him about I suppose you would have to go through McMILLAN BUT ITS WORTH A TRY
lOVE jO X

Hell Dia

thanks for your kind thoughts i have been worried about you and your treatment I do hope they came up with something for you or else you will have to try another hospital can you get down to London I go to the UCH once every three months they run a state of the art cancer unit funded by McMillan I wonder if you spoke to them you could…[Read more]

Hi Helen
I am back up and well not running but getting there once they used penicillin which fortunately I can take it soon cleared up I am starting Velcade again this week as the bloods are ok lets hope this was just a blip as you know I havent shut my self away I cannot bear it so there is always a bit of a risk but i have to live my life the…[Read more]